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Tjz6845's Message Board Messages

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Windwalker, thanks for the info.
I am interested in this treatment and need to know in how easy/difficult was it to get reasonable low cost accommodations in/nearby Loma Linda.
I agree: the doctors are all over the place. Mostly all ending up reccommending their specialty. Unfortunately there is no good consolidation and dissemination of all the research going on. There are a lots of things in clinical and preclinical trial phase that looks good and could be taken advantage of now. (I can't wait ten to twenty years for every detail to be worked out. If treatments have been reasonably tested for safety and have shown some postive results, then I am willing to check them out.) I particularly reccommend the PubMed database at NIH: http://www.ncbi.nlm.nih.gov/entrez Also J of Urology and Life Extension Foundation: www.LEF.org (you can overlook their commercial aspects--many good sources given in their articles). You mentioned color doppler ultrasound. Where did you get this done? I have not been able to get anyone to give me a test. They are each so convinced that they don't need any more info. Also has anyone been able to to get a ploidy test or a p53 or other cell/dna typing test done? I have to admit I have been totally shocked by the refusal to get better clarity. It seems to be they are giving me the legalistic "I don't want to be sued..." safe answer. Which is good for them, but for me I am being advised to have major, radical treatment for something that may not amount to much and that would not have been detected had I not insisted on a biopsy in June 2004 and again in July 2005 due to my BPH and urinary problems. The prevailing dogma being not to test without signs. (Age 60; PSA 3.5 with dutasteride; Gl=4,3; less than than one mm on one of ten cores. Not visible on regular ultrasound, CAT scan, or MRI--not ordered by a urologist!) )
He might try Sarna lotion or Noxzema cream. For a different condition I find these products (with a combination of menthol and camphor at relatively high conc.) are the only ones that seem to help. They work best if applied right after showering and again once or twice a day before the itching starts. I also apply lanacane spray directly when itching. I don't know if these drugs affects his thyroid hormones or not. But he might get those checked. If those are low then that will cause itching. Important: T3 and T4 must be measured directly, not just TSH. And T3 plus T4 thearpy is better than just T4. Good luck, I know the agony!
Wendy D Thank you for your response. I am sorry for not responding sooner. I don't disagree at all with what you say. I too derive great satisfaction from pleasuring my wife. 'Ladies first, second, third, and so on..." but I still need to know what are the effects of the different treatments since this will in part determine which treatment I choose. Physic indirect pleasure is great, but it is still nice to feel the real thing even if minimal.
Well since I just got the diagnosis I was hoping to possibly forestall surgery at least until I am surer about my options-- but did not want to possibly complicate possible later surgery. My tumor is a small one, possibly quite small, therefore I want to explore less drastic treatments first.
My urolgist weren't very open to the idea of trying to reduce my prostate and/or tumor before surgery. A second one was slightly more open to lycopene and some of the other herbals. I can accept that radiation,cyro/hormonal might produce scarring,etc. But has anyone any information with respect to 1. aromatase inhibitors, 2. fosomax, 3. lycopene, 4. soy isoflavones, 5. other herbals or meds?
What is the quality of your sex after your procedure? Particularly I am interested not whether or not you have erections, but what happens to your sensations. Please note what your treatment was and how long ago.
Has anyone hear of removing just the tumor and not the whole prostate? When the tumor is small and no add'l ones show on scan, low PIN stats, etc., it seems like this would be a viable option. Are men's prostates being treated like women's breasts were 30 years ago: "Duh.. you don't really need this--we will just lop it off." (Yes, I know there always the chance something is missed...)
Get the biopsy!!! Ask for pain medication. Can be injected directly into prostate---feels similar to novacaine shot. Take tylenol beforehand. Not all urologists use pain medication. Find one that does. Ask them to wait 4-5 minutes before starting biopsy. I had one without painkiller and one with and they are a world apart. I had a 6 point biopsy a year ago that was negative. Just last week I got the results back from a 12 biopsy that found a smallish tumor. I wish I had known a year ago what I know now. Good studies show the more points the less chance of missingc a tumor. This is especially important if your prostate is significantly enlarged. A 6 point biopsy misses around 20-30% of tumors. About 30% of men with PSA's <=4 will have tumors. About 15% of men with PSA's of <=2 will tumors. (My psa's were 3.4-3.6 for years with finasteride and then dustasteride, 3.5 at present; 5.6-6 without the drugs.) (Some places are going to hypercoring with 24 points or more. In addition to being less likely to miss something, more points give a lots more information on size whcih can significantly affect treatment choices.)
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About Tjz6845

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Prostate Cancer

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