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ToddlerFather's Message Board Messages

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RE: Ultrasound changes

by ToddlerFather - August 10 at 3:45 PM

The changes are within the error margin, so I would say your testes are stable. The two dimensions are too close to say whether is taller than wide or wider than tall. 

RE: What is your urine PH?

by ToddlerFather - August 08 at 4:39 AM

The problem with urine PH is that it's inespecific, meaning that it can be low without cancer and can be high with cancer. 

That said, in full disclosure mine is 5.0, and I do have cancer (stage IV - metastases). But it's been at this exact value for years, even with my tumor marker going down... so at least in my case, it doesn't seem to be related to tumor activity. 

RE: The waiting game...

by ToddlerFather - July 24 at 7:37 PM

What you already started noticing is that one of the hardest challenges in managing cancer is managing your emotions. Besides doing what you are already doing regarding the mass per se, time to start working on your mind and soul. 

On Jul 24, 2019 4:03 AM cymanthea wrote:

I had a TT and RAI 4 years ago. I have had a hoarse voice since around January this year, it gets slightly better then worse again but never goes away. My TSH was at 9.5 recently, they will recheck my levels in a few weeks. Everyone around me has noticed my voice, people who I see everyday and people who I only see every few months so my question is - Has anyone had this symptom and it was thyca recurrence?

While some nodules/tumor locations could case this, the most common issue relating thyca to hoarse voice is when the vocal cords / surrounding nervers are damaged by the procedure removing the thyroid. 

Since this is appearing years after the procedure, it seems quite unlikely to be related. The thyroid bed is easily accessible to ultrasound imaging, so if you haven't done any US as control, it might be worth doing one. 

And as already mentioned, that TSH level is high indeed, suggesting a dosage review of your hormone intake is in order. 

rTSH is the acronym for Recombinant TSH. You can see it in articles such as this:
https://www.ncbi.nlm.nih.gov/pubmed/11729583

As for criticizing non-native speakers of the forum language that sometimes spell things wrongly, you need to ask yourself how important is that to overall comprehension of what is being discussed. 

On Jul 19, 2019 9:12 AM butterfly501 wrote:

Please; make sure you get your rTSH to measure your thyrodean cells.

Actually, my doctor has been alternating exams with rTSH and without. The plan is that the exams with rTSH uncover the full activity of thyrodean cells, while the exams without detect that the cells have not dedifferentiate to not respond to TSH. 

On Jul 18, 2019 11:35 AM butterfly501 wrote:

Yes.   And the efficacy of ethanol eblation on cancerous thyroid tumors should be studied as well, so no one ever has to lose a thyroid again.

thyroid cancer utopia.

Most current scientifical facts were once utopias. The diagnostic reality as we stand is that the non-avidity is overlooked, bringing unpleasant surprises down the road. 

Note that diagnosing doesn't usually bring side effects, different from treatments like every non-FDA approved treatment, including the one you mentioned. 

What currently does not exist is an established guideline for diagnosing non-avid tumors before surgical ressection and RAI. That doesn't mean that someone that cares with that possibility couldn't try assessing that avidity, with varying degrees of success (with success meaning correctly diagnosing it). 

On Jul 16, 2019 4:52 AM butterfly501 wrote:

On Jul 16, 2019 4:37 AM ToddlerFather wrote:

On Jul 15, 2019 11:30 PM butterfly501 wrote:

On Jul 15, 2019 12:18 PM ToddlerFather wrote:

Note that size and location are only the preponderant factors. One other factor is whether your specific mutation is iodine-avid or not; those with non-iodine-avid (like me) have a not as good prognosis. 

So one thing that is not currently on any guideline I read, but in retrospect I would like to have done myself, would be a comparative imaging analysis with WBS versus TC, PET/CT or US, trying to assess beforehand whether the tumor is or is not iodine-avid. 

What's a TC? 

And I'm pretty certain the only way to know if cells are avid for iodine is to dose them with RAI and use nuclear medicine imaging.

Sorry, CT, not TC. 

And the challenge is to find the missing pieces not responding to RAI... so you need one exam where there are clearly structures that should have response to RAI, but there isn't. 

FDG-PET with detectable thyroglobulin and negative RAI imaging.

After a full thyroid removal, yes. But in his or her case, the thyroid is still there, both tumorous and non-tumorous parts. 

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About ToddlerFather

Patient
Thyroid Cancer
After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
Now adding alpha-lipoic acid to the combo, but it's soon to say if it helps or not.

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