Loading...

barna's Message Board Messages

Loading...
Showing 1 - 10 of 10

Page 1 of 1

On Sep 30, 2012 7:09 AM dafsq wrote:

The results have come the lump was BENIGN.Thank "" target="_blank" rel="nofollow">http://BENIGN.Thank " target="_blank" rel="nofollow">BENIGN.Thank you so much all of you who had encouraged me and prayed for me. Thank you guys.

I'm so glad for you. What a relief!

On Sep 20, 2012 2:06 AM nemoss wrote:

Malignant breast tumors are NOT painful. The radiologist can tell from the ultrasound and mammogram if these lumps are suspicious.  If you want 110% peace of mind have the doctor send you for an MRI of your breast.  It is a simple screening, and it will see anything the size of a pin head. Push the doctor, he will send you for the MRI b/c of the breast pain.  Your medical insurance has to cover it.

Unfortunately, breast tumors CAN be painful.I had constant pain in my left breast and was diagnosed as having a triple negative metaplastic(not metastatic) tumor with a sarcoma. However, I will say that the mammogram and the ultrasound were suspicious and I was sent for a biopsy. I have also communicated with others with this diagnosis and they also experienced pain. I delayed getting a mammogram for several months after the pain started thinking that it couldn't be breast cancer because of the pain---I was wrong.

I was diagnosed with Triple Negative metaplastic carcinoma early 2008 and there are people that are 5-plus years out without a return. It took me over a year before I actually spoke to anyone else who had this because of its rarity. The National Cancer Institute will send you info from the Textbook of Rare Cancers if you request it from them and there is a website at http://www.metaplasticbreastcancer.org

Hope this helps! 

 

On 9/14/2009 sibling wrote:

Can anyone share an experience of the metaplastic cancer reccurrence in chest and underarm area ? My sister has a reccurrence for the 4th time in the same area. Just wondering if anyone could give me some information about if it can still be cured

 

As far as anything I have read in the numerous research papers/studies etc., metaplastic carcinoma continues to be treatable as long as it is in the original site even if it is a reoccurence.Hope this helps and good luck. 

(

 

On 12/27/2008 barna wrote:

 

On 12/14/2008 suzy2225 wrote:

 

On 12/13/2008 Rach01 wrote:

Hi there,

i live in Australia, am 35yrs old and was diagnosed with Metaplastic breast cancer earlier this year. I had a full mastectomy and axillery clearance. I have finished chemo and have to have follow up breast scans every 3 mths. I had the highest level of the metaplastic cancers. My concern now is that I am wanting to know if anyone has this cancer and if they have remained cancer free since operation. Or is recurrance has happened, how far between was it. I would love to talk to someone who had this type of cancer as it is different to normal breast cancers.

cheers


You have to try to go on and live your life without looking over your shoulder.  Try not to waste time worrying about what might happen and have fun.  Those quarterly tests work against that but don't look beyond next Sat. night.  Plan some fun for then.  I'm 12 years out and it took me a long time to stop worrying.  I'm not in the clear but I now see the docs every 6 months and go for the chest, abdomen & pelvic scans every 2 years.  Every case is different -- try not to stop living because you fear what could go wrong.


 


 

I was diagnosed with metaplastic spindle cell carcinoma that is triple negative last year and was happy to see someone 12 years out that had been diagnosed with this. Did you have a mastectomy, chemo or radiation as treatment?  Did you follow any specific diet after treatment? How many cm. was your original mass?  Any information you could give me would be greatly appreciated.  Thanks!

