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Peg541's Recent CancerCompass Activity

  • Peg541 has replied to a post on the message board

    I'm in the same position. High CGA but everything else normal. I did meet someone online who has Carcinoid with all normal lab tests. My endocrinologist is on vacation and I imagine the scans are expensive and you just can't order them willy nilly BUT I'd like an answer and I'd like to start feeling better. I've forgotten what better feels like. Anyone want to let me know how you're doing?

    November 06 at 4:00 PM view post
    • Peg541 has replied to a post on the message board

      I'm in the same position. I have symptoms and my CGA is elevated to 1300. Came down to 489 and all of the other tests are negative. I'm waiting for the endocrinologist to order a scan but he's in vacation. Imagine that? I'd like to know how your testing goes. I met someone who has Carcinoid and all of his labs are normal.

      November 06 at 3:54 PM view post
      • Peg541 has replied to a post on the message board

        I'm very new here but I'm sorry you have had no responses. Did you have a nuclear scan? My endocrinologist told me it takes three years to diagnose Carcinoid. I'm not wiling to wait that long with the way I feel. I'd like to know more about your testing. I'm in the same position you are.

        November 06 at 3:50 PM view post
        • Peg541 has created a new message board discussion

          Hello. In Early September 2018 my blood pressure suddenly dropped. I almost passed out. Subsequently my BP which is usually high and under treatment has stayed low. Many times a day as low as 90/55. I stopped my blood pressure pill that week. My heart pounds many times a day. Not fast. Just a strong heartbeat that keeps me up at night. I'm anxious and irritable off and on. I do flush but not dramatically. I have ...

          November 06 at 2:28 PM view discussion
          • Peg541 has changed their profile photo
            November 06 at 2:11 PM
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