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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    That size automatically bumps your staging into T2N0M0. As for radio-active-iodine, while it was the usual protocol once, new guidance is recognizing it is not as useful as once thought.  Going thru papers from this congress might bring a light on this:https://www.liebertpub.com/doi/pdfplus/10.1089/thy.2018.2906 https://www.liebertpub.com/doi/pdfplus/10.1089/thy.2018.2907 But considering the size, even a more...

    January 18 at 2:44 AM view post
    • ToddlerFather has replied to a post on the message board

      Unless you are actively going for TSH supression, a protocol designed to handle remaining tumor cells, this is way too low, indicating your intake is too high. 

      January 13 at 5:07 AM view post
      • ToddlerFather has replied to a post on the message board

        If you go thru this site archives, you will see a good number of people reporting inconclusive FNAs... this is unfortunately very common. But in my case, FNA indicated FTC; frozen section biopsy indicated PTC, where in fact it was FV-PTC. This is just to make the point that while FNAs are good for not being intrusive like surgery, they can sometimes have decision value, and that's why they are tried first.  Wha...

        January 13 at 5:05 AM view post
        • ToddlerFather has replied to a post on the message board

          The only clothes that could be contamined were the ones you used at the hospital. Those should be measured for radiation before being discharged, and possibly go to the dumpster instead of returning with you.  The most concerns you need to have are with body fluids; going to the toilet, taking a shower, being too sweat. There are protocols for all 3, which is to do exactly what they told to do while in hospital...

          January 12 at 10:54 PM view post
          • ToddlerFather has replied to a post on the message board

            It's more about weight, not gender. I weight 210 pounds, and my target TSH level is TSH supression (undectable); that requires 188 mcg. The same weight with a less strict TSH would require a smaller intake, but the main factor in determining dosage is weight.  Mayo is always listed among reference cancer centers; I don't know specifically about endocrinology there. If you go thru some of the videos at http...

            January 12 at 10:49 PM view post
            • ToddlerFather has replied to a post on the message board

              Since you have half of the thyroid, the Thyroglobulin measure wouldn't be much useful even without Tg Antibodies... Tg is useful as a marker after full thyroideictomy. Although the nodule had PTC, previously there was not much attention until recently to classify tumors as NIFTP or not. So, it is not certain at this point that the nodule would ever become a threat. The same applies to newly found nodule... ...

              January 11 at 5:42 PM view post
              • ToddlerFather has replied to a post on the message board

                Are you petite ? I ask that because levothyroxine intake is related to weight, and I take 188 mcg a day... so 88 sounds too low (although it could be the dosage for my wife).  While following-up might sound stressing, it could be the best course of action. You mentioned living in the desert, but not where... there is a Mayo Clinic in Phoenix AZ, is it close to where you live ?

                January 11 at 2:54 AM view post
                • ToddlerFather has replied to a post on the message board

                  What's your target TSH level, what is the actual TSH you have at this time ? Depending on having or not a TSH supression protocol, you might able to lessen your intake. 

                  January 11 at 2:48 AM view post
                  • ToddlerFather has replied to a post on the message board

                    The problem with Thyroglobulin Antibodies is that they masquerade the Thyroglobulin levels. So the fact that TgAb when up and Tg went down makes the Tg levels not very informative anymore. TgAb are not a problem per se, just something making the diagnostic harder to reach.  Why do you say you have thyroid cancer ? Just having a nodule doesn't equate with cancer. 

                    January 11 at 2:46 AM view post
                    • ToddlerFather has replied to a post on the message board

                      Although Tg an TgAb that were already mentioned, it would be usual to also see TSH levels in her bloodwork for following-up such a condition.  And more important than the levels at an specific point in time, their trends over time could be very revealing. 

                      January 11 at 2:42 AM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Now adding alpha-lipoic acid to the combo, but it's soon to say if it helps or not.

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