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Olliegen's Recent CancerCompass Activity

  • Olliegen has replied to a post on the message board

    Awesome job working on your Degree!!

    September 09, 2015 view post
    • Olliegen has replied to a post on the message board

      Maybe someday they will find something. I hope they do!

      August 14, 2015 view post
      • Olliegen has created a new message board discussion

        Is it normal to have temodar every 28 days for five treatments only? (first one)

        August 11, 2015 view discussion
        • Olliegen has replied to a post on the message board

          No info? :(

          August 06, 2015 view post
          • Olliegen has replied to a post on the message board

            I live in Australia now (Canadian used to live in Canada and my mom had a tumour and now I have a  Oligodendrogiloma II.) so it is all covered and Temodar is covered in canada as far as I am aware like most drugs. I wish they were in the USA as well. I hope that Canada is able to help you somehow!

            August 04, 2015 view post
            • Olliegen has replied to a post on the message board

              I was diagnosed with grade II Oligodendrogiloma with the good deletion genes. I then had surgery and they removed more than 90% of it. Now I'm on Temodar for 5 days every 28 days for 5 sessions. It took me about 2 months to recover and go back to that work after surgery. I have 2 very young kids as well... one is 3 one is 7.

              August 04, 2015 view post
              • Olliegen has created a new message board discussion

                So in August 2014 I went to my doctor with neck pain back pain and headaches. She reccomended I see a "pain specialist". I went to the pain specialist and she asked about my family and about my mom who was rushed to the hospital after she had a night grand mal seziure. All I remember is that seziure and that she had chemo and also brain surgery and alot of cat scans and Mri scans. After telling the Specialist that sh...

                August 04, 2015 view discussion
                • Olliegen has replied to a post on the message board

                  Sorry I meant I have the co deletion!

                  July 28, 2015 view post
                  • Olliegen has replied to a post on the message board

                    I have 1p & 19q non-deletions grade 2 oligodendrogiloma with 80% having been removed. I am now on Temodar for 5 cycles. (1 5 day cycle every 28 days for 5 months.) I have had no side effects from temodar it's not that bad :) The other option is radiation which can really help if it's been reccomended. Out of all the tumours this is the (hate to say it) best one to have. I was diagnosed almost one year a...

                    July 28, 2015 view post
                    • Olliegen has replied to a post on the message board

                      Wow thanks I'm glad you let people know. I'm In NSW and I do go to the private hospital and am health insurance covered but I can see it being a very unfair problem as well for those who are not covered privately :( .

                      June 25, 2015 view post
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