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ankiwo's Message Board Messages

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Hi all, It may be a bit premature for me to be posting here, but I am here because I don’t know where else to be. I was going for testing for mast cell disorders but wound up getting a negative result on that but a high Chromogranin-A result of 502. My GP has me going through a battery of carcinoid/NET tests blood/urine, the whole drill. I am in pain a lot and now can’t even take Tylenol for a few days before I get these 24-hr urine tests done. I have been reading that PPI use could cause elevated CgA levels but I stopped taking PPIs 6 weeks prior to taking the blood test that came up with the high CgA reading. Recurring H.Pylori " target="_blank" rel="nofollow">H.Pylori infections would cause my entire body to have so much pain I could barely walk. At least I thought it was the H.Pylori " target="_blank" rel="nofollow">H.Pylori causing it, but now there appears there may be a worse villain hiding in the shadows. Is there anything else that could cause CgA numbers this high? I know it is too early to freak out but I can only convince myself for so long before I break down in tears. I have 2 young children—one with special needs—and I can barely take care of them as it is. Help??

RE: Chromogranin A

by ankiwo - October 05, 2018

Hi I am new and have not been diagnosed with carcinoid yet but got blood test results showing 502 CgA and high histamine level. My GP has a whole bunch of follow-up tests for me to do. Sounds like it is going to be quite a ride...
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