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Qz889l's Recent CancerCompass Activity

  • Qz889l has replied to a post on the message board

    Ask your PCP for a referral to a urologist or nephrologist.  You don't ask your accountant about car problems.

    Thursday at 3:38 PM view post
    • Qz889l has replied to a post on the message board

      As with any TKI, if they work for you, you will notice changes about a week after starting. If you have night sweats due to cancer, they go away quickly.  Visible tumors on the body will become smaller within weeks. Usually the most pronounced shrinkage occurs within the first three months. After that it is more gradual.

      May 07 at 3:00 PM view post
      • Qz889l has replied to a post on the message board

        CBD oil inhibits metabolization of the CYP3A4 enzyme of the liver.  Sutent is metabolized by this same enzyme.  By inhibiting this enzyme, you're increasing the plasma concentration of sutent and it's metabolite.  Hence, you're being exposed to more sutent in your blood, upto 50% more.  Good for fighting cancer, bad for toxicity.

        May 07 at 2:53 PM view post
        • Qz889l has replied to a post on the message board

          I had no side effects.  Nivo was a cake-walk.  Little tiredness, but that's it.  Easiest of all treatments. 

          March 22 at 2:02 AM view post
          • Qz889l has replied to a post on the message board

            You may want to look into RCC - kidney cancer.  Some of the symptoms you describe fit the profile.  Most often it doesn't present any symptoms, and is usually found by accident.  When symptoms do present themselves, it is usually at stage 4.  My RCC was found exactly this way.... By accident.

            February 22 at 1:02 AM view post
            • Qz889l has replied to a post on the message board

              No experience, but there can be long term issues. You should inquire about hippocampal sparing WBR treatment. You must have many mets, otherwise they should have suggested Gamma Knife (another technique). Here's some info about protecting yourself: https://ro-journal.biomedcentral.com/articles/10.1186/1748-717X-9-139

              January 20 at 3:28 AM view post
              • Qz889l has replied to a post on the message board

                You should consult with an Oncologist.  Specifically one who has expertise in RCC. It's not always necessary to remove the kidney.   Your pregnancy complicates your treatment options. Many people have much larger tumors than you have before having a radical nephrectomy.  So you do have time to continue with the pregnancy.  I doubt that existing medications for RCC can be administered while p...

                January 17 at 4:19 PM view post
                • Qz889l has replied to a post on the message board

                  Unless your husband has an underlying issue with his kidney, sutent rarely causes kidney damage.  Sutent is metabolized in the liver.  RCC is a very rare cancer (3% of all cancers) and should be treated by an RCC specialist.  The nuances and treatments for this type of cancer are more complex than the "standard" types of cancer.  Most Oncologists only have a cursory knowledge of how to approach t...

                  January 17 at 4:03 PM view post
                  • Qz889l has replied to a post on the message board

                    Beware that CBD oil is a CYP3A4 inhibitor.  60% of ALL medications are metabolized via CYP3A4 enzyme.  This means that there's a very good likelihood that CBD oil will reduce the efficacy of a drug you are taking. CBD oil, sans THC, is good for alleviating pain and nausea, caused by treatment drugs.

                    January 17 at 3:43 PM view post
                    • Qz889l has replied to a post on the message board

                      If by "exposure"you're referring to xray exposure (CT scan) there is none with MRI, as it uses magnetic fields to produce the image.

                      December 21 at 1:37 AM view post
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