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SAMEOSAMEO's Recent CancerCompass Activity

  • SAMEOSAMEO has replied to a post on the message board

    Hi: I have found what I think is a very caring and knowledgable hematologist. He found that my white cell levels are too high along with the red cells and he has put me on oxygen for the next 3 months. If my white cells level out he will then do the bone marrow biopsy. While I'm not looking forward to the biopsy I am happy we are on to a plan. I feel like I'm moving forward anyway. Thank you for your prayers and I s...

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    • SAMEOSAMEO has replied to a post on the message board

      Thank you so much for the help. I was hoping I wasn't just being a hypochondriac when I got a little upset that he thought it was no big deal. I thought exactly the same thing. What the hell is he waiting for? And he didn't even offer any suggestions as to what I should be doing in the meantime, which I thought was a little scarey. He's a hematologist but I wasn't comfortable with him from the get go. My primary refe...

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      • SAMEOSAMEO has replied to a post on the message board

        Hi: I had my first consult yesterday for my diagnosis with PV. The doc told me that if I were to have a Phlebotomy it would kill me because my white cell levels are high also. He is going streight to the bone marrow biopsy. It's scheduled for the 21st of Nov. Like you I cannot walk from one room to the next without panting and having to sit before I can talk to anyone. I can't even do my yoga, which I miss. I have a...

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        • SAMEOSAMEO has replied to a post on the message board

          Hi: I have recently been diagnosed with PV and like you my head is spinning with the diagnosis and trying to find out more about it. I liked reading what everyone said in here. I didnt realize you had to watch what you ate also. My first Dr. Appt for this is on Wed the 22nd of Aug and would like to go in armed to the teeth with questions. Does anyone have any good ones to ask. I have no idea what to ask!  Than...

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