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augustus's Recent CancerCompass Activity

  • augustus has replied to a post on the message board

    Aquaphor is good. I also was prescribed Prutect, but ended up using the aquaphor the most. If your team is not giving you a lot of this information, get them involved. We went in each meeting with a notebook of questions and took notes from them to refer to later. They also provided useful handouts. 

    July 09, 2018 view post
    • augustus has replied to a post on the message board

      If I have a reoccurrance, I would try the immonotherapy if they are reasonably confident about its success. But for the first time , I couldn't say. (I wish there was a viable option to avoid the radiation too. ) I had a lot of difficulty with chemo and was given several types because of reactions. Radiation was even tougher. But the most imporatant reaction, killing the cancer, was achieved too. The radiologist take...

      July 04, 2018 view post
      • augustus has replied to a post on the message board

        I occasionaly get a mouth sore or two, usually on the tongue. I use a good mouth wash and it goes away soon. I hope that is what you are experiencing. 

        May 12, 2018 view post
        • augustus has replied to a post on the message board

          You've come a long way, Princess. I was in a similar spot where you are at 6 months. It gets a little better with each passing month. I am 3.5 years out and last night I had one of my best meals post treatment. Semi-spicy Mexican food that I would not have had a chance of eating 3 years ago.  My wife still cooks a lot of casseroles, but it is getting better. I have found that a little spicy foods seems to stimul...

          April 05, 2018 view post
          • augustus has replied to a post on the message board

            I am a little over 3 years out. It is a lot better, but still not where it was before. Spicy foods, while a lot hotter than they were previously,  help stimulate my taste buds. 

            March 06, 2018 view post
            • augustus has replied to a post on the message board

              I developed a food aversion. Mine was purely psychological. It is called The Garcia effect. I read up on it and eventually got over it.  The smell of food and thought of eating made me nauseous like the chemo and radiation treatments did. I knew it was in my mind which made it a little frustrating. But like the claustraphobia with the mask, it's just another bump to get over.  The sensitivity to things...

              January 13, 2018 view post
              • augustus has replied to a post on the message board

                Congratulations! I am 3 years out and expect it to be normal from now on, but that first year is a very important milestone! 

                October 31, 2017 view post
                • augustus has replied to a post on the message board

                  I was treated at MD Anderson and would recommend a second opinion there, Couldn't hurt. It is an amazing place. 

                  August 28, 2017 view post
                  • augustus has replied to a post on the message board

                    Of all the obstacles, mucus is as big as they get. I couldn't go anywhere without a small trashcan and a box of Kleenex. Or two.  I used Mucinex some, but it only helped a little. My wife also put a dehumidifier in my room. She stayed upstairs of the house we were at and I slept downstairs in a single bed. I was too weak for the stairs and plus we thought she might get more sleep. Probably didn't, though. I was ...

                    August 25, 2017 view post
                    • augustus has replied to a post on the message board

                      Yay! Each day is the most important. That is the main thing I learned when I went through it 3 years ago. Mine was also stage 4 and I am working and doing well today. You've got this.

                      August 16, 2017 view post
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