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atlambs's Recent CancerCompass Activity

  • atlambs has replied to a post on the message board

    My FIL has been in hospice care for a month now. Honestly, things are not much different than they have been. I can’t believe the slow decline. My FIL is incontinent now. He also is not having regular BMs, and when he does have one it is because a suppository was administered. His legs have atrophied tremendously. It’s very sad. He still has a lot of his wits about him. Lots of his quirks are still present, even thou...

    June 03 at 12:12 PM view post
    • atlambs has replied to a post on the message board

      Hi Joylu, I am so very sorry to hear about your dad. You are right, it does sound like we are on very similar timelines. I know what we are both experiencing is terribly sad, and some of the hardest days. My thoughts are with you and your family.

      May 25 at 12:58 PM view post
      • atlambs has replied to a post on the message board

        Just providing another update for any of those who may be following.  First, I did not update what happened in October when he suffered the brain bleed - he lost ability to move his right side and he lost his speech.  Anyway, it has been over a week since I last wrote in here. He has good days and bad days. On the good days, I find myself thinking we could have him here for several more weeks. On the bad ...

        May 13 at 12:23 AM view post
        • atlambs has replied to a post on the message board

          I am so sorry to hear about your brother's decline. How incredible that he has had 5.5 years! Though, I know that it never feels like enough.. This link has been circulating and is very helpful in knowing what to expect. It isn't a crystal ball, but in my FIL decline I have definitely seen some of these symtpoms for sure. http://www.btbuddies.org.uk/hospice-palliative-care/51-symptom-timeline.html I wish your fam...

          May 05 at 7:58 PM view post
          • atlambs has replied to a post on the message board

            Hi Dave - Thank you SO much for posting this timeline. This has been so helpful for me over the last couple of weeks. As everyone on here says, all GBM patients have different journeys. I will now like to share mine: In August 2014, my FIL was found unconscious outside. He was taken to the ER, a CT was done... everything checked out normal and the doctors said maybe he was dehydrated or overheated. Honestly, that n...

            May 03 at 8:42 PM view post
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