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Susieq32's Recent CancerCompass Activity

  • Susieq32 has commented on a news story

    Incurable Cancers might benefit from alternative therapies if only to optimise ones general health in order to best cope with the end game. Well I’m giving it a go for sure !

    November 05, 2018 view news story
    • Susieq32 has replied to a post on the message board

      I’ll write with gaps between sentences as the format here doesn’t allow paragraphs so the text looks like one long, hard to read back sentence ! It goes against my grammar grain. So Holistic stuff fab I’m in ! Turmeric Root as good as Curcumim or not ? DMSO I haven’t heard of,what is it ? The anti inflammatory and Vit C IV infusión I really like the idea but I can’t find a practitioner here in

      August 11, 2018 view post
      • Susieq32 has replied to a post on the message board

        Oh thank you so much for replying ! I’m delighted to talk to someone who understand yet I’m so sorry you’re having to go through this ?? How has your husband changed so much ! Do you blame it on all the Meds ? Let’s face it he’s putting toxins into his body he’ll suffer the side effects; some I think are tolerable,other are not ! Do you mostly blame it on the Steroids ? Dexamethasone is that the one - hmm awful !...

        July 28, 2018 view post
        • Susieq32 has replied to a post on the message board

          Hello I too have a GBM wild type but sadly there’s not a Surgeon alive will operate “it would take too much of you away” they say. I’m at the beginning of my grade 4 journey so a lot is new to me but for what it’s worth I don’t think the steroids would be causing your husbands leg muscle atrophy. What about a static exercise bike at home, weights on his ankles lifting and lowering just at knee height from a sitting...

          July 27, 2018 view post
          • Susieq32 has created a new message board discussion

            I’d love to hear from someone in a similar situation and their reasons for treatment choices. Has anyone declined Radio or Chemo therapy for a GBM ? I prefer to stay as I am which is relatively symptom free so far. My disease has not behaved in the normal way or with the normal progression so I have always presented as an anomaly! My tumours were thought to possibly be Grade 2 six years ago but even then I had no d...

            July 27, 2018 view discussion
            • Susieq32 has replied to a post on the message board

              I will indeed try it thank you ??

              July 24, 2018 view post
              • Susieq32 has replied to a post on the message board

                Thank you so much for the book Refs. I’ve just taken a screen shot because there’s no way I’ll remember the details ...... but that’s par for my course these days ! I won’t be able to have surgery either. I realise I’ve now even more research to do with all these drugs I’m reading about on this site ! I’ve already done 6 weeks of searching and finding and I’m exhausted with it ! All the best Susieq32

                July 23, 2018 view post
                • Susieq32 has replied to a post on the message board

                  Hi Donnaruth Firstly, your survival has been remarkable and I’m beyond happy for any of the fellow GBM suffers here who can manage to beat the odds - I’m determined to be one of them ! I’m at the start of the journey. A few weeks ago I was told I’d a Grade 3 anaplastic astrocytoma RF lobe along with Gliomatosis Cerebri for all the other smaller scattered tumours. (Btw the WHO no longer recognises GC as a term to...

                  July 23, 2018 view post
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                  About Susieq32

                  Brain Cancer
                  Acupuncture, Alternative Treatments, Biotherapy, Chemotherapy

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