Loading...

TOMA76's Recent CancerCompass Activity

  • TOMA76 has created a new message board discussion

    Hello All,               Sad to report but my situation is steadily getting worse. I recently did clinical a clinical trial with two experimental drugs...it failed. Then went on abraxane and keytruda and apparently the abraxane is failing. My ca 19 9 has risen to 60000 and my last scan showed that the  two lesions on my liver grew another 15%.. My onchologist has put me back o...

    December 16, 2015 view discussion
    • TOMA76 has replied to a post on the message board

      Trudie            Thanks for the good wishes. My treatments are every three weeks as well. Please keep me updated on how its working for him. I will do the same. Doctors seem pretty confident that this will help.

      October 28, 2015 view post
      • TOMA76 has replied to a post on the message board

        Hi Adri,             How are you doing and how is your husband holding up?? Unfortunately the trial I was on failed. Pretty much all it succeeded in doing was giving pain fatigue and nausea. Not everything works for everyone so I am ok with that. My numbers have been going up more and the scan I did yesterday showed another small spot on my liver and some slight growth in the previous t...

        October 28, 2015 view post
        • TOMA76 has created a new message board discussion

          Hi All               In two days I will arrive at the two year mark since my the most life changing day of my life. On 9/29/13 I was diagnosed with Stage IV pancreatic cancer. As I have posted in the past in the last two years I have done 12 rounds of Folfirinox  the Whipple Surgery,stereostatic radiation, 12 rounds of gemzar and most recently xeloda and oxylplatin. All was go...

          September 27, 2015 view discussion
          • TOMA76 has replied to a post on the message board

            Bill,          I am currently on xelox. I have done 6 treatments so far. I have the oxylplatin put in through my port every 3 weeks and I take 3000mg of xeloda via pill for 14 days after. So far so good. The side affects that are the worst for me are the fatigue that usually last about a week after treatment.  I have had one lymph node that they think might have cancer cells that they a...

            July 31, 2015 view post
            • TOMA76 has replied to a post on the message board

              Sue,          I think it depends on the doctors. In my case the surgery and radiation were decided by the tumor board at IU. To recap I was diagnosed stage IV September 29 2013. I had a 4cm tumor on my pancreas and 2 2 cm tumors on my liver. I had 12 rounds of folfirinox ...after the 12 rounds the tumor on my pancreas disapeared and  one of the tumors on my liver shrunk to almost nothin...

              July 30, 2015 view post
              • TOMA76 has created a new message board discussion

                Hello everyone                      I havent posted in a while and want to give an update of where I am at. 22 months post diagnosis from stage iv adenocarcinoma. Mets to liver. I did 12 rounds of folfirinox , the whipple, stereostatic radiation, 12 rounds of gemzar and am now working on my sixth round of xelox. Doing pretty good. Still working full time. Still ...

                July 25, 2015 view discussion
                • TOMA76 has replied to a post on the message board

                  phman           I have never responded to any of your posts but have followed them since I was diagnosed. I wanted to let you know how amazing her story is how glad I am that you shared it. I did have a question though. What type of P.C. was she diagnosed with?? I was diagnosed with adenocarcinoma and like her had chemo and then the whipple. My last scan showed that I might have a lymph node...

                  May 13, 2015 view post
                  • TOMA76 has created a new message board discussion

                    Hi all           Had a question concerning the next step in my treatment and I wonderee if anyone had any input. To quickly backtrack....I completed my last Gemzar treatment about a month ago and had a ct and blood work last week after being off treatment for 5 weeks. Ct came back pretty good liver and pancreas are both 100% clean but there was one lymph node that looked enlarged in the scan...

                    April 09, 2015 view discussion
                    • TOMA76 has replied to a post on the message board

                      Mike-Ann             I am sorry to hear about the bad scan results. I cannot believe that the doctor is not trying.....that is ridiculous.  I would be getting a new onchologist right away....the doctor should be as interested in helping him fight as Mike is in fighting.              Preliminary on my scan looks pretty good. Doctor said liver is d...

                      April 03, 2015 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About TOMA76

                      Patient
                      Pancreatic Cancer
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Insurance, Support, Surgery

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.