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NJM01's Recent CancerCompass Activity

  • NJM01 has replied to a post on the message board

    Hi Susan, I’ve tried numerous times to start new threads but they get referred for moderator assessment and never seem to get posted. This site - and people like you - were immensely beneficial to me during my treatment and I would like to stay active but don’t seem to have much luck on this board. I do a lot of research into HPV oral cancer and find some fascinating articles but have given up trying to post th...

    June 16 at 2:30 AM view post
    • NJM01 has replied to a post on the message board

      I’m still here thankfully... Hopefully the lack of new posts recently is indicative of less people being inducted into the HNSCC club but I suspect that’s probably not the case unfortunately. Last night I tried to start a new post to share an interesting article I came across. The post is pending moderator approval... here is the article link in the interim for those interested: https://www.ncbi.nlm.nih.gov/...

      April 08 at 10:16 PM view post
      • NJM01 has created a new message board discussion

        An interesting and by turns, positive yet confronting read: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6258135/ I’d be keen to hear from the 5+ year club on how they read this and relate to its comments about longer-term dysphagia in particular. The longer-term survival stats seem to suggest (rounded-up) that non-smoking HPV/P16+ patients have odds circa 70% but there does appear to be a decrease in overal...

        April 08 at 8:41 AM view discussion
        • NJM01 has created a new message board discussion

          An interesting article in The Lancet on recent trial results that continue to support recommendations for the use of Cisplatin as the radiosensitiser of choice where possible: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)32930-1/fulltext

          November 21, 2018 view discussion
          • NJM01 has replied to a post on the message board

            Hi torehb, Susan is right - if this is HPV / p16 + squamous cell carcinoma then it is both treatable and curable. There are obviously no guarantees and the treatment can be very, very tough but that particular cancer can be successfully treated. This time last year I finished chemo radiation for T3N2c HPV p16+ SCC and so far, so good. Do let us know a little bit more about the diagnosis and we’ll help if we can...

            October 08, 2018 view post
            • NJM01 has replied to a post on the message board

              Glad you’re eating soft foods and doing well Mbro - please let us know how you go with the biopsy results. In the interim, use the pain killers as needed. It is short-term use so as long as you’re sensible you shouldn’t have any issues.

              October 06, 2018 view post
              • NJM01 has replied to a post on the message board

                Good news - here’s hoping the second opinion confirms the first. When all of this is behind you, don’t forget the insights it brought you about what is important in life!

                September 14, 2018 view post
                • NJM01 has replied to a post on the message board

                  Hi mate - your GP sounds sensible. Start with an MRI and see what develops from there. If none of your doctors are too concerned thus far it is a good sign. As to the tonsillectomy or laser treatment, be guided by your ENT after the MRI. I can well understand the desire to have the tonsil tissue biopsied for peace of mind but be guided by the experts and if you aren’t confident in their advice, get a second opinio...

                  September 09, 2018 view post
                  • NJM01 has replied to a post on the message board

                    Yep - Sydney is a great place to live. We’re very lucky. Let me know how you go with the GP. A PET scan is what I had on diagnosis but there are different approaches and protocols and it may be that whatever you have is not serious. Irrespective of what comes next, take it from me that although it has become a cliche, it truly is the little things that matter. Houses, cars, career etc. are all part of our lives...

                    September 07, 2018 view post
                    • NJM01 has replied to a post on the message board

                      Hi mbro, I’m based in Sydney, Australia so I’m not sure I can offer any practical assistance. The way our process works, I saw my GP, explained I wanted a second opinion and got a referral to my preferred doctor. There could be a variety of explanations for your throat symptoms so don’t panic just yet. I suggest you speak to your GP and seek guidance on how you can most quickly see an ENT who specialises in ...

                      September 06, 2018 view post
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