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aoife's Message Board Messages

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RE: Surgery with NED?

by Aoife - August 15, 2017

I had a lot of very serious complcatiions post surgery and I still live with the effects but I do not regret it.  I am only 43 at this stage though and I had the surgery when I was 32.  For me the chance of looking forward and not always in fear was worth it.

RE: Surgery with NED?

by Aoife - August 08, 2017

My tumor was in the mddle and I could not eat at all and even drinking fluids was difficult.  It does depened case by case - I wanted to have children afterwards so that could have been a factor, I also was on a medical trial for mine.

RE: Surgery with NED?

by Aoife - August 08, 2017

I had the surgery for stage 3 squamous cell esophageal cancer in the middle of my esophagus - I did have a total response to chemo (no radio) but I did not want to live in fear of it coming back plus I wanted to have children.  I was only 32 at the time though.  I am over 10.5 year survivor at this stage and did have my two children post cancer treatments.

On Aug 06, 2017 5:06 PM ChadInBama wrote:

Hello all. I found this thread and it has helped inspire me. I am 33 years old, have a 4 yr old daughter, and an 8 week pregnant wife. Needless to say, I was invincible until 2 weeks ago when I was diagnosed with EC.

I was fortunate that it was found due to me visiting a local Doc for daily mild heart burn. What is crazy is the heart burn symptons went away after we started testing. My doctors call it a stage 2/possible 3. They said it may be impacting 2 very close lymph nodes but cannot tell for sure. 

My doctors gave me confidence that we can shrink it and remove my lower esophagus.. However reading online makes me feel like odds are against me. Im 1 week into my treatment of 5 rounds weekly chemo and 28 total radiation. My first chemo made me quite sick and took my appetite.

I am trying to be brave, but with such a young family it is hard to escape my worst fears. I feel confident I can best this, it's just hard to deal with. Finding this forum has gave me a lot of support and I hope there are others that can join in and comment on their fight. 

Hi,

I am no longer really on this site as I am a 10.5 year survivor at this stage but I had my first symotoms when I was 31 and was diagnosed with esophageal cancer when I was 32.  I married two weeks post chemo, then had a total esophagectomy and before I turned 5 year survivor had my two children who are 6 and 7 now. 

I am sorry that you are going through this but wish you all the best - I have forgotten chemo, the surgery was very tough though but I did have my children post treatment.

Best wishes.

Thanks, very busy here, my son is 7 tomorrow!  The 10 year since the surgery and 11 years since the first symptons were huge things for me...now back to running after my still 6 and 5 year old...

I am no longer really on this site but I saw the post in the round up.  I was also 32 when I was diagnosed with stage 3 query stage 4 esopghageal cancer though mine was squamous cell and it was in the middle.  I had chemo, got married and then had the surgery.  I was very ill post the surgery, not helped by being a type 1 diabetic since childhood.  My surgery was 9th February 2006 and I have gone on to have two children who are 5 and 6.

Best wishes

RE: Appetite Return - (When?)

by Aoife - December 02, 2015

I had my son just before I was a 4 year survivor and my daughter before I was a 5 year survivor.  I had chemo then ta total oesophagectomy.  The first year was the toughest but I am my weight before it all happened a few years now.  I turned a 9 year survivor in October and 41 earlier in the year.

I still get dumping syndrome the odd time and I had the surgery in February 2007.  I still have to be careful what I eat, milk was a no no until I became pregnant with my daughter when I was just over a 4 year survivor (she is 4 now and I have a 5 year old as well), and even still low fat millk makes me ill.  It takes a long time to get used to the new normal with this surgery and even that changes over time.  He will be able to eat more with time but it is very early days yet.

RE: Early Symptoms

by Aoife - November 24, 2015

Mine was finally found when I was unable to swallow even water - (I was 32 at the time and am 41 at this stage) - there is no point in speculating - get the scope and then see, if nothing else you will be kept an eye on.

I was 32 when I was in a similar position to your boyfriend, I was stage 3 and had the chemo then surgery but I did have a total response to the surgery.  I amd ober 8.5 years since surgery at this stage and am a 9 year survivor and mother of a 4 and 5 year old born post surgery. 

At only 2 months out I was not up to anything much, I was in severe agony, I had a bad cough, found it hard eating but it did get easier with time.  The first 6 months post surgery were worse than the remaining time since the surgery. I could not drink milk at the time until I became pregnant with my 4 year old.  I can now eat 3 small courses of food.  I do not have the energy of someone my age but I do work but staying out until 4am in the morning is out but I am still here.  It does get easier with time, Aoife

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About aoife

Patient
Esophageal Cancer

Am a 41 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer. I also have a cousin who is being treated for esophageal cancer at the moment.

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