 

On 12/14/2008 suzy2225 wrote:

 

On 12/13/2008 Rach01 wrote:

Hi there,

i live in Australia, am 35yrs old and was diagnosed with Metaplastic breast cancer earlier this year. I had a full mastectomy and axillery clearance. I have finished chemo and have to have follow up breast scans every 3 mths. I had the highest level of the metaplastic cancers. My concern now is that I am wanting to know if anyone has this cancer and if they have remained cancer free since operation. Or is recurrance has happened, how far between was it. I would love to talk to someone who had this type of cancer as it is different to normal breast cancers.

cheers


You have to try to go on and live your life without looking over your shoulder.  Try not to waste time worrying about what might happen and have fun.  Those quarterly tests work against that but don't look beyond next Sat. night.  Plan some fun for then.  I'm 12 years out and it took me a long time to stop worrying.  I'm not in the clear but I now see the docs every 6 months and go for the chest, abdomen & pelvic scans every 2 years.  Every case is different -- try not to stop living because you fear what could go wrong.


 

Thank you so much for taking the time to reply to my message---it's comforting to know there are others out there with this that are O.K. I was at radiation when you replied--I have 8 more to go. I still have  peripheral neuropathy  from the taxol treatments that followed adriamycin and cytoxen but am very hopeful that I will remain cancer free for a long, long time. Like you I appreciate each day. Best of luck to you and thanks again!

 

On 10/2/2008 motherdear wrote:

If you are out there and have Metaplastic HER-2 please say Hi we are little fish in a big sea. Maybe we can all swim together and "school" each other.  I will repeat my plight each time I describe my diagnosis to someone they attempt to correct me saying you mean Metastatic. And with that being said I have to brief thatindividual on our rare breast cancer.

 

Please let me hear from you


 

Hi,I was also diagnosed with metaplastic carcinoma but triple negative back in March 2008. I have also been corrected several times even by doctors that I should be saying metastatic. It was very difficult for me find anyone with this---it took three months. I just completed chemo TAC this week and will start radiation on Oct. 22. My mass was 1.3 cm. and I had a lumpectomy in February.  I know this is an aggressive one but hope for the best for all of us. Keep in contact---you are definitely not alone!

 

On 6/3/2008 jean60 wrote:

I hear you and know you are worried and cannot get a lot of information about Spindle Cell.  I had a 3.2 cm removed in Jan. 2003 and I am doing wonderfully.  It has now been over 5 yrs.  I have done as much reading as I could find and I've concluded that this type of cancer {If you were having cancer} is the least invasive.  Unfortunately it is very rare and any studies on it are few and mostly incomplete.  You will be fine.  Just keep thinking positively and you will live a LONG time.

 

Jean

Dear Jean, I am extremely happy to hear from someone else who has this form of cancer. The original group of medical and radiation oncologists only recommended radiation. Then I went for a second opinion and chemo was also recommended. My mass was removed in February 1.3 cm with clear margins, triple negative. The sentinel node bx. was done a month ago and was negative. Due to having only one kidney and an inability to tolerate the decadron without having arrythmias, chemo hasn't started and I'm not so sure that it will. Adriamycin, cytoxin and taxol were recommended . Since I still haven't started any treatment including radiation (I had a lumpectomy), I'm beginning to think I should just get radiation and hope for the best. What chemo agents did you get and how long after surgery did you start chemo? Did you have a mastectomy or a lumpectomy? Did you also get radiation? Most of the studies I've read suggest that chemo isn't proven to work for this cancer which really doesn't make me want to risk the possible side effects. And naturally I'm terrified to make the wrong desicion. Any input from somebody who went through this is greatly appreciated  and goes a long way in keeping my spirits up. Thanks so much for responding to my oroginal message and giving me some hope. I'd love to hear from you again. 

  Ruth

 

   Has anyone been diagnosed with metaplastic spindle cell carcinoma of the breast and had no further mets? Has anyone found a treatment site with an increased rate of survival after treatment? Is there anyone out there that has survived ten or twenty years after diagnosis?

    I was recently diagnosed with this and have been unable to find positive statistics and would love to hear from anyone who has some.

Showing 1 - 10 of 10

Page 1 of 1

Loading...

About barna

Patient
Other Cancer

We care about your feedback. Let us know how we can improve your CancerCompass experience.