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annkennon's Recent CancerCompass Activity

  • annkennon has replied to a post on the message board

    The full body scan is not pleasant.  You have to leave off the synthroid for at least a month or longer until you reach a point of severe hypothyroidism.  Since I have no thyroid and it controls everything, I feel terrible.  The doctor told me to not even write a check during this period. Mental fog.  I swell up, can't think of words I need, shuffle when I walk, gain weight, slurred speech, s...

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    • annkennon has replied to a post on the message board

      FYI for everyone who has had thyroid cancer. Follow up, at least for me, has included full body scans every few years.  These  are uncomfortable and inconvienent because you must come off synthroid for weeks, so that any remaining thyroid cancer cells, even a metastized cancer will soak up the radioactive iodine. My main concern has been the exposure to even more radiation!  Several years ago, I said ...

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      • annkennon has replied to a post on the message board

        No, I don't live in the Rochester area now.  My family was from Fairport and we moved to Georgia in the 50's.  The letters continued to follow me from the U of R.  I believe that they have had an ongoing study of these infants for many years. I think that the reason the information they have garnered has not been shared with the medical community is because of the fear of an immense law suit....

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        • annkennon has replied to a post on the message board

          I agree.  I recognized that look that drs. get.  It says "Let's don't go there, I don't want to open that can of worms". Litigation phobia.  I just would like the medical community to acknowledge what was done to these infants and offer some kind of help to us.  Some recommended screenings etc. After my 2nd cancer, I asked the oncologist what else I could expect.  He reluctantly said possibly...

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          • annkennon has replied to a post on the message board

            I am so relieved to find this message board. Finally, people who even know about radiation treatments for infants in the '40's.  I received the treatments in Rochester in 1947 as in infant. My mother said she took many bus trips for these treatments that she was told would help my projectile vomiting and breathing difficulties by shrinking the thymus. Thru the years, I've received notices from the U R group...

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