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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    - Some of those could be left alone and die of anything other than thyroid cancer, due to slow growth. NIFTP is the poster child for this.  - Some of those will have a cure due to thyroidtectomy. Most of the cases, but I will defer to a clinical trial that looks into this specific hypothesis.  - And some of those might have a cure due to RAI. The point here is that RAI is not as a strong contributor to th...

    41 minutes ago view post
    • ToddlerFather has replied to a post on the message board

      Most of the conditions are the same that guidelines prescribe Thyroidectomy. There are a few differences (like >2 cm x >4 cm) so this could make for a higher share of patients, like 50%. Yet it's still a less than stellar outcome.  But if someone is willing to find tier divisions among patients in order to do a proper calculation, I am all ears and spreadsheet. 

      44 minutes ago view post
      • ToddlerFather has replied to a post on the message board

        The basis is available in the clinical trial results... have you read them ? You know that such a clinical trial follows a strict scientific protocol and this is one is performed by a leading researcher in the field, right ? 

        Yesterday at 8:18 PM view post
        • ToddlerFather has replied to a post on the message board

          I'm pretty sure the forecast they gave him is wrong. The reason for that is all odds and survival rates are based on long-running research cycles, and most of those were based only on conventionak chemoterapy (citotoxins) and radiotherapy.  What is available now include targeted therapies, sometimes also called chemoterapy and immunotherapy, and some initial forms of precision medicine based on specific mutatio...

          Yesterday at 2:40 AM view post
          • ToddlerFather has created a new message board discussion

            Last year Astra Zeneca had already conceded that Selumetinib, one drug in their pipeline, failed to provide a response for those that took it besides doing radioactive iodine (RAI). The complete results took longer to be published, but they are now available at: https://clinicaltrials.gov/ct2/show/results/NCT01843062?view=results What I found interesting in the results is not that there is no meaningful differ...

            May 19 at 1:12 AM view discussion
            • ToddlerFather has replied to a post on the message board

              The nodule is actually good news; if the remaining thyrodean cells are only there, it's an area where it will take long before becoming a threat and an area that is mostly accessible to surgical removal.  But the lack of a Thyrogen-estimulated PET/CT means this is just one among many options. 

              May 15 at 4:25 AM view post
              • ToddlerFather has replied to a post on the message board

                One prospective life insurance company asked for a medical report. I went to a clinician that asked blood tests and discovered I had diabetes. I was referred to an endo, that as part of her usual practice felt my neck and said the thyroid seemed enlarged, US showed a nodule in the right half. US with FNA indicated FTC.  [ This phase ends with two surgeries to remove both halves, a biopsy finding of FV-PTC and R...

                May 06 at 1:09 PM view post
                • ToddlerFather has replied to a post on the message board

                  Yes, but it got back to normal 3 months after.  So, if pregnancy is in your plans, you might want to postpone them for a year, even though this effect on reproductive cells is only documented for males. 

                  May 04 at 8:04 PM view post
                  • ToddlerFather has replied to a post on the message board

                    I got a drop in sperm count 9 months after the ablation, but other than that and the feeling I was Spider-Man, no side effects. 

                    May 04 at 7:34 PM view post
                    • ToddlerFather has replied to a post on the message board

                      The remaining question then is whether it's your endo's first FNA or if he or she is experienced enough for you to feel reasonably comfortable. 

                      May 02 at 4:54 PM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Now adding alpha-lipoic acid to the combo, but it's soon to say if it helps or not.

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