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PositiveNote's Recent CancerCompass Activity

  • PositiveNote has created a new message board discussion

    When Tarceva stopped working for you – what, if any, other treatment are you taking?  I have Stage 4 NSCL cancer and have been on tarcvea for 7 months. Today I discovered the Tarceva is no longer as effective and the pleural fluid is beginning to build up again. Oncology has suggested trying Afatinib to see if it might keep the cancer in check.  Has anyone used Afatinib? I’m wondering what ...

    February 06, 2015 view discussion
    • PositiveNote has replied to a post on the message board

      Hi – I am sorry  to hear about your husband. I too have stage 4 Non Small Cell lung cancer subtype adenocarcinoma  diagnosed in April 2014.  I am 62 years of age and now 118 pounds.  Fortunately I am EGFR positive and started Traceva at 150 MG BUT that dose was too high for my body; FATIQUE, diarrhea (lost 8 pounds in 2 weeks), rashes head to toe, cracked  bleeding skin, dry eyes with s...

      January 22, 2015 view post
      • PositiveNote has replied to a post on the message board

        Hi Kelly,   I have not heard of this ‘pulsed Tarceva ‘ treatment – have you checked out the Tarceva web site?  They have a support contact feature that may help address your treatment options.   Has your Oncologist used this treatment with other Tarceva patients?    I to have stage 4 NSCLC  and at 124 pounds the recommended daily dose of 150 mg was too strong for ...

        December 20, 2014 view post
        • PositiveNote has replied to a post on the message board

          Praise God! Yes, keep your focus on Jesus and His promises. He is with us each and every day holding our hands as we walk this challenging journey. Only He can fill your days with peace and joy. The Lord's prayer is a powerful prayer - you can not loose. If He grants a mircle you are healed here on earth, if a mircle is not His will for you, you will be with Him in Heaven

          November 27, 2014 view post
          • PositiveNote has replied to a post on the message board

            Hi, I am sorry  to hear about your lung cancer. I understand your shock at the diagnosis. I too had hip pain and a nagging cough. My doctor thought the hip pain was due to mild arthritis and the cough was allergies – that was in Feb 2014. In April 2014 my  breathing was so labored and I had chest pain that sent me to emergency.  An x-ray revealed fluid in the pleura around  my entire right l...

            November 26, 2014 view post
            • PositiveNote has replied to a post on the message board

              I have been on 75mg Tarceva for 5 months now;  the first  month at 150mg for 3 weeks BUT the side effects – diarrhea and rash in scalp, face, in nose and eyes did me in. I stopped for 5 weeks to rest my body. In July 2014 I started again at 75mg dose; cut the 150 pill in half. The rash and diarrhea returned but less intense.  I manage these side effects by staying  away from dairy, reducing...

              November 16, 2014 view post
              • PositiveNote has replied to a post on the message board

                Hi Donna Tarceva is not considered chemotherapy; it is a ‘targeted’ drug that works best if you have the right genetic markers. Many people I have communicated with have very minor side effects with Tarceva, others – like myself, have experienced stronger more intense side effects. It will be different for everyone. Tarceva is a daily dose that you take at home which is so convenient ...

                September 10, 2014 view post
                • PositiveNote has created a new message board discussion

                  Hi – I’m wondering if anyone taking Tarceva has lost their hair?  I have been told it is a remote chance with hair loss listed as a ‘not common’ side effect.  I’ve been on Tarceva now for 8 weeks and my hair is thinning very quickly. I’m experiencing a tender scalp and at times I can feel the hair falling out. I’m now looking for ...

                  August 10, 2014 view discussion
                  • PositiveNote has created a new message board discussion

                    In April 2014 I was diagnosed with Stage 4 NSCLC. It had metastasized to my lump nodes and pleural membranes around my lungs; I was functioning with only 1 and a quarter lung capacity. The only symptom I had was a persistent cough for about 3 months, then things changed quickly, I had trouble breathing and could hardly talk. I am 61 years of age, a nonsmoker, fair sensitive skinned and 124 pounds. A ...

                    July 02, 2014 view discussion
                    • PositiveNote has created a new message board discussion

                      In April 2014 I was diagnosed with Stage 4 NSCLC. It had metastasized to my lump nodes and pleural membranes around my lungs; I was functioning with only 1 and a quarter lung capacity. The only symptom I had was a persistent cough for about 3 months, then things changed quickly, I had trouble breathing and could hardly talk. I am 61 years of age, a nonsmoker, fair sensitive skinned and 124 pounds. A ...

                      July 02, 2014 view discussion
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