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SUEJEP's Recent CancerCompass Activity

  • SUEJEP has created a new message board discussion

    Hello All!  I joined Cancercompass about 11 years ago when I got diagnosed with malignant brain tumor.  Well, back again although this time is stage 2 invasive intraductile breast cancer.  Im hoping to start treatment this week.  Thank You All in advance as Im glad to be amongst some of the greatest people.  

    November 25, 2018 view discussion
    • SUEJEP has replied to a post on the message board

      . Hi Sarah! No, Ive not had any other drugs. I had a resection in 07, then radiation and then the Temodar. But my oglodendroglioma was not as severe as your GBM, mine was only a, well, depended who you asked. U of Miami said it was "nearly" a 3, but Johns Hopkins said, no, closer to a 2.  In the end, U of M graded it a 2.5! Go figure! Well, I guess stories such as mine shows that yeah, we can stick ar...

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      • SUEJEP has replied to a post on the message board

        Hi Cris, Im doing 250mg for 5 days per month.   I havent had any bloodwork done in a long time because the cost of it is astronomical for me.  Im thinking Im going to stop this anyway. Thanks! Sue

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        • SUEJEP has replied to a post on the message board

          A Big Thank You to all who replied!  It looks like I had better think about stopping the Temodar.  Someone asked how much Ive beed prescribed, the oncologist has had me on a  250mg per day for 5 days once a month regime.  Im just today finishing up January's tx. No only does it look like I better stop, I think I really should get a second opinion on my situation from another oncologist. Can anyo...

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          • SUEJEP has replied to a post on the message board

            Ilive in lake worth FL. My ogliogdendroglioma, resected in 07, I had radiation and I had 6 weeks of temodar now Im doing it one week a month since then.  I just wonder IF I should keep doing it.  I blew up 50 lbs. ( I got off 20 finally!) But the package insert tells you there is the danger of "other cancers" but it tells you not what they are.  Jeez Louise, I dont want more, and recentl...

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            • SUEJEP has created a new message board discussion

              Happy New Years Everyone! And I Wish you all a Healthy one also.  Have any of you been on Temodar for more than 4 years?  How are you handling it?  Im going on year 4 and am wondering if its worth it. Sue

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              • SUEJEP has created a new message board discussion

                Ive been  doing Temodar 250mg 5 days a month going on 4 years now.  I thought I was going to be done with it this September, but I see that the Rx was just renewed for 6 more refills!! Ow!! Im finding that Im blowing up like a balloon, weight is packing on like crazy, Im 5'7" and keep calories well around 1500 per day, but I just keep gaining weight!!   I see that weight gain Is a side effect of ...

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                About SUEJEP

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                Brain Cancer

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