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Rebeccalub's Recent CancerCompass Activity

  • Rebeccalub has replied to a post on the message board

    Audrey, it is my understanding that if your blood counts are rising, that you are still having ET signs.  Myelofibrosis is marked by decreasing counts.  Why do you think you are morphing into Myelofibrosis?

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    • Rebeccalub has replied to a post on the message board

      Jen,    I have had it many times.  The first time in my doctor's office with just a local anesthetic.  No kidding, it was horrific.  I would never recommend that situation.  I do know others who have had only local and it was fine.  With sedation, (Propofal, Fentanyl, Versed) you will have no memory of the procedure. It is the only way to go.  If you had Myelofibrosis, your pl...

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      • Rebeccalub has replied to a post on the message board

        Jen, You should definitely get a BMT to be used as a baseline, not to ensure a dx. I would suggest being sedated, it doesn't take long and the recovery is quick. Do u have any symptoms?

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        • Rebeccalub has replied to a post on the message board

          So strange you mentioned being a dental assistant as I was a dental assistant right out of high school as well.  Yes, took x-rays by stepping out of the room and handled mercury spills and vapors for sure.  I have not found any studies trying to find a link to a cause but I was definitely shocked when you mentioned we had the same profession.  I am a nurse now, maybe I should do a study myself since no...

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          • Rebeccalub has replied to a post on the message board

            Most patients get a bone marrow biopsy as a baseline, have you had that done?  I am not aware of chronic infections as being associated with ET.  What are your blood counts?  This is a chronic blood cancer.  There are many support groups around the country, if you post your area, I can send along info on a support group that may be in your area....

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            About Rebeccalub

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            Other Cancer

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