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billscampbell's Message Board Messages

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RE: Anyone there?

by billscampbell - June 15 at 5:17 PM

Susan,

I don't post too often--my situation is a bit different: surgery through the mouth and no radiation or chemo.  I'm now six years out and the ENT and surgeon consider me cured.  I have a slightly paralyzed tongue, but it doesn't interfere with speech.

I'm responding because I often check the site out to see if I can help anyone, and always appreciate your responses.  You have helped many who have gone through what we have.  You are to be congratulated for your faithfulness to checking the site and responding whenever you can help.

Bill

I had my tonsil tumor removed--there was no cancer in the margins and no lymph nodes were affected, so I chose not to do radiation or chemo (based on discussions with my surgical oncologists).  I'm now 6 years out, and my doctors consider me "cured."  So, make sure you seriously discuss with your doctors whether your husband needs the radiation or not.  Best wishes!

RE: tonsil cancer afraid..

by billscampbell - January 04 at 9:01 PM

Hi I am 5 years out and my doctors have declared me cured. That means my life expectancy is the same as any other male. I had surgery, but no radiation or chemo. So there are many different ways to treat the cancer. Go to the best doc you can find and get him/her to go over all of your options. But try to relax because your cancer is totally treatable.

RE: 5 Years Clean

by billscampbell - July 19, 2018

Congrats, Mark!  I just reached 5 years, too, and the doctor told me that there was practically no chance of it returning to my tonsils.  He even used the other "C" word (viz., cured).  Not sure I'd go that far, but chances are slight of it returning.

Bill

On Jul 19, 2018 1:00 PM jkohio wrote:

My husband was recently diagnosised with Cancer on the Right Tonsil. He had not shown any signs of being ill, normal checkups, blood work etc. when a lump appeared on his right neck. An ENT performed a needle biospy revealing squamous cell cancer and we were referred to a specialist. Upon out first visit, the dr scoped his nasal cavity and throat and could not see "the primary". So a pet scan was ordered and a surgical biopsy. The pet scan showed a very vague area of activity on the right tonsil only. The dr then biopsied the right tonsil, and in fact they found the culprit. 

So the next steps the dr suggested was removal of right tonsil and left as a precaution and a neck dissection to remove the lymphonode(s) (amount unknown until surgery).

He said at that point he would determine what if any radiation therapy would be needed. 

Has anyone else had surgery before radiation? I am seeing a lot of post in which many seem to not being doing surgery but radiation first... I am very concerned that perhaps we are not taking the right steps.

I would appreciate any input or experiences any of you or your loved ones may have had.

I had the tumor removed surgically, and when the doctors found no cancer in the margins or in the lymph nodes, they did not even recommend radiation or chemo.  I'm 5 years out and NED!

Bill

RE: Peg tube

by billscampbell - June 21, 2018

SMP,

My local ENT just pulled mine out.  Sort of a strange sensation, but no pain.  I can hardly tell where it was now (4 1/2 years later).

RE: Peg tube

by billscampbell - June 21, 2018

SMP,

My local ENT just pulled mine out.  Sort of a strange sensation, but no pain.  I can hardly tell where it was now (4 1/2 years later).

On May 07, 2010 1:36 AM LucysMom wrote:

I have been diognosed with stage 3 cancer of the right tonsil.  They are recommending radiation, but I am reading all the discussion and really asking myself, what am i doing"  You are all troopers for your effort in finding answers to your cancer.  I am leaning to the road of NO radiation or Chemo.  From personnel experience, please tell me your thoughts.

I had right tonsil cancer five years ago.  I had surgery.  The doctors found no cancer in the margins or in the lymph nodes and did not recommend radiation or chemo.  At my five-year follow up, my ENT told me that there is practically zero chance that the cancer will return.  So, it depends on what the surgeons find when they operate (I assume you're having surgery to remove the tumor)--if the cancer has spread to lymph nodes and/or margins, your doc may recommend radiation and chemo.  If not, then perhaps you can skip them. 

On May 07, 2010 1:36 AM LucysMom wrote:

I have been diognosed with stage 3 cancer of the right tonsil.  They are recommending radiation, but I am reading all the discussion and really asking myself, what am i doing"  You are all troopers for your effort in finding answers to your cancer.  I am leaning to the road of NO radiation or Chemo.  From personnel experience, please tell me your thoughts.

Whether to have radiation and/or chemo depends on what they find when they remove the tumor (I assume you're having surgery).  In my case (right tonsil and base of tongue), the margins were clear and there were no lymph nodes involved, and so my surgeon did not recommend rad/chemo.  I'm five years out and have had minimal side effects.  I wish you the best during this difficult time.

I'm 5 years out from tonsil cancer.  After surgery (no radiation or chemo), my epiglottis would not close.  I did about 4-5 months of speech therapy and that solved the problem.  Now the only side effect is a partially paralyzed tongue from the surgery, which has only slightly affected my speech.

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