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bobarmstrong's Recent CancerCompass Activity

  • bobarmstrong has replied to a post on the message board

    Hi Erob72.  I know Dr. Taylor very well.  She was my NO at Virginia Mason Hospital in Seattle for many years.  I was diagnosed with Anaplastic Astrocytoma 3.  It was inoperable due to it's location in the left pariatal section of my brain.  I recieved five or six weeks of radiation and six three day chemo sessions that lasted around nine months with BCNU.  I  went ba...

    January 09 at 7:44 PM view post
    • bobarmstrong has replied to a post on the message board

      In my experience of 25 years with an anaplastic astrocytoma 3 I have found that things tend to move relatively slow in the brain.  I did not experience any siezures until 18-24 months after treatment.  Fortunatly they were light and infrequent.  You did not mention types of siezure medication.  I have been on carbamazipine (Tegretol) for many years.  A year ago I was offered Keppra as an...

      March 15, 2018 view post
      • bobarmstrong has replied to a post on the message board

        Is there any information about the location of the tumor?  Did the doctors say anything about a needle biopsy?  Even if surgery is not or can not be done some radiation might help to extend life for a while.  Without knowing exact location and type of tumor nothing can be done.  

        February 26, 2018 view post
        • bobarmstrong has replied to a post on the message board

          I had a few fairly minor issues, if anything can be considered minor in the brain.  I have had very minor siezures.  The don't stop me from doing anything that I want except things like airplane pilot, maybe CDL truck driver, I don't dive with air tanks but I do snorkel with a buddy where I live in Southeast Alaska.  I also had an issue with one of my eyes caused by the radiation.  One of the musc...

          January 17, 2018 view post
          • bobarmstrong has replied to a post on the message board

            It is interesting that you mentioned meditation.  I have made a couple of posts on this site.  I am a 24 year survivor of aa3.  Very early in my radiation treatment I would visualize the wicked witch of the West melting after the bucket of water was thrown on her in the Wizard of Oz movie.  I was certainly not expecting to have any effect on my treatment but something to do while being v...

            January 17, 2018 view post
            • bobarmstrong has replied to a post on the message board

              You may have seen my short posts a month or two ago.  I am a 24 year survivor of anaplastic astrocytoma grade III in my left parietal region.  My treatment was BCNU infusions three days every 6 to 8 weeks and radiation for 6 weeks at Virginia Mason hospital in Seattle with no surgery.  The head of my treatment team was Dr Lynne Taylor who is now head of the Nuero-oncology department...

              December 15, 2017 view post
              • bobarmstrong has replied to a post on the message board

                My nuroloigist wanted me to start keppra after 24 years with  an astrocytoma.  I checked a few internet sites and told her that I would not take it.  The reletavely minor issue I was having are gone and everything back to my normal.  I hope it stays that way.

                November 10, 2017 view post
                • bobarmstrong has replied to a post on the message board

                  I just foud this site.  I too am a long term survivor of 24 years with a grade 3 astrocytoma.  I had no surgery, six weeks of radiation and six injected treatments of BCNU over a period of about nine months.  Reading some of these posts it seems that treatment has changed a bit.  I just want to say that there is hope!

                  November 04, 2017 view post
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