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VAgirl2's Recent CancerCompass Activity

  • VAgirl2 has replied to a post on the message board

    I need to clarify my previous message.  I am Virginia P. Cox's husband.  Her email address was robert21003@cox.net.  I hope I didn't alarm anyone inadvertently.  I simply did not understand the Cancer Compass network. Robert Cox

    October 28, 2014 view post
    • VAgirl2 has replied to a post on the message board

      This is Virginia's husband.  This is obviously a hacking situation inasmuch as Virginia passed away on Oct 12 and had not used her computer for more than a month before that.  I'm sorry for your inconvenience but I am not sure how to avoid the problem.  Robert Cox

      October 28, 2014 view post
      • VAgirl2 has replied to a post on the message board

        What is the Chue protocol? I have seen an article from 2009 about his patient diagnosed in 2004 and treated with metronomic dosing - smaller doses of chemo but given every week.  I am 62 and like your wife had my unpleasant "Christmas Surprise" on Dec 18 2014, tumor in head of pancreas and mets to liver.  Just finished my 11th cycle of FOLFIRINOX, but am headed to Mayo - Rochester, MN later today expecting ...

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        • VAgirl2 has replied to a post on the message board

          I assume you are referring to a CA19-9 test.  Why was this being monitored for you in the first place?  It is usually monitored for those who have pancreatic cancer.  And readings above 40 are considered above the normal range (although with stage 4 PC, mets to liver my readings have been in below 40 at times).  You should talk to your MD - your readings would cause me a great deal of concern, sin...

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          • VAgirl2 has replied to a post on the message board

            Dear al216: Do NOT feel bad about not being able to go to one of the major national cancer clinics.  There are many fine local oncologists and in our modern age of high tech communications, the good ones can and will keep up with the latest treatments.   The Cancer Treatment Centers of America gets rave reviews on this blog (I think they sponsor it), but their good stats have been skewered by an article f...

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            • VAgirl2 has replied to a post on the message board

              Dear al216:   What chemo regimen are you on?  Sounds like you have the exact same diagnosis at the exact same time that I did.  What a crappy "Christmas Surprise"!   But I am continually encouraged by reports of improved survival times with the recently improved chemos available.  Keep in mind that the survival statistics published are out-dated (only as recent as 2012 and some are as old a...

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              • VAgirl2 has replied to a post on the message board

                Murf99:   Please share the name & location of your wife's doctor and describe the chemo protocol that has been so successful for your wife (what "standard chemo chemicals" are in it?). Thanks much.

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                • VAgirl2 has replied to a post on the message board

                  Karen:  I had heard that once you changed from one chemo regimen to another that you could never go back to the original one.  But it sounds like you have done so.  Do I understand you correctly?   Diagnosed stage 4b PC with mets to liver in Dec 2013, I have completed my 9th FOLFIRINOX treatment, but had to delay my 10th for a few days because my bone marrow finally cried "uncle" and RBC, WBC, an...

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                  • VAgirl2 has replied to a post on the message board

                    Pancreatic cancer can spread to the brain, which could be a cause for his confusion.

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                    • VAgirl2 has replied to a post on the message board

                      Wow! Great results!  My Mayo oncologist says that I will be on some form of chemo for the rest of my life (however long or short that may be) because PC always comes back, and when it does is usually non-responsive to chemo.  So he feels it is better to continue a low dose prophylactic sort of chemo even once a patient is in a condition of NED (no evidence of disease).  My liver panels are normal, but ...

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