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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    rTSH is the acronym for Recombinant TSH. You can see it in articles such as this:https://www.ncbi.nlm.nih.gov/pubmed/11729583 As for criticizing non-native speakers of the forum language that sometimes spell things wrongly, you need to ask yourself how important is that to overall comprehension of what is being discussed. 

    Yesterday at 3:01 PM view post
    • ToddlerFather has replied to a post on the message board

      Actually, my doctor has been alternating exams with rTSH and without. The plan is that the exams with rTSH uncover the full activity of thyrodean cells, while the exams without detect that the cells have not dedifferentiate to not respond to TSH. 

      Yesterday at 11:24 AM view post
      • ToddlerFather has replied to a post on the message board

        Most current scientifical facts were once utopias. The diagnostic reality as we stand is that the non-avidity is overlooked, bringing unpleasant surprises down the road.  Note that diagnosing doesn't usually bring side effects, different from treatments like every non-FDA approved treatment, including the one you mentioned. 

        Thursday at 9:38 PM view post
        • ToddlerFather has replied to a post on the message board

          What currently does not exist is an established guideline for diagnosing non-avid tumors before surgical ressection and RAI. That doesn't mean that someone that cares with that possibility couldn't try assessing that avidity, with varying degrees of success (with success meaning correctly diagnosing it). 

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          • ToddlerFather has replied to a post on the message board

            After a full thyroid removal, yes. But in his or her case, the thyroid is still there, both tumorous and non-tumorous parts. 

            July 16 at 12:23 PM view post
            • ToddlerFather has replied to a post on the message board

              Sorry, CT, not TC.  And the challenge is to find the missing pieces not responding to RAI... so you need one exam where there are clearly structures that should have response to RAI, but there isn't. 

              July 16 at 4:37 AM view post
              • ToddlerFather has replied to a post on the message board

                Note that size and location are only the preponderant factors. One other factor is whether your specific mutation is iodine-avid or not; those with non-iodine-avid (like me) have a not as good prognosis.  So one thing that is not currently on any guideline I read, but in retrospect I would like to have done myself, would be a comparative imaging analysis with WBS versus TC, PET/CT or US, trying to assess before...

                July 15 at 12:18 PM view post
                • ToddlerFather has replied to a post on the message board

                  If your choice is taking both out, you can tell that to your surgeon and there is no reason for him to deny it, because it's a valid choice, just different from them.  In my case, the surgeon suggested taking it all at once. I preferred removing the known to be affected lobe first. It turned out the staging recommended taking the 2nd lobe out and doing lymph node removal.  So, I would have had two surge...

                  July 14 at 9:52 PM view post
                  • ToddlerFather has replied to a post on the message board

                    A family member had strong personality changes while the tumor was undiagnosed, so yes, brain tumors can change personality either when growing or when ressected.  In our case that person soon returned to the previous personality, but is fighting day by day to return to the previous phisicality. But the tumor might not be the whole issue: my stage IV condition put me in such a depression that everything ch...

                    July 01 at 7:31 PM view post
                    • ToddlerFather has replied to a post on the message board

                      Not all disciplines are available at Sloan Kettering NJ, so it's better to check first if MM is or isn't available there. Sloan Kettering is indeed very good overall. 

                      June 29 at 10:49 PM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Now adding alpha-lipoic acid to the combo, but it's soon to say if it helps or not.

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