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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    In WTC 2019, while the overall theme will be present in most parts of the program regarding management, there will be one specifically about active surveillance, from the authors of this paper: https://www.surgjournal.com/article/S0039-6060(17)30533-0/fulltext

    Yesterday at 1:29 AM view post
    • ToddlerFather has replied to a post on the message board

      https://www.youtube.com/watch?v=4o__3BXIYMM

      Monday at 6:29 PM view post
      • ToddlerFather has replied to a post on the message board

        Some videos from WTC 2017 might add to that thought process: https://www.youtube.com/watch?v=xt296C1ShBU https://www.youtube.com/watch?v=JnnQyrkphik https://www.youtube.com/watch?v=QaVSCeOLLzk https://www.youtube.com/watch?v=3L8OveOjADcWTC 2019 is coming in a couple of months, so updated information will soon be available. 

        Monday at 6:01 PM view post
        • ToddlerFather has replied to a post on the message board

          When I did my PET-CT with low iodine and thyrogen I also did a WBS, and that was key to complete characterize my tumors as non-RAI-avid (even stimulated, WBS showed nothing). So I strongly suggest also doing a PET-CT at this time.  My Tg peaked at 356 and is now down to 245, thanks to LDN (Low Dose Naltrexone). My oncologist sees no reason to do Lenvima or Nexavar while I'm asymptomatic,  even Tg was growi...

          April 20 at 6:56 PM view post
          • ToddlerFather has replied to a post on the message board

            I'm almost 50, above the line of 45+ where usual risk classifications are drawn apart...  ... the treatment with LDN (Low Dose Naltrexone) is succeding in make them into remission. Which is good, since there is no recommended conventional treatment at this point. I've also added alpha-lipoic acid to the mix, but so far it haven't changed the trend. Next step, whether ALA works or not, is possibly adding DCA (So...

            April 20 at 2:54 PM view post
            • ToddlerFather has replied to a post on the message board

              Currently there is no known conditions that would make papillary cancers not move forward at some point in time; there is for follicular cancers, and it's called NIFTP.  But yours could be; FNA's are not 100% precise. Mine said "Follicular", and in the end it was Follicular-Variant Papillary.  Some years ago, though, even clear cases of what is currently known as NIFTP ended up in surgical removal. So eve...

              April 20 at 2:54 AM view post
              • ToddlerFather has replied to a post on the message board

                That is somewhat dosage dependent, but considering recent guidance of not being useful to go beyond 100 mCi, 3 days isolation looks fine to me, if a few days of care at home to not be so close to others. 

                April 19 at 11:46 PM view post
                • ToddlerFather has replied to a post on the message board

                  While I understand the reasoning for a brain MRI at some point in the diagnostic process, I believe it would be at least the 3rd step... the first would be an ultrasound, as I already said and you are already doing one.  The 2nd would be redoing the PET, but with iodine diet plus Thyrogen stimulation. While the PET has indeed some possible difficulties imaging the brain, the more likely reason for the PET to sh...

                  April 19 at 11:41 PM view post
                  • ToddlerFather has replied to a post on the message board

                    A PET without Thyrogen estimulation has a high chance of not showing anything. But even so it has diagnostic value, since it measure how differentiated / undifferentiated your tumor cells are.  4 mCi is a small dose for RAI, it's just a tracer for a WBS. BTW, if your nuclear medicine facility supports, this would be a good use case for I-124 instead of I-131, which can provide more accurate lesion dosimmetry in...

                    April 16 at 2:47 PM view post
                    • ToddlerFather has replied to a post on the message board

                      There is a lot to do on the human side before leaving it to God. It seems you need a good oncologist to even understand what's happening, before even considering some form of treatment or just hospice to ease up the last days.  What's the working theory at this point ? 

                      April 08 at 10:29 PM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Now adding alpha-lipoic acid to the combo, but it's soon to say if it helps or not.

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