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ajp1228's Recent CancerCompass Activity

  • ajp1228 has replied to a post on the message board

    My mother had this done and it took a long time for her system to wake up.  She wasn't able to eat much of anything for a few months, just a few bites and a small amount of milk.  The home nurses kept stressing protein, so I got her some of the High Protein Boost drink.  She was only able to finish one bottle over the course of a day, but that was enough to stabilize her weight and sustain her until sh...

    June 06 at 6:59 PM view post
    • ajp1228 has created a new message board discussion

      My mother passed in January, 2017.  When I got the death certificate back, the hospice doctor had written that the cause of death was "lung cancer & mets"; however, her actual diagnosis was endometrial cancer with metastasis to the lungs.  That's not the same thing as primary "lung cancer."  I've talked to them several times off and on trying to get them to have the death certificate corrected, but...

      November 03 at 4:07 AM view discussion
      • ajp1228 has replied to a post on the message board

        I agree with those who have posted about having the swallowing test first.  If the test shows that he is able to swallow, I suggest trying Boost High Protein drinks.  My mother had issues after surgery 3 1/2 years ago and could not eat or drink very much for a few months.  She had previously tried Ensure but got tired of it quickly.  But she liked the Boost in both chocolate and vanilla.  It ...

        January 07, 2016 view post
        • ajp1228 has commented on a news story

          My dad had hormone therapy and it helped him a LOT.  He had a slow-growing form of prostate cancer but wouldn't let the doctors do the necessary tests to diagnose it until the cancer had already spread to his bones.  He was feeling very weak and unable to the things he wanted to do by the time he was diagnosed.  Surgery wasn't an option because the cancer had progressed too far.  After he started ...

          May 17, 2015 view news story
          • ajp1228 has replied to a post on the message board

            By the way, Mother's surgery was in 2012.  She is doing well now - except she's now dealing with metastisis to her lungs, which turned out to be uterine cancer instead of colon cancer.  They retested her colon tumor last year and found it was not colon cancer as they first thought but was uterine cancer; they must have missed something when she had her hysterectomy in 1995.  The lung tumors are still s...

            April 17, 2015 view post
            • ajp1228 has replied to a post on the message board

              My mother had a temporary illeostomy which was reversed after 4 months.  She stayed dehydrated during the time she had the illeostomy, due to a thrush infection right after the surgery which made it hard for her to eat and drink normally and then, when she was finally eating better and barely starting to hold her own, her oncologist wanted to start chemo treatments but she wasn't strong enough to tolerate and go...

              April 17, 2015 view post
              • ajp1228 has replied to a post on the message board

                My cousin is taking chemo with Neulasta or something similar, along with Zometa or something similar to that.  (I don't know her exact treatment meds.)  The Neulasta (or similar) injection is what she said was causing a lot of pain.  Her doctor recommended Clariton D, and that has helped her - not completely, but it has helped. 

                March 27, 2014 view post
                • ajp1228 has replied to a post on the message board

                  Hi, Fran.  Merry Christmas!!!  I'm glad to hear your scans and CEA are all good; I have been wondering about you after your last post about your CEA.  :)Mother's surgery was approximately the same time as yours, and for the past year her "new normal" has been smaller bowel movements but about 3-4 times a day.  However, at times she has had to go more often.  She still wears a pad; she spots s...

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                  • ajp1228 has replied to a post on the message board

                    Try to get him to drink the high-protein drinks in addition to what he is eating.  My mother went through cancer treatments and 2 surgeries last year and after the 2nd surgery, her system must have almost shut down because she could eat very little.  She was continuing to lose weight until I got her started on high-protein Boost.  She only drank a little at a time, and over the course of a day she fini...

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                    • ajp1228 has replied to a post on the message board

                      My mother was diagnosed 2 years ago, spent all of last year going through chemo and 2 surgeries (surgery to remove the cancer and a temporary illeostomy; then 4 months later more surgery to referse the illeostomy).  About a year ago, she had follow-up CT scans.  In March of this year she had a colonoscopy; it was clear, so he said she wouldn't need to come back for 3 years.  However, her CT scan showed...

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