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ToddlerFather's Message Board Messages

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Some years back, I've found this resource that changed my understanding of Thyroid Cancer:

https://thyroidworldcongress.com/videos-2017/

2 years later, the next edition of the same congress is now available at:

https://thyroidworldcongress.com/videos-wctc-3-5/

But I suggest beginning with the first set of videos, and select only topics of interest from the newest edition. The foundations of the first were stronger, the dynamics allowed for more wide-range discussions. 

On Feb 14, 2020 4:15 PM WFG51 wrote:

Kind of jumped the gun on cancer free -  but it was such great news to know that lupron is working.  And hopefully the diet, and supplements are helping too.  I do not want to do radiation and will hold off until I have no choice.  I had three nodes - 2 were 11 mm and one was 2.2cm x 1.5cm  so if the 2.2x1.5 is less then 1 cm ( size detectable by ct scan that means that that node shrunk considerable) and if you take that amount of shrinkage and apply it to the other  2 nodes they must have shrunk that much also, which would make them almost non exsistent.  Hoping this continues to shrink.  Thanks to everyone that responded and with suggestions. 

The resillience of tumors is not the same for different sizes, so you can't apply the shrinkage of one to the others. 

In other low activity cancers like thyroid, it's possible to stimulate the tumor cells using Thyrogen. Currently my metastases only appear on PET when using Thyrogen. I don't know a prostate equivalent. 

RE: Stage 4 pancreatic cancer

by ToddlerFather - February 07 at 4:41 PM

On Feb 05, 2020 8:12 PM Treasure wrote:

Just a reminder Denver, if you don't believe in miracles or healings, maybe you will when you need one! 

Faith and/or positive thinking is known to help, but as with many other factors, it's not proven since that would require testing with/without combinations a number of times. 

Perhaps letting each one finding one's way ? 

There are only 2 options:

1) The treatment has a worse quality-of-life-years result than not using it. 

2) The radiation could also affect normal cells to a point of endangering him more than the tumors. 

RE: Seeking advice

by ToddlerFather - January 26 at 2:49 AM

As others have said before me, PC moves fast, so you and him need to move fast too. While I usually look for developments linked to my condition, I saw this news that might be worth reading:

https://www.onclive.com/conference-coverage/gi-2020/chemothe

Note that this article advises to get a drug besides chemo, not replacing it, and it's conditional to specific genetic mutations. So getting a genetic test of tumor sample is key to guiding treatments instead of doing trial and error, since this challenge could be fast enough to not leave time to do trial and error. 

RE: How distressing it can be

by ToddlerFather - January 25 at 5:01 PM

If my case (metastastic thyroid cancer), psychiatric medication and councelling is doing the job. But whatever works for one, is the right thing to do: psychiatrist, priest, meditation... 

... as for family and friends, it usually works best to only tell your spouse. People have a wrong view of cancer as a death sentence, and it becomes troublesome to deal with lots of people treating you like you are dying. You might even be convinced of that if so many people think that. 

RE: Mgus or not

by ToddlerFather - January 23 at 1:06 AM

Sometimes high TSH can indicate a mere hypothyroidism, not MGUS... 

Just a warning that there is no guarantee that the growing tumor cells are where they are thinking to radiate, unless a PET Scan pinpoints them.

For instance, in my case I saw thyroglobulin growing higher and any ultrasounds didn't reveal anything in the thyroid bed. It turned out that the tumor cells were in the lungs. But it took years before a PET CT was able to reveal them, because they were too small before that. 

So, even if you get a PET scan now, it might reveal nothing. Gland cancers such as Thyroid and Prostate are usually slow growing. 

Also, it seems that your doctor is assuming that the tumor can only do local metastases to neighboring tissues, while they can follow blood flow and do distant metastases. 

It's impossible to determine a course action with no risk without complete information, which is not available at this point, but I would be more inclined to get more precise information before starting gunning unknowns. 

 

On Jan 12, 2020 12:27 AM Shoshie wrote:

Thank you for your response. My T4 is 1.4. I wish I had a better understanding after all these years of what should be with my TSH and thyroglobulin etc...

I also cannot change doctors as the closest endocrinologist in my plan is over 25 miles away so I'll have to deal with her for now. I wish she'd listen to me and how I actually feel opposed to just relying on my bloodwork. 

If you had total thyroidectomy, your thyroglobulin should not be detectable. 

Your TSH depends on what is your management protocol. 

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About ToddlerFather

Patient
Thyroid Cancer
After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
Tried adding alpha-lipoic acid to the combo, but it didn't help.
Now trying to add DCA (Di Chloro Acethate) to see if the helps, but LDN is already doing a good job anyways.

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