NOTICE: As of June 15, this community will have a new web address: compass.cancerfighter.com. You will no longer be able to access the site at CancerCompass.com For more information, please read the full blog post.

 
Loading...

OMB02's Recent CancerCompass Activity

  • OMB02 has replied to a post on the message board

    Tried PM to you, but apparently it did not go through.

    December 19, 2018 view post
    • shellie12

      shellie12 hiya will see if i can sent a pm

      December 19, 2018
    • OMB02

      OMB02 I received a comment from you, but it did not come in as a private message. I am attempting to return the comment to you to let you know I received "hiya will see if I can sent a pm". Will attempt again to send you a pm.

      January 06, 2019
  • OMB02 has replied to a post on the message board

    Tried to send private message but received notification that it did not go through??

    December 16, 2018 view post
    • OMB02 has replied to a post on the message board

      Hello, Yes, has been a while. Tried twice to send a private message to you, but they would not go through. I'm on a trial now. Xofigo did not seem to work for me. How is your uncle? Take Care, Monty

      November 23, 2018 view post
      • shellie12

        shellie12 hiya have sent a message a few times hope your ok

        February 03 at 9:15 AM
    • OMB02 has replied to a post on the message board

      Just an update... I guess I'm one of the unlucky ones that it does not help. I did lose 9 pounds, though, without trying. Had three rounds of Xofigo. My ALP lowered with each round...with the most recent count being 105. After my third round, a bone scan showed that new bone mets had developed, so my Xofigo was stopped after three rounds. I was sure that it would put a halt on my bone mets, but I was wrong.

      October 07, 2018 view post
      • OMB02 has replied to a post on the message board

        Hey Charlie, Great to hear from ya! Have you ever been on Zytiga (abiraterone acetate) ? I was on it for 11 months with Lupron and my PSA started to rise so my MO dropped it for me and now I'm getting Radium 223 with the Lupron. Keep fighting!! Take Care, Monty

        August 23, 2018 view post
        • OMB02 has replied to a post on the message board

          Hello Gene, Do you know if would be normal for Radium 223 treatment to result in a lowering of one's PSA ? I was of the opinion, maybe mistaken, that Radium 223 would not be expected to lower one's PSA. Prior to my second treatment, something stopped my PSA from rising and lowered it also (slightly). I'm not sure whether to attribute it to the Radium or something else. Take Care, Monty

          August 01, 2018 view post
          • OMB02 has replied to a post on the message board

            Hello Shellie, That's great that you uncle's ALP was down to 400 from 1000! Hope it continues to drop. My Hgb was a little low (13.3) on June 29...when I received my first Radium 223 treatment. Have to really watch it as the Radium can cause it to be low, but today I was told it was all good. Hope your uncle's blood test is a good one. Take Care, Monty

            July 31, 2018 view post
            • OMB02 has replied to a post on the message board

              In January my PSA had started to climb each month. After 11 months of being on Zytiga, it was apparently losing its effectiveness and my MO dropped it for my in April. January my PSA was .8, Feb. was 1.3, Apr. was 3.6,...June was 19.9. Prior to my June lab I had tried IP6...taking 7 scoops in the morning and 7 in the evening in an attempt to slow the rise, but it did not seem to help. I had given up on the IP6 but ...

              July 30, 2018 view post
              • OMB02 has replied to a post on the message board

                With a 400 PSA I would find a very good Urologist and immediately go to him/her to be checked out.

                July 20, 2018 view post
                • OMB02 has replied to a post on the message board

                  Thank you Gene for the good info about radium 223. Greatly appreciated! Take Care, Monty

                  June 18, 2018 view post
                  Loading...
                  Load more activity
                  Loading more activity

                  About OMB02

                  Patient, Survivor
                  Prostate Cancer
                  Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Recipes, Support, Conventional Treatments, Hormone Therapy, Supplements

                  Diagnosed with stage 4 prostate cancer.

                  Conventional: Past was degarelix, 4 rounds of chemo (docetaxel), Provenge, Zytiga (w Prednisone), Radium 223 (Xofigo).

                  Current: Lupron.
                  Trial: Starting on Nov. 6, 2018 the following trial at MD Anderson : A Phase 1b-2 Study of Niraparib Combination Therapies for the Treatment of Metastatic Castration-Resistant Prostate Cancer
                  Treatment agents: JNJ-63723283 and Niraparib

                  Complementary diet & nutrition:
                  No meat except wild salmon. Cannabis oil (not 90 day protocol), tumeric, ginger root, chili peppers with veggies, IP6, zymactive, Curamed, Genacol, 3 grams of Vit C and lysine daily plus more.

                  We care about your feedback. Let us know how we can improve your CancerCompass experience.