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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has created a new message board discussion

    Some years back, I've found this resource that changed my understanding of Thyroid Cancer: https://thyroidworldcongress.com/videos-2017/ 2 years later, the next edition of the same congress is now available at: https://thyroidworldcongress.com/videos-wctc-3-5/ But I suggest beginning with the first set of videos, and select only topics of interest from the newest edition. The foundations of the first were stronge...

    Yesterday at 5:29 AM view discussion
    • ToddlerFather has replied to a post on the message board

      The resillience of tumors is not the same for different sizes, so you can't apply the shrinkage of one to the others. 

      February 15 at 10:05 PM view post
      • ToddlerFather has replied to a post on the message board

        In other low activity cancers like thyroid, it's possible to stimulate the tumor cells using Thyrogen. Currently my metastases only appear on PET when using Thyrogen. I don't know a prostate equivalent. 

        February 13 at 7:12 PM view post
        • ToddlerFather has replied to a post on the message board

          Faith and/or positive thinking is known to help, but as with many other factors, it's not proven since that would require testing with/without combinations a number of times.  Perhaps letting each one finding one's way ? 

          February 07 at 4:41 PM view post
          • ToddlerFather has replied to a post on the message board

            There are only 2 options: 1) The treatment has a worse quality-of-life-years result than not using it.  2) The radiation could also affect normal cells to a point of endangering him more than the tumors. 

            February 07 at 4:38 PM view post
            • ToddlerFather has replied to a post on the message board

              As others have said before me, PC moves fast, so you and him need to move fast too. While I usually look for developments linked to my condition, I saw this news that might be worth reading: https://www.onclive.com/conference-coverage/gi-2020/chemotherapy-plus-veliparib-represents-new-standard-in-pancreatic-cancer Note that this article advises to get a drug besides chemo, not replacing it, and it's conditional to ...

              January 26 at 2:49 AM view post
              • ToddlerFather has replied to a post on the message board

                If my case (metastastic thyroid cancer), psychiatric medication and councelling is doing the job. But whatever works for one, is the right thing to do: psychiatrist, priest, meditation...  ... as for family and friends, it usually works best to only tell your spouse. People have a wrong view of cancer as a death sentence, and it becomes troublesome to deal with lots of people treating you like you are dying. Yo...

                January 25 at 5:01 PM view post
                • ToddlerFather has replied to a post on the message board

                  Sometimes high TSH can indicate a mere hypothyroidism, not MGUS... 

                  January 23 at 1:06 AM view post
                  • ToddlerFather has replied to a post on the message board

                    Just a warning that there is no guarantee that the growing tumor cells are where they are thinking to radiate, unless a PET Scan pinpoints them. For instance, in my case I saw thyroglobulin growing higher and any ultrasounds didn't reveal anything in the thyroid bed. It turned out that the tumor cells were in the lungs. But it took years before a PET CT was able to reveal them, because they were too small before tha...

                    January 18 at 7:23 PM view post
                    • ToddlerFather has replied to a post on the message board

                      If you had total thyroidectomy, your thyroglobulin should not be detectable.  Your TSH depends on what is your management protocol. 

                      January 14 at 2:36 AM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Tried adding alpha-lipoic acid to the combo, but it didn't help.
                      Now trying to add DCA (Di Chloro Acethate) to see if the helps, but LDN is already doing a good job anyways.

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