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Tandj1119's Recent CancerCompass Activity

  • Tandj1119 has replied to a post on the message board

    Hi Steve, I am 62 years old and have had Hurthle cell cancer for 15 years. Let me begin by telling you the hurtle cell is a very rare type of thyroid cancer, you are the first person I have connected with that shares my diagnosis. The treatment is often different because it does not always respond to the conventional treatments. Which may be why you were not on thyrogen. My doctor told me in the the beginning that ...

    March 27, 2016 view post
    • Tandj1119 has replied to a post on the message board

      You are so right! It's your body, sometimes I think others forget that.

      March 27, 2016 view post
      • Tandj1119 has replied to a post on the message board

        I had RAI twice many years ago and at that time they would not discharge me until the radioactive level has come down to a safe level. They literally scanned my body with a Geiger Counter. My husband slept in another room for about a week.

        March 27, 2016 view post
        • Tandj1119 has created a new message board discussion

          Is anyone taking one of the targeted therapies like Suntent?

          March 26, 2016 view discussion
          • Tandj1119 has replied to a post on the message board

            I cannot imagine how you are coping with fatigue while having little ones around. Although I know when my grand kids are around it helps me so much. It sounds like you are pushing thru, good for you!

            March 26, 2016 view post
            • Tandj1119 has replied to a post on the message board

              I agree with wanting to be sure and guided biopsy is a very good way of determining if it's needed but you should definitly have the thyroidectomy. You really should read up on hypothyroidism because the fatigue related to that can be hard. The surgeon forgot to tell me that I could feel progressively worse weeks after the surgery than I did the day of(not the typical responce to recovering from surgery. You may hav...

              March 26, 2016 view post
              • Tandj1119 has replied to a post on the message board

                So far my hemoglobin has been normal and I have never really discussed treatment options for fatigue, although I have told her many times about the fatigue. If it persist after all the wellness measures I have been working on I will definitely ask. It's not that I don't expect to have side effects with chemo, I just need to be able live with them especially if it means taking the drug indefinitely. Anyway, I know P...

                March 26, 2016 view post
                • Tandj1119 has replied to a post on the message board

                  Thanks for your encouraging words. I too feel amazed at times at my history. When I was diagnosed 15 years ago there was no medical treatment with exception of surgery of which I had five of in the first two years. I learned early on, since there was no way to eradicate the cancer, I would have live with it as if I was living with a chronic illness in order to cope. I am so glad to have the option for treatment ev...

                  March 26, 2016 view post
                  • Tandj1119 has created a new message board discussion

                    I was diagnosed with hurtle thyroid cancer for in 2001 that started out as stage four because of the tumor size. The cancer metastasized to both of my lungs in 2003 and , most recently, to my left kidney. I have been on Sunitinib for 16 months with a 600 pt. decrease in my tumor marker(thyroglobulin) however the fatigue is incredible and I am beginning to wonder if I can continue. Is anyone out there on ...

                    March 25, 2016 view discussion
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