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bruce63's Recent CancerCompass Activity

  • bruce63 has replied to a post on the message board

    THE PEG IS AN EASY AND QUICK SOLUTION THAT WILL AID YOU THROUGH THE TREATMENT AND RECOVERY. YOU TASTE BUDS WILL SHUT DOWN, YOU HUNGER WILL DISAPPEAR, AND YOUR THROAT WILL REALLY HURT. I CAN REMEMBER THAT A SMALL OXY5 FELT LIKE TRYING TO SWALLOW A BOULDER. THE PEG DOES NOT HURT TO USE AND WILL TAKE THE STRESS OFF YOUR THROAT. BRUCE

    September 12, 2017 view post
    • bruce63 has replied to a post on the message board

      HI, WHEN I BEGAN MY TREATMENTS MY DAUGHTER WHO IS AN RN INSISTED I HAVE THE PEG INSTALLED PRIOR TO TREATMENT. IT WAS A GREAT CHOICE. THE PEG HELPED ME INGEST THE PROTEINS I NEED TO CURB THE EFFECTS OF ANEMIA. I DID LOSE QUITE A BIT OF WEIGHT BUT WAS ABLE TO KEEP MY STRENGTH UP. 35 DAYS OF TREATMENT, 2 MAINE BLIZZARDS AND NEVER MISSED A DAY. I KEPT MY PEG IN FOR 10 MONTHS. IF YOU USE A PEG A RECLINER IS A GOOD CHOICE...

      September 12, 2017 view post
      • bruce63 has replied to a post on the message board

        As I may have mentioned. I had BOT stage 4a 7 years ago. The greatest help I had along with a great medical team was the support from this blog. Sinse then I ave been active on the blog to help others and have even coached a fewthru the treatment process. Just ask any question no matter how foolish you think it may be. You will always get an answer. The most comforting about this blog is that it helps greatly allieve...

        September 09, 2017 view post
        • bruce63 has replied to a post on the message board

          Yes, I will always be here. My original diagnosis was by my local doctor from a CT scan. It was later biopsied by my ENT. I was fortunate to have a dream medical team from 3 separate hospitals. Bruce

          September 09, 2017 view post
          • bruce63 has replied to a post on the message board

            i had BOT 4a seven years ago. what was diagnosedas the size of a bb was the size of a grape by the time I received treatment. My treatment was agressive and I was also agressive with my care> become an active part of your medical team. If you have any strange senses during the chemo especially let the team know. There is treatment for most reactions of chemo. I was lucky that I never got sick but anemia did kick m...

            August 25, 2017 view post
            • bruce63 has replied to a post on the message board

              Hi Tig, Sounds like you're the hill but had one hell of a view. I am 6.5 years out of treatment. I was stage 4a and had 70 rads and 10 days of chemo. The cancer disappeared quickly and all the test results went well. Pain went away quickly, taste returned within 6 months. The chemo left me with neurapathy that forces me to retire several years ago. There are a few things I can't do anymore but I can relish in what I...

              June 01, 2017 view post
              • bruce63 has replied to a post on the message board

                I am so sorry to hear of your mother's plight. I had stage 4 base of tongue cancer 6 years ago, i hd ear pain, speaking issues and sometimes a sore throat. I'm in maine and went to ccoa in philadelphia but ended up choosing a cancer center right here in maine. They co-ordinate with the larger cancer center in mass and md anderson. I chose a radial form of chemo/radiation. I had ten days of chemo and radiation twice a...

                January 27, 2017 view post
                • bruce63 has replied to a post on the message board

                  Hi, Sorry to hear about your father's issues with the mask. I can relate as many others on thius site. I paniced on day one and had to have a discussion with my team before continuing. I had fractional radiation which required 70 sessions. I slowly was able to tolerate the sessions. The first trip down panic city was that i couldn't open my eyes and could not breath though my nose. Mouth breathing just exasperated m...

                  December 16, 2016 view post
                  • bruce63 has replied to a post on the message board

                    Sorry to gear that you've joined the group. I was diagnosed 4a base of tongue cancer in 2010. I am now cancer free. As a type diabetic I was concerned about carbs so my diet consisted of muscle milk, V* juice and lots of water. I did lose 50 pounds during the process but I needed to lose some anyway. I ate everything and anything til my 3rd week. After the 3rd week I ate because I had to. All food tasty lousy and the...

                    August 29, 2016 view post
                    • bruce63 has replied to a post on the message board

                      To this day I still have an indentation where the peg was. I don't worry about it. I am far from a bathing suit model. Because of my prepensity for basal cell cancer I am never shirtless anyway. One of my doctors actually believed the sword play story. Humor is a large part of my life. A female freind went with me to a check-up. On the way I told her that the doctor would tell me to stick outmy tongue. He would then...

                      July 15, 2016 view post
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                      About bruce63

                      Patient, Survivor
                      Tongue Cancer
                      After Treatment, Cancer Diagnosis, Cancer Treatments, Chemotherapy, Conventional Treatments, Diet, Insurance, Radiation, Supplements

                      TWO YEARS OUT OF TREATMENT AND ALL IS WELL CONSIDERING THE TREATMENT OF FRACTIONAL RADIATION OF TOP OF 10 CHEMO DAYS. CANCER IS STILL GONE AND ALL I HAVE LEFT TO DEAL WITH IS NEUROPATHY FROM THE CHEMO AND DRY MOUTH, OF COURSE.

                      I'VE BETTER LEARNED THE IMPORTANCE OF CANCER COMPASS AND THE SUPPORT IT OFFERS.

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