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bdana's Recent CancerCompass Activity

  • bdana has replied to a post on the message board

    Hi GiuseppeG, I was diagnosed with a Grade 3 anaplastic astrocytoma in an inoperable area. I had a biopsy and the standard treatment. I was diagnosed in August, 2013 and have had no recurrence. The most reassuring thing I heard was from my radiation oncologist.  He told me that his goal was to get me from life-threatening situation to a place where I would be living with a chronic condition - pretty much like d...

    April 25 at 5:25 PM view post
    • bdana has replied to a post on the message board

      Hi mrandle, I had radiation and chemo a little over three years ago and my hair is still not right. I lost hair in the areas that were radiated. It came back but is much thinner and I seem to go through some pretty major shedding at times. I can see new hair coming in at the thin areas and when I see the hair I lose every day, there are baby hairs along with longer hairs. I can pluck a hair out of areas of my scalp ...

      November 29, 2016 view post
      • bdana has replied to a post on the message board

        I tried acupuncture towards the end of my chemo three years ago. I am allergic to the anti-nausea meds I so I gave accupunture a try three months into the six months of 5 days on/23 days off temodar. I wished I had tried it sooner. It wasn't a miracle worker but with each acupunture session, I seemed to tolerate the nausea better. I also had some spicy ginger candy from Trader Joe's that seemed to help settle my stom...

        November 07, 2016 view post
        • bdana has replied to a post on the message board

          Hi Liz, I am considerably older than your son and I was diagnosed with AA3 in August, 2013. My tumor is inoperable and I received the standard radiation and chemo with an additional 6 months of 5/23 days on/off chemo. I had an MRI on Monday and it showed no progression. It is normal to be scared, worried, fatigued, and depressed. Anti-depressants can be a temporary aid in fighting back. My radiation oncologist told ...

          July 29, 2016 view post
          • bdana has replied to a post on the message board

            Dodger, you are truly an inspiration! Thank you for your posts. Take care. Belinda

            July 19, 2016 view post
            • bdana has replied to a post on the message board

              I have grade 3 astrocytoma; the tumor is in the thalamus. The thalamus is kind of like the body's thermostat. Sometimes when it is quite hot and I am outside, I will get cold and have to put a sweater on. I can be outside in the winter and waiting for the train on those cold mornings and have to unzip my coat because I get too hot. I think it is a symptom that I will just have to deal with. I don't know if there is a...

              June 16, 2016 view post
              • bdana has replied to a post on the message board

                I too have an inoperable tumor in my thalamus. Running into things may be a symptom of vision problems; your brain may be blocking input from the eye on the opposite side of your tumor. The thalamus sits behind the optic nerve chiasm (where the separate optic nerves from the eyes come together in the brain). Besides insisting on your doctors taking you more seriously, I would make an appointment with an eye doctor as...

                January 15, 2015 view post
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