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Sdurnell's Recent CancerCompass Activity

  • Sdurnell has replied to a post on the message board

    I did not have chemo at all, but this sounds kind of weird to me.  I know that some folks get three doses of chemo and others get it weekly, and that some get the platinum-based kind while others get something less likely to damage hearing. But this might make me want to get a second opinion.  If it were me I'd like a little more of a personal touch. Best of luck to you. Susan

    October 18 at 5:22 AM view post
    • Sdurnell has replied to a post on the message board

      Lauren, With your symptoms, history, and age I'd say it's more likely you have some type of infection and that the right antibiotics will fix it.  You might have tonsilitis, but I don't wish a tonsilectomy on anyone, especially not a new mother.  It's a painful experience.  So I hope it's not that. You should have some answers now, or at least an appointment to get some.   As you say, we c...

      October 15 at 4:52 AM view post
      • Sdurnell has replied to a post on the message board

        John,  Your residual issues sound a lot like mine.  I'm nearly 8 years out, and my saliva is better but my voice is worse than at the 2-year mark.  The only difference is that I needed to gain back some of the 36# I lost, but that was accomplished several years ago. Our HPV-related cancer has nothing to do with whether or not we might be able to transmit the virus, let alone whether a partner might d...

        October 14 at 5:33 AM view post
        • Sdurnell has replied to a post on the message board

          Lauren, It sounds more like you have an infection of some sort, but as you say we cannot diagnose.  I don't believe hairy tongue is a symptom of cancer.  It's good you have an ENT appointment because that is the person who can get to the bottom of what's bothering you.  You likely need antibiotics. And the worst case is that it is head and neck cancer, but since you are of childbearing age yours like...

          October 14 at 5:23 AM view post
          • Sdurnell has commented on a news story

            These HPV-related cancers are no picnic.  Treatment for my throat cancer was quite brutal.  No one would want to see a child go through that, or any of the other cancers and their treatments. This is a prevention, even better than a cure.  The vaccination rumors and scares are going to kill people if they are taken seriously. Susan

            October 11 at 5:59 PM view news story
            • Sdurnell has replied to a post on the message board

              My experience is not the same, but has some similarities.  My initial biopsy for a neck lump was not conclusive, so I had to have surgery to get a H&N SCC diagnosis.  And they never found my primary at all.  So my take from that is that PET scans, as good as they are, can miss things, especially small things, and that biopsies are not always the most definitive answer. Sorry for your worries. Sus...

              October 11 at 5:56 PM view post
              • Sdurnell has replied to a post on the message board

                I'm here to second what Punky says.  You need to visit your doctor soon and explain all that's going on.  Depending on what that doctor finds, you may also need to see an ENT again--things can happen over 6 or 18 months.   And if you have not stopped smoking do so now!  Ask your doctor for help if you need it.  There are a number of quit smoking methods, and one will work for you. ...

                October 09 at 11:09 PM view post
                • Sdurnell has replied to a post on the message board

                  If you are not satisfied with the medical opinions you have had so far, I suggest that you consult an ENT at a major medical center to get another opinion.  Your presentation does not sound like cancer to me, but I'm not a medical professional so my opinion doesn't count at all. You need some answers, so try to get to a really good center for an exam.  You need to get some satisfactory information. All th...

                  October 07 at 5:02 AM view post
                  • Sdurnell has replied to a post on the message board

                    That's the way to think! Susan

                    October 07 at 4:52 AM view post
                    • Sdurnell has replied to a post on the message board

                      Princess makes a good point.  We should all continue to check our thyroid levels after radiation, because we all will eventually become hypothyroid, and over time we will need more and more hormone to replace what we can't make ourselves.   Being hypothyroid can cause many symptoms, like weight gain and fatigue, that are simple to reverse with cheap meds. Susan

                      October 07 at 4:50 AM view post
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                      About Sdurnell

                      Patient
                      Head and Neck Cancer, Squamous Cell Cancer, Throat Cancer
                      Cancer Nutrition, Radiation

                      I have squamous cell cancer. A neck dissection showed one node positive (<3 cm.) and encapsulated. No primary has been found. I have no risk factors for this condition. Day after tomorrow I go in to have all my teeth pulled (my teeth are OK, but gums not so great). I will need five weeks of radiation, starting as soon as my mouth heals, and have been told not to lose any weight, even though I'm about 15 # overweight. Everyone is hoping I can avoid a feeding tube, but I'm not confident I can eat enough, especially without any teeth. I'd really like advice and support for this.

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