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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    It really does not make any sense to me, how a center of excellence would first skip a gold standard FNA before thyroidectomy and second would recommend a lobectomy after finding a 6 cm confirmed papillary thyroid cancer.  It's such a substandard of care, especially in relation to the professional guidelines (with an author from Mayo) I'm nothing short of floored. You have a confirmed case of papillary thyroid...

    Yesterday at 7:36 AM view post
    • butterfly501 has replied to a post on the message board

      I'm sorry, I'm unclear.  You had a 6 cm nodule removed that was confirmed thyroid cancer and doctors at Mayo said you needed no further treatment or completed thyroidectomy???  That is shocking and quite disturbing from such a highly regarded institution. A Mayo clinic MD was on the task force that compliled the most recent professional guidelines for thyroid cancer management.  Color me shocked! Wi...

      Monday at 8:35 AM view post
      • butterfly501 has replied to a post on the message board

        Best to speak directly to your doctor, describing your specific diet choices.  If your doctor thinks following a low iodine diet is that important to your treatment outcome, then your doctor can take the time to supply you with specific low iodine diet recommendations tailored to your dietary choices. Good luck!

        Monday at 3:24 AM view post
        • butterfly501 has replied to a post on the message board

          Also, the same thing applies to the thyroