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bnelson's Recent CancerCompass Activity

  • bnelson has replied to a post on the message board

    He was in the clinical trial in Bethesda, Maryland. National institute of health. Opdivo is approved for lung cancer. They stopped his treatment in august.

    October 15, 2016 view post
    • bnelson has replied to a post on the message board

      Don't be sorry for asking. Cabo/nivo I think worked some a little for my dad, but not enough. Cabozantinib was started at 60mg. He had a lot of fatigue. Nivolumab (opdivo) gave him low magnesium and phosphorus. Otherwise he continued to work, running his own plumbing/electrical business and traveled acrossed the US every 2weeks to Bethesda, MD from Montana. There are 2 other urachal patients in the study. Tha...

      October 15, 2016 view post
      • bnelson has replied to a post on the message board

        Thx for your reply. He has had some genetic testing. I'm with you I think he got worse on the immunotherapy. He was on Cabo/nivo. Which of the treatments do you feel worked the best? Did they use in combination with 5FU or xeloda? My thoughts and prayers are with you and your husband. Bonnie

        October 11, 2016 view post
        • bnelson has replied to a post on the message board

          Can you tell me what 3 different clinical trials your husband has been in. My dad has been battling this horrible disease for 6.5 years. This past year has been a tough one. He did join a clinical trial in Bethesda, MD at the NIH hospital from March 2016 to august 2016. Treatment didn't work on him so they stopped his treatment. I'm desperately looking for another trial or treatment protocol for him. He is slow...

          October 10, 2016 view post
          • bnelson has replied to a post on the message board

            We are in Montana.  He had debulking surgery, cytoreduction, small bowel resection, greater and lesser omentectomy, splenectomy, diaphram stripping, appendectomy, cholecystecomy and HIPEC with mitomycin-C on 3/28/2011 in Seattle, WA at University of Washington.  Dr. Gary Mann performed the surgery.  How is your dad doing?  I have you in my thoughts and prayers. 

            January 13, 2016 view post
            • bnelson has created a new message board discussion

              I have been reading about all your medical experiences during this horrible urachal cancer dx. I don't get on this site often. I'm looking for help/advice. My father is 68 yrs old dx with urachal adenocarcinoma 4.5 yrs ago. He has had 2 surgeries, HIPEC, cisplatin x 6 cycles, xeloda, avasitin and xeloda and most recently erbitux. He has done well until recently when he developed abdominal pain and slight weight loss....

              January 13, 2016 view discussion
              • bnelson has replied to a post on the message board

                Hi vtoole, I have been reading about all your medical experiences during this horrible urachal cancer dx. I don't get on this site often. I'm looking for help/advice. My father is 68 yrs old dx with urachal adenocarcinoma 4.5 yrs ago. He has had 2 surgeries, HIPEC, cisplatin x 6 cycles, xeloda, avasitin and xeloda and most recently erbitux. He has done well until recently when he developed abdominal pain and sl...

                January 13, 2016 view post
                • bnelson has replied to a post on the message board

                  Does anyone have cancer markers checked.  My dads CEA has started to rise, it is now 9.2.  Bonnie

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                  • bnelson has replied to a post on the message board

                    Hi.  My dad was diagnosis with urachal adenocarinoma in April 2010.  He had surgery in May 2010, then chemo (no effective).  Then Cyto-reduction and HIPEC on March 28, 2011.  Best option for this type of cancer.  My dad is 65 years old.  How is your son doing. Bonnie N Montana

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                    About bnelson

                    Caregiver
                    Colon Cancer, Liver Cancer, Other Cancer, Rectal Cancer, Bladder Cancer
                    Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diagnostic Imaging, Genetics, Side Effects, Surgery, Cancer Diagnosis, After Treatment, Biotherapy, Conventional Treatments, Hormone Therapy, Lifestyle, Photodynamic Therapy, Radiation

                    My father is 63 years old and has urachal mucious adenocarinoma. I am looking for other patients with this unusual rare cancer.

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