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Sdurnell's Recent CancerCompass Activity

  • Sdurnell has replied to a post on the message board

    I am not sure what kind of problem you are having, but I suggest that you talk to your dentist, oral surgeon, or denturist about your problem.  I didn't get my dentures for five months after I had my teeth pulled--I had to wait all through radiation and then to heal from that.  And by then I couldn't swallow anything, so I was using my feeding tube for everything.  So my experience will probably not be...

    January 16 at 7:35 AM view post
    • Sdurnell has replied to a post on the message board

      Raken, I don't know a lot about sinus cancer, but it sounds like you could have any number of things.  Nasal polyps come to mind, as they can be nasty.  Breathing problems are not usually a sign of head and neck cancer, but your ENT visit should clear some things up for you.  Sorry it's such a wait, but that seems to be typical. I assume that you are on sosmething for the sinusitis, and if you see an...

      January 07 at 7:24 AM view post
      • Sdurnell has replied to a post on the message board

        MItch, Sorry for the wait for surgery, but I think it's fairly typical. I am glad you are scheduled, because I think that is the only way to get a decent diagnosis. I had a CT in September 2010, a biopsy (which was inconclusive) in October, and surgery to remove all the lymph nodes on one side (20+, called a modified radical neck dissection) in November, when I finally got the cancer diagnosis.  So mine w...

        January 07 at 7:18 AM view post
        • Sdurnell has replied to a post on the message board

          I had surgery (modified radical neck dissection), no chemo and only 25 radiation sessions.  After 2 years NED I was declared cured by my ENT and after 5 by my more conservative radiation oncologist.   Treatment varies a lot by presentation of the cancer, its staging (which has undergone quite a big recent change), its HPV status, and sometimes patients are even given choices.  For example, I was ...

          January 06 at 5:12 AM view post
          • Sdurnell has replied to a post on the message board

            Mitch, No apology necessary--we've seen much longer. To my way of thinking several things about your case point away from a cancer diagnosis.  One is that the tonsils are about the same size.  And tonsil cancer almost always shows up in only one tonsil.  Also symptoms that lessen throughout the day don't sound like cancer.  If I were you I'd take heart from what you've learned already. A biopsy...

            January 06 at 5:03 AM view post
            • Sdurnell has replied to a post on the message board

              Get an appointment with an ENT and ask about both lumps.  I'm not sure how extensive you CT scan might have been, but what you are feeling now sounds like something new. For what it's worth, it's rare to have lymph nodes involved on both sides of the neck with head and neck cancer.  But get it seen to to ease your mind. Susan

              December 21 at 6:04 AM view post
              • Sdurnell has replied to a post on the message board

                Phoenix, First, congratulations on your breast cancer survival!  You will likely be scoped on Monday to have a look at your throat and upper esophagus.  The ENT will put a small tube up one nostril and thread it down to get a look.  There might be some kind of biopsy as well, or an order for one or a CT scan.  Your "asthma" may be the result of silent aspiration (aspiration with no symptoms), w...

                December 21 at 5:59 AM view post
                • Sdurnell has replied to a post on the message board

                  Yes, HPV+.  Almost everyone on these sites is these days, as it seems to be a mild epidemic (oxymoron?).  But he had a recurrence pretty early, and that is a bad sign.  If you go two years without a recurrence then you are pretty much home free. Susan

                  December 06 at 6:40 AM view post
                  • Sdurnell has replied to a post on the message board

                    I'd say that many people could be more put off by the thought that you might have a recurrence than anything, and they don't want to deal with that. If it were me (and it's not, as I am long married) I'd wait until a relationship was looking pretty good to talk about HPV, and then only with printed evidence from a reliable source that the partner was not really at any more risk from you than from someone else. ...

                    December 04 at 11:52 PM view post
                    • Sdurnell has replied to a post on the message board

                      Arman, Thank you for notifying us.  I feel so bad for Kevin, as he was optimistic at first but then had so many problems.  His cancer was particularly virulent. Susan

                      December 04 at 11:47 PM view post
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                      About Sdurnell

                      Patient
                      Head and Neck Cancer, Squamous Cell Cancer, Throat Cancer
                      Cancer Nutrition, Radiation

                      I have squamous cell cancer. A neck dissection showed one node positive (<3 cm.) and encapsulated. No primary has been found. I have no risk factors for this condition. Day after tomorrow I go in to have all my teeth pulled (my teeth are OK, but gums not so great). I will need five weeks of radiation, starting as soon as my mouth heals, and have been told not to lose any weight, even though I'm about 15 # overweight. Everyone is hoping I can avoid a feeding tube, but I'm not confident I can eat enough, especially without any teeth. I'd really like advice and support for this.

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