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PD_NEC's Recent CancerCompass Activity

  • PD_NEC has replied to a post on the message board

    Hi, sorry to intervene but I strongly feel that surgery would be the way to go. I know I am not a medical professional but I am a former caregiver. From my experience (father had PD-NEC with tumor in the rectum) chemo (especially etopocide) works brilliantly for the first 3/4 rounds but the fact of the matter is that chemo does NOT kill cancer stem cells. Also neuroendocrine carcinoma as we all know will come back e...

    June 08 at 12:49 PM view post
    • PD_NEC has replied to a post on the message board

      I am really sorry man. I feel the same way - sometimes numb, angry most of the time, depressed and helpless.

      May 14 at 6:14 AM view post
      • PD_NEC has replied to a post on the message board

        Thanks a lot for your response. We were able to contain the secretions with one more chemo cycle but it has now come to a point where his body cannot handle any more and just 2 days ago the secretions have restarted and that too on a constant basis. We are now awaiting the onco’s decision.

        May 02 at 5:46 PM view post
        • PD_NEC has replied to a post on the message board

          Seems like we are in the same boat. Not sure if you have read my earlier posts but my dad has the same cancer. He is deteriorating too. We are at a point now that we cannot give him any more chemo. And now he keeps passing fluid/stool/mucosa on a near constant basis. He cannot walk due to his weakness coupled with chemo induced neuropathy. This is just a nightmare situation and my sister and I are completely overw...

          May 02 at 5:39 PM view post
          • PD_NEC has replied to a post on the message board

            I keep hearing how rare high grade poorly differentiated neuroendocrine carcinoma is, but looking at every neuroendocrine cancer thread in this forums make me beleive that the incidences of this type of cancer has ballooned over the past few years. My poor dad now has severe neuropathy issues (numbness in the legs and palms) and cant even walk on his own. He uses the walker to walk a max of 30 steps. He was so acti...

            April 16 at 4:02 PM view post
            • PD_NEC has replied to a post on the message board

              Hopefully these 2 links will help: https://www.cancercompass.com/message-board/message/all,76228,9.htm?mid=655941#655941 https://www.cancercompass.com/message-board/message/all,26090,4.htm?mid=656434#656434

              April 16 at 3:52 PM view post
              • PD_NEC has replied to a post on the message board

                The word nanoknife rung a bell and I remembered a doc named Ray Schilling himself underwent the procedure successfully. Although his was a prostate cancer: Ray Schilling, MD There is a method called ablation cryotherapy, which Dr. Gary Onik from Ft. Lauderdale, FL invented. He is an interventional radiologist. He does a mapping biopsy under a general anesthetic where the whole prostate gland is biopsied every 5 m...

                April 16 at 3:19 PM view post
                • PD_NEC has created a new message board discussion

                  My 76 year old dad was diagnosed with high grade poorly differentiated neuroendocrine carcinoma of the rectum in May 2018 (slight metastasis to the liver). The tumor location was in such a spot and the fact that the cancer had horizontally pepnetrated through all the layers of the wall, that the doctors advised against surgery and decided to start chemo immediately. He finished his chemo regimen a month ago but now h...

                  March 29 at 2:29 PM view discussion
                  • PD_NEC has replied to a post on the message board

                    From what I know (limited knowledge) stem cell transplant is not without its set of risks. A second opinion would definitely be prudent. Age is definitely on his side. I wish you all the very best.

                    December 19 at 8:29 AM view post
                    • PD_NEC has replied to a post on the message board

                      As per the oncologist, the type of cancer that my dad has, results in excess hormones that causes this unusual number of BM's (not diarrhea). Anxiety issues can also be blamed partially.  After scouring the web, I found the following. Based on this it seems like Irinotecan (the drug they administered him in the last 2 cycles) is also to blame for the high number of BM's - http://www.bccancer.bc.ca/nursing-site...

                      November 28 at 4:10 PM view post
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                      About PD_NEC

                      Caregiver
                      Other Cancer, Rectal Cancer

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