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avilan7's Recent CancerCompass Activity

  • avilan7 has replied to a post on the message board

    Hi, I am also a carcinoid clubber and am seeing Dr. O'Dorissio at the Univeristy of Iowa.  He is running a clinical trial using the same medication treatment they use in the Netherlands.  If you have the money, you could also get this treatment in Houston, TX.  It certainly isn't as exciting as going to the Netherlands, but I don't have the energy for that type of excursion right now.   Facts abo...

    October 12, 2015 view post
    • avilan7 has replied to a post on the message board

      Hello, I am new to this board, but wanted to share my story, as it is similar to your husbands.  My local doctors were not going to treat my carcinoid tumor as aggressively as I wanted, and I looked elsewhere after the first meeting.  I am certainly glad I was proactive!! The second team I worked with was at the University Wisconsin- Madison.  The surgeon removed two primary tumors in my small intestin...

      October 12, 2015 view post
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