Valeriepannone's Message Board Messages

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On May 20, 2019 3:28 PM lovingson321 wrote:

On May 20, 2019 2:46 PM johnfantastic wrote:


Can your mom still take lots of fluid intake? Based on my friends testimony, Her sister takes 6-10 cups of Guyabano Leaves Tea a day. But again this is no guarantee of a cure, but it is a very cheap remedy.

My aunt also has started feeling better even without medical treatment because their family can't afford it.

I will ask my friend first if it is okay with him if you contact him directly. But you can ask me some questions here.

First of all thank you so much for replying...I totally understand it might not work for everyone but i havenothing to lose right now. Only other option i read on the forum was to use cannabi oil but i believe it wont be easy to get it and then make it in the country i live. is guyabano leaves same as what is called sour soap? someone is selling me in my country if you could share a picture  link of the leaves..

yes my mom is able to drink water 6-7 times a day right now..but she is really developing mental confusion... thanks once again

confusion and hallucination is to be expected. Just go along with the hallucinations. My dad kept telling me their was a flood in the hallway and their wasn't but i told him " don't worry dad i clean it up" and he was at ease with that. He had a few of those and we just went along with it. He also confused his urine cup with his water bottle so he had to be closely watched. He'd also kept pulling and tugging at his drains so we had to watch that too. Very sad it's just terrible how he suffered.. Let me know if oyu have any other questions.


On May 19, 2019 2:16 AM COFFEEMAN123 wrote:

Thank you so much Val

Anytime! I am in the middle of becoming an avocate for cholangiocarcinoma. I submitted my application and now have some training to complete. If you have any other questions on anything about this cancer or what to expect let me know. I will try to help you the best i can. Hang in there. One day at a time.. baby steps  :)


On May 15, 2019 3:05 PM Close5 wrote:

Good thought...hadn't crossed my mind.   I will mention it to my mom who can ask at the next appt.

anytime! Stay strong god bless!

On May 14, 2019 6:14 AM PD_NEC wrote:

On May 12, 2019 6:56 PM COFFEEMAN123 wrote:

My dad was diagnosed 2 to 3 years ago by a regular colonoscopy, they found polyps, biopsied to discover it's cancer. After the procedure to take out the polyps in the colon, they discovered polyps on the pancreas.

To discover he had Pancreas and Colon that has not met, which is rare. Kaiser was dumbfounded and asked for the City of Hope to be the umbrella of his care.

He has been fighting with radiation at first then chemo repetitively. About 3 to 4 months back the oncologists Dr gave him false hope but by me working in the medical, I was skeptical. It took another Dr to tell my folks the cancer is everywhere which brought him into a deep depression and completely brought down his morale. This week in May 2019, a huge blow made me numb. He was hospitalized with bilat pneumonia being weak and pale. Yesterday, we met with the palliative care team and they transferred him home via ambulance. It's sad to see my dad so weak and cancer literally killing him.

I don't know how to act, what to say, how to respond?

All i can say is that I am numb!!!!

I am really sorry man. I feel the same way - sometimes numb, angry most of the time, depressed and helpless.

I'm the daughter of a cancer patient as well. In july 2018 my dad was diagnosed with bile duck and liver cancer stage 4. I felt like someone threw bricks at my chest. I couldn't believe my dad was sick. He was 74 years old. In July the doctors gave him 6-9 months to live.. He lived 8 months and passed away this march 2019. I know how you feel. I've watched my strong father got tobeing bed ridden, his beautiful amile turned to a frown, his eyes that once had life in them turned dark and cold. He was disappearing right in front of me. He lost so much weight and at the final days of his life he could not speak, he went into a light coma. He had the death rattle that night and his body kept jerking of muscle spasms.. He suffered. He didn't have any pain although morphine was given to him to help his breathing because he was breathing so fast, 30 breaths in one minute. It was heartbreaking to watch him go through this.. I know exactly how you feel. Try to stay strong in front of them, if you have to cry walk away. Don't let him see you cry. It makes their departing harder.. feel free to ask me anything!

Val Pannone

Saten Island 

On May 07, 2019 7:54 PM saint_123 wrote:

No new advice but just wanted to mention that my brother is 6 months out of whipple and still suffers from chronic diarrheae. more recently, he has had some success with Imodium. He is also managing smaller meals which seems to help also.

good luck with your fathers situation. As others have said,  diarrheae and vomiting together is abnormal. Keep poking at the doctors. 

Not if they have c-diff.... 

On Mar 07, 2019 12:32 PM myley06 wrote:

My husband has bile duct cancer and his chemo treatment was stopped last August  since then he has been admitted to hospital several times with infection. He has been in the hospice now for 2 weeks  to regulate his medicines and again suffered rigors last Sunday.  We are fortunate having the local hospice for support. It is devastating to watch the suffering he is going through but have been told to expect bouts of infection.

Just checking into see how you are?

On May 02, 2019 4:21 PM Buster00 wrote:

hi my balance has been off all the way thro chemo ??

Chemo will throw everything off. It will destroy your imuune system. be careful in public, wear masks, always wash your hands and also thr people that visit you. What kind of cancer do you have? Not being able to walk is from the chemo, it makes you very weak and if yu are not active you will lose mussel mass,, keep in touch!!

Val Staten Island

On Apr 30, 2019 1:49 AM Close5 wrote:

My dad is 9 months out from Whipple surgery. He was doing well from July to February, but has had sudden onset of chronic vomiting/diarrhea. He’s down 40 pounds in 2.5 months and can’t gain any energy. He’s on multiple “western” meds. We’re wondering if anyone has had success with non- traditional methods? The doctors say it’s a “blockage” or scar tissue issues and we have to manage the symptoms, but that it won’t go away. I’m reaching here...I know that, but thought I’d see if anyone had success with anything!

the doctor can prescribe imodium to your pharmacy and eat red apples,, it helped my dad when he had sepsis.. we did the "BRAT" bananas,rice,apple&toast.. i did help alot

On May 01, 2019 12:28 PM bushy wrote:

Close5 That’s terrible to read what your dad. Is going through,I have heard of chronic diarrhoea,not as much vomiting, happening after a Whipple but for both to occur seven months after surgery something is not right ,try pushing the drs for a definitive diagnosis,and find what is causing the symptoms.Have "" target="_blank" rel="nofollow">http://symptoms.Have " target="_blank" rel="nofollow">symptoms.Have they tried OxyContin for the diarrhoea it can be used as a treatment ,I remember at one stage I was on a migraine tablet whose side effect was constipation to help My diarrhoea,luckily My doctor thought outside the square.I hope someone can suggest something that can help your Dad.

the doctor can prescribe imodium to your pharmacy and eat red apples,, it helped my dad when he had sepsis.. we did the "BRAT" bananas,rice,apple&toast.. i did help alot

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About Valeriepannone

Bile Duct Cancer, Liver Cancer

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