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POOKIETRAIN's Recent CancerCompass Activity

  • POOKIETRAIN has replied to a post on the message board

    imminent.

    August 12, 2015 view post
    • POOKIETRAIN has replied to a post on the message board

      Since my PSA was only 2.4 at time of detection, DRE, and thus biopsy indicating 4 left cores of prostate positive for cancer at gleason 3+3, treatment was certainly imminint. No synptoms of cancer at this time. Opted for RP, surgery within 3 months and declared NO-MO clean margins, although slight perineural invasion. PSA after RP was 0.003. Lasted for about 6 years when PSA started to rise and showed recurrence. My ...

      August 12, 2015 view post
      • POOKIETRAIN has replied to a post on the message board

        I called Cancer tratments of America about 2 years ago and after 15 minutes of questioning by them, they asked for my insurance policy. As soon as I told them what I had, they immediately hung up and never heard from them again. So, in my opinion they are selective about who they choose.  Whether or not they offer any more benefit than other fine institutions cannot be answered by me. Personally I would go with ...

        July 15, 2015 view post
        • POOKIETRAIN has replied to a post on the message board

          MRI at this point sounds like the correct procedure. However, my PSA at the time of DRE was 2.4 at 60 years, and sure enough after biopsy one side of the prostate was cancerous with slight perineural invasion. 3 months later before the RP it was 2.2. Recurrence after 8 years showed up with a 0.8 PSA. Been battling ever since. With respect, Gene Myers is the most informative and knowledgable person I have found on thi...

          June 14, 2015 view post
          • POOKIETRAIN has created a new message board discussion

            Anyone????

            April 21, 2015 view discussion
            • POOKIETRAIN has replied to a post on the message board

              Understood! Thank you once again. 

              March 15, 2015 view post
              • POOKIETRAIN has replied to a post on the message board

                Thank you so much! I am on Jevtana now, 5th treatment next week and the benefit is that it does relieve pain, however my PSA has bounced around between 24/44. For now I am off Denosumab as my phosphorus level is low and taking oral meds for it doesn't help. Recent scans show no change from November, 2014.  A small spot on my cerebellum was revealed with recent MRI and will be handled tomorrow at Brigham in Bosto...

                March 11, 2015 view post
                • POOKIETRAIN has created a new message board discussion

                  When Zytiga and prednisone fail and subsequent other forms of chemo are taken and fail, can Zytiga be taken again, or is it a one shot deal?

                  March 08, 2015 view discussion
                  • POOKIETRAIN has replied to a post on the message board

                    I had very good luck with Zytiga and prednisone for about 2&1/2 years, however after that failure it was on to Xtandi for 5 months and that didn't work too well. Now I am on Jevtana, 2nd round and it is miserable in addition to not being very helpful. Next will probably be Xofigo. If you can get on Zytiga and prednisone it might be the best choice at this stage. The benefits one gets from treatments only diminish...

                    January 06, 2015 view post
                    • POOKIETRAIN has created a new message board discussion

                      On chemo, second round of Jevtana and PSA goes from 24 to 46 in three weeks. I've had all the other treatments, Zytiga, radiation etc., and I suppose after this really fails it'll be Xofigo and then what???? This treatment has depleted most of the hip and back pain as a plus, but the PSA rise is somewhat annoying. I hate this disease and I hate being subjected to it. Seems to me after Nixon's war on cancer in the 70'...

                      January 03, 2015 view discussion
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                      Prostate Cancer

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