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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    The measurement of thyroglobulin is a first line defense to monitor for papillary/follicular thyroid cancer recurrence. Anyone who has had this type of thyroid cancer should have their Tg followed at least annually.  3 things should be lifelong after thyroid cancer: routine TSH monitoring annual ultrasound Thyroglobulin (Tg) & Thyroglobulin Antibodies (TgAB) every 6 - 12 months ,depending on disease st...

    Yesterday at 10:33 PM view post
    • butterfly501 has replied to a post on the message board

      But your Tg is only 1.6.  So something is being overlooked.  Do they think you have residual thyroid tissue that does not produce thyroglobulin?

      Yesterday at 4:56 AM view post
      • butterfly501 has replied to a post on the message board

        it's busy here, this overnight!  lol!!! mmm...BUMP! ;)

        Sunday at 11:54 AM view post
        • butterfly501 has replied to a post on the message board

          Can you share how the doctors were able to determine that you have radioiodine refractory thyroid cancer when you do not have distant mets, do not have Tg antibodies, and have a (reliable?) stimulated Tg of  ~1.6? There's nothing to ablate at that level.  How are they determining this?  I'm puzzled.  There must be some type of criteria the majority of us are not privy to, so if you could share t...

          Sunday at 9:41 AM view post
          • butterfly501 has replied to a post on the message board

            That's good news for you!  no antibodies in the face of hashi. You said your Dx was T3, so obvs. at 1 cm shouldn't have been classified as some kind of big goiter. Plus, you're only 32. Sorry docs made you feel bad about pressing further on your condition when first discovered. MDs aren't smarter than any patient, so we should all ask questions and get 2nd (3rd, 4th) opinions when necessary. Good for you wit...

            Sunday at 6:16 AM view post
            • butterfly501 has replied to a post on the message board

              You may want to find out what assay was used by which lab on your most recent Tg draw. Falsly low Tg happens with the prescence of Tg antiobodies, in case you haven't been told about this. good luck!

              Saturday at 10:16 PM view post
              • butterfly501 has replied to a post on the message board

                If you had hashimoto's thyroiditis then you most likely have thyroglobulin antibodies that can skew the Tg levels.  You'll want to make sure to get your Tg monitored with the correct assay and stick with the same lab & assay every time. A 1cm nodule is not large.  1 cm and less in low risk situations negates the need for I-131 ablation.

                Saturday at 10:08 PM view post
                • butterfly501 has replied to a post on the message board

                  Your stimulated Tg was 1.6 prior to ablation?  No wonder you have 0.1% activity.  There's barely a thing to ablate. I'm sure you'll do just fine.  Your Tg level is outstanding. Be well!

                  September 20 at 12:13 AM view post
                  • butterfly501 has replied to a post on the message board

                    Did they measure your Tg level prior to RAI?

                    September 19 at 9:47 PM view post
                    • butterfly501 has replied to a post on the message board

                      That's what it says on patient portal?  That seems highly unprofessional. A) I'd suggest you seek a second opinion. B) You had uptake.  Get the ablation from a reputable nuclear medicine md and take it from there. I-131 doses are recommended in smaller doses presently, the 30 mCi dose recommendation is nothing out of the ordinary. Tg readings do not require I-131 to be reliable.  Tg levels are view...

                      September 19 at 6:44 AM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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