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aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    I had a lot of very serious complcatiions post surgery and I still live with the effects but I do not regret it.  I am only 43 at this stage though and I had the surgery when I was 32.  For me the chance of looking forward and not always in fear was worth it.

    August 15, 2017 view post
    • Aoife has replied to a post on the message board

      My tumor was in the mddle and I could not eat at all and even drinking fluids was difficult.  It does depened case by case - I wanted to have children afterwards so that could have been a factor, I also was on a medical trial for mine.

      August 08, 2017 view post
      • Aoife has replied to a post on the message board

        I had the surgery for stage 3 squamous cell esophageal cancer in the middle of my esophagus - I did have a total response to chemo (no radio) but I did not want to live in fear of it coming back plus I wanted to have children.  I was only 32 at the time though.  I am over 10.5 year survivor at this stage and did have my two children post cancer treatments.

        August 08, 2017 view post
        • Aoife has replied to a post on the message board

          Hi, I am no longer really on this site as I am a 10.5 year survivor at this stage but I had my first symotoms when I was 31 and was diagnosed with esophageal cancer when I was 32.  I married two weeks post chemo, then had a total esophagectomy and before I turned 5 year survivor had my two children who are 6 and 7 now.  I am sorry that you are going through this but wish you all the best - I have forgotte...

          August 06, 2017 view post
          • Aoife has replied to a post on the message board

            Thanks, very busy here, my son is 7 tomorrow!  The 10 year since the surgery and 11 years since the first symptons were huge things for me...now back to running after my still 6 and 5 year old...

            April 01, 2017 view post
            • Aoife has replied to a post on the message board

              I am no longer really on this site but I saw the post in the round up.  I was also 32 when I was diagnosed with stage 3 query stage 4 esopghageal cancer though mine was squamous cell and it was in the middle.  I had chemo, got married and then had the surgery.  I was very ill post the surgery, not helped by being a type 1 diabetic since childhood.  My surgery was 9th February 2006 and I have gone ...

              March 16, 2017 view post
              • Aoife has replied to a post on the message board

                I had my son just before I was a 4 year survivor and my daughter before I was a 5 year survivor.  I had chemo then ta total oesophagectomy.  The first year was the toughest but I am my weight before it all happened a few years now.  I turned a 9 year survivor in October and 41 earlier in the year.

                December 02, 2015 view post
                • Aoife has replied to a post on the message board

                  I still get dumping syndrome the odd time and I had the surgery in February 2007.  I still have to be careful what I eat, milk was a no no until I became pregnant with my daughter when I was just over a 4 year survivor (she is 4 now and I have a 5 year old as well), and even still low fat millk makes me ill.  It takes a long time to get used to the new normal with this surgery and even that changes over tim...

                  November 24, 2015 view post
                  • Aoife has replied to a post on the message board

                    Mine was finally found when I was unable to swallow even water - (I was 32 at the time and am 41 at this stage) - there is no point in speculating - get the scope and then see, if nothing else you will be kept an eye on.

                    November 24, 2015 view post
                    • Aoife has replied to a post on the message board

                      I was 32 when I was in a similar position to your boyfriend, I was stage 3 and had the chemo then surgery but I did have a total response to the surgery.  I amd ober 8.5 years since surgery at this stage and am a 9 year survivor and mother of a 4 and 5 year old born post surgery.  At only 2 months out I was not up to anything much, I was in severe agony, I had a bad cough, found it hard eating but it did g...

                      October 18, 2015 view post
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                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 41 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer. I also have a cousin who is being treated for esophageal cancer at the moment.

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