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bambi99d's Recent CancerCompass Activity

  • bambi99d has commented on a news story

    My Mom had this treatment in 2011 - it's not new. I'm guessing the trials for this are now being published. 

    August 16 at 4:25 PM view news story
    • bambi99d has replied to a post on the message board

      Thanks for the reply. It's interesting because I took my Mother to Johns Hopkins in March of 2011 to their clinic. When I brought up the NanoKnife they completely disregarded it and blew it off. She went to have the procedure at another hospital. It's a bit ironic they are now using it for PC 5 years later. 

      January 21, 2016 view post
      • bambi99d has replied to a post on the message board

        Are they performing the NanoKnife at Johns Hopkins now? 

        January 07, 2016 view post
        • bambi99d has replied to a post on the message board

          It’s very scary. My sister and I don’t know what to do about screening. There’s not a reliable cancer screening right now. The only thing is a CT scan or blood test to test for CA-19. Both are not very accurate since the tumor often does not show up on a CT scan until it’s advanced. I pray within the next 10 years they discover an accurate screening test. Johns Hopkins has a family tumor regis...

          June 15, 2015 view post
          • bambi99d has replied to a post on the message board

            Laura, My heart breaks for you. You’ve been through so much trauma in a very short amount of time. I’m your age and my Mom was 56 when diagnosed and 57 when she passed. She had Stage III locally advanced P.C in the head of the pancreas without an distant spread. I’m not a medical professional but it sounds like the cancer was effecting all of your mothers systems. From the mountains of research I&...

            June 12, 2015 view post
            • bambi99d has replied to a post on the message board

              My mother was 55 when she was diagnosed with Stage III PC in November 2010 and my sister and I were in our 20’s at the time too. I know how difficult it is to deal with being so young yourself. The chemo affects everyone differently. Since your Mom is younger and doesn’t have pre-existing health problems they will probably treat her aggressively. My Mom was on a few different chemos and tolerated them fai...

              May 20, 2014 view post
              • bambi99d has replied to a post on the message board

                I’m sorry to hear about your Mom. My Mom had sepsis from her first stent. Then 2 weeks later had gallbladder attack. Her gallbladder became infected and they placed a drain outside the body. A interventional radiologist places a tube into the gallbladder and the bile drains into a bag. It’s a bit gross at first (looks like green slime) but we got used to it. You need to empty the bag 1-2x per day depend...

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                • bambi99d has replied to a post on the message board

                  That’s good news that they weren’t any cancer cells found. Unfortunately my Mom’s ascites was never resolved. She passed away last year. She had the fluid for almost a year. One of the doctors did mention putting in a shunt but she wasn’t strong enough for the surgery. The other option is to put in a drain where you can drain the fluid at home yourself. I also think a large part of her problem...

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                  • bambi99d has replied to a post on the message board

                    Sounds like you have ascites. My Mom had this for almost a year after her surgery. After an endoscopy the doctor determined it was caused by portal vein occlusion. I know the ascites made her extremely uncomfortable. She was tapped every 10 days at some points and then would go months without being tapped.     Has the fluid been tested for cancer cells? The doctor can tell you if the f...

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                    • bambi99d has replied to a post on the message board

                      I took my Mom to Dr. Bruckner in December of 2011. He gave us very high hopes at our meeting and said her PC wasn’t all that bad. She was diagnosed in November 2011 and the cancer was shrunk and grew back but it was still local so he wanted to keep it that way.   She started treatment with him in January of 2012. His treatments are very harsh. She only tolerated two of them and was hospitalized. That was...

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                      About bambi99d

                      Caregiver
                      Pancreatic Cancer
                      Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Emotional Support, Alternative Treatments

                      My mother was diagnosed with locally advanced PC in November 2010. Although her cancer never spread she was unable to keep weight on and could no longer tolerate the chemo. She passed away in March 2012. I am happy to answer as questions about her treatment.

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