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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    If you had total thyroidectomy, your thyroglobulin should not be detectable.  Your TSH depends on what is your management protocol. 

    Tuesday at 2:36 AM view post
    • ToddlerFather has replied to a post on the message board

      While I like that I had genetic testing, I don't think that there is a need for everyone to do it. Being able to do it if it becomes clear that there is still something, like when Tg levels are still detectable, is a good middle ground IMHO. 

      January 11 at 3:23 AM view post
      • ToddlerFather has replied to a post on the message board

        Yes, the reduction of T4 intake makes the pituatary gland produce more TSH, trying to compensate.  The reason for supression was the detectable thyroglobulin. At that point it wasn't known that the tumor metastasized, but it was known there were residual cells, somewhere. So the management procedure was to increase T4 intake to supress TSH, and that proved to be right when the metastases were discovered.&n...

        January 10 at 10:36 PM view post
        • ToddlerFather has replied to a post on the message board

          A possible reason to lower the T4 intake is that your TSH is almost supressed. So, one thing to know is whether your TSH should be supressed or not... in my case, TSH needs to be supressed, so any deviation from that and my T4 intake has to change. I recently increased from 188 to 200 mcg to keep my TSH supressed.  And yes, they messed up by not measuring Thyroglobulin. It's a key tumor marker for those that we...

          January 09 at 4:05 AM view post
          • ToddlerFather has replied to a post on the message board

            +1 to doing Foundation One, but it can only be done if tumor is in reach of surgical sampling.  For me it was key in selecting which drug developments to follow. 

            January 08 at 3:00 AM view post
            • ToddlerFather has replied to a post on the message board

              Second opinion, ASAP. 

              January 08 at 2:56 AM view post
              • ToddlerFather has replied to a post on the message board

                It would be interesting to know from the original poster how his or her experiences have been, but it doesn't seem that medical science has any news on this particular mutation. 

                January 05 at 5:53 AM view post
                • ToddlerFather has replied to a post on the message board

                  Glad that you finally got the exam needed for your diagnosis.  Note that PET scan highlights anything taking too much sugar, but sometimes other issues like infections or cicatrizations also take a lot of sugar. Having said that, you are likely looking - and I'm guessing you already figured that out - at a primary pancreatic cancer with liver metastases from that primary pancreatic cancer. While there are other...

                  January 05 at 5:47 AM view post
                  • ToddlerFather has replied to a post on the message board

                    I meant to say good luck to you and her. 

                    January 02 at 10:42 AM view post
                    • ToddlerFather has replied to a post on the message board

                      First of all, talk to an oncologist. While the likely handling of the condition is going to be observation, the oncologist is the one that can properly come to that conclusion.  Next, go address the pshycological side. Slow growing cancers are not as challenging in the physical health side, but are hard to manage in the mental side. Choose your preference to deal with this side: psychiatrist, psychologist, prie...

                      January 02 at 10:35 AM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Tried adding alpha-lipoic acid to the combo, but it didn't help.
                      Now trying to add DCA (Di Chloro Acethate) to see if the helps, but LDN is already doing a good job anyways.

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