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arielanotheca's Recent CancerCompass Activity

  • ArielAnotheca has replied to a post on the message board

    He passed two nights ago. It's been very hard. But at least his end was quick with minimal suffering. I know others have not gone through such an easy end.

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    • ArielAnotheca has created a new message board discussion

      Hello all, As I write this, Rico is taking some of his last breaths. I am right outside his room while he tries to get comfortable. This is a terribly hard process, losing my boyfriend and my best friend. He battled GBM for almost two years with amazing gusto. Now, he is struggling to breath through congested lungs. It breaks my heart but I have become numb. I have said my goodbyes and now am waiting for the end. ...

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      • ArielAnotheca has replied to a post on the message board

        Best of luck.

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        • ArielAnotheca has created a new message board discussion

          Hello, So Rico had a great MRI this past week, showing a stable environment with only one spot growing very slowly. He received Gamma Knife last Wednesday to nip it in the bud. I was so relieved that I could finally take a breather....it looked like we could rest easy for awhile. No. Rico went from being able to walk, to only being able to stand, to not being able to stand at all in a matter of three months. He is ...

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          • ArielAnotheca has replied to a post on the message board

            My boyfriend has experienced almost complete paralysis on the left side, mainly due to long term radiation side effects. He did have a severe bought of edema last year that caused paralysis of his left side but after being put on heavy steroids, he gained most of it back. Now, however, he is almost bedridden. Not sure if he will come out of it....I hear the long term radiation effects are mostly permanent. So we will...

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            • ArielAnotheca has replied to a post on the message board

              The NO knows what is going on and is confident in her answer. I tend to agree with her. She did also consult another Dr in FL (one who I have much respect for) and he said the same thing; radiation side effects with possible tumor effects. I have read about radiation side effects (long term ones) and my boyfriend has almost all of them checked off. I am just worrying, waiting for the next MRI to see what is happening...

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              • ArielAnotheca has replied to a post on the message board

                Hi Sarah, I don't think it is edema. He is not presenting other neurological signs that I have seen him present in the past when he had those issues. He is also already on 12 mg of dex, so it would have to be some serious swelling to cause his symptoms. His last MRI didn't show any swelling and he still was having the symptoms he is having now. His NO tends to think that his current condition is due to delayed radia...

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                • ArielAnotheca has created a new message board discussion

                  Hi again, We see Rico's NO in about 17 days and we need to be prepared to decide on other treatment options should the tumor be growing. Rico has been wary of doing any more chemo (we have been through Temodar and irinotecan) but his NO reminded us that BCNU was still on the table, though unlikely to work. I have been researching survivors of GBM for over a year now and one thing I've noticed is that a lot of longt...

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                  • ArielAnotheca has created a new message board discussion

                    Hello everyone, Rico is still with us and continues to try every day to beat GBM. He has had some severe symptoms plague him recently, apparently caused by the initial radiation treatment. Last MRI showed his tumor being stable with very minimal progression, but his symptoms are continuing to increase. He has fought paralysis on his left side since the beginning but is now confined to a wheelchair for the most part....

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                    • ArielAnotheca has replied to a post on the message board

                      Could you please do the same for me, Yunus?

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                      About arielanotheca

                      Brain Cancer

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