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bizzerbee's Recent CancerCompass Activity

  • bizzerbee has replied to a post on the message board

    Thank you for responding. May I ask if you were able to conceive naturally or did you do IVF? I wish I could find some stats on his odds of being infertle. It would be so hard to find the money for IvF and if we knew we had a good chance he will be fertile again then waiting would be easier. It sucks that there is so little information on the subject.

    February 10 at 1:39 AM view post
    • bizzerbee has replied to a post on the message board

      Hey BT mama, My heart hurts for you. My husband has an AA3 and I am struggling to accept his fate. He is such an amazing human being and his presence in the world has a far greater impact than mine. I too wish it were me and not him. If it was my son it would absalutely break my heart. Be strong mama and know that it is also in your right to let the facade down every once in a while. It is good for your other childr...

      February 08 at 4:53 PM view post
      • bizzerbee has created a new message board discussion

        Hello, I have a question and I cannot find solid information online. Was hoping maybe I could at least get personal stories here.  My husband was diagnosed with AA3 in May. He had a gross total resection and is about to start cycle 7 of maintence. We were only able to bank a small about of sperm prior to treatment. We have tried 6 rounds of iui and each has failed. We are now faced with the decision to save ou...

        February 08 at 2:57 PM view discussion
        • bizzerbee has replied to a post on the message board

          5 years is a big deal! That is so great that you are doing so well. When my husband was diagnosed it really knocked me sideways. He is young, was 31 at diagnosis. We have a little boy. Somedays when I read others sucesses I begin to have hope for our future. Other times I am still filled with such worry and sadness. Brain cancer seems so different from other cancers. So much uncertainty from month to month. Anyway, ...

          November 15 at 1:41 PM view post
          • bizzerbee has replied to a post on the message board

            There are a bunch of Glioblastoma groups on facebook. I would join and ask on there as well. I just know I have seen people posting about being on disability and SS with the same and lesser diagnosis as you. Because this type of cancer is considered "incurable" and remission is not a term the doctors use I do not see why you would need active tumor growth to be approved. Seriously, I really think you need to push the...

            November 14 at 1:56 PM view post
            • bizzerbee has replied to a post on the message board

              If I was you I would locate a cancer support group in your area. One like Gildas Club. They tend to have people that are trained in helping with these types of situations. I am totally suprised you were denied. I know other who have AA3s which has a slightly better prognosis and they are automatically granted social security. Find someone to help you. You should not be struggling to make ends meet and not getting sca...

              November 13 at 3:47 PM view post
              • bizzerbee has created a new message board discussion

                Hi, I joined this board back in May when my husband was first diagnosed with AA3. I literally went back and read almost every Astrocytoma post ever made on this board. I read A LOT of your posts and they were a beacon of home. Then I realized that you had not posted in a while and I began to worry about you. Seeing that you posted this month and that you are five years out and doing well just made me so glad. I know...

                November 13 at 3:43 PM view discussion
                • bizzerbee has replied to a post on the message board

                  Now that he is done with maintene is he less foggy and tired? I am hoping that it is just chemo/treatment and not his forever norm. He used to love to boulder climb in the gym but hasnt in months since he just has no extra energy to work out. 

                  September 20 at 6:44 PM view post
                  • bizzerbee has replied to a post on the message board

                    Hey, My  husand is also doing really well. We were on summer break during radiation so my husband did not need to work but now the school year has begun and he is back in the classroom full time. He is definitly more fatigued than he used to be and often feels like he has hit a wall. He did one round of maintence chemo and it went really well he had no nausea just some tiredness by day 5/6. We have not had our ...

                    September 19 at 1:04 PM view post
                    • bizzerbee has replied to a post on the message board

                      My husband is also IDH1 mutated but was not co deleted or methylated. Did you already do radiation?

                      August 04 at 1:53 PM view post
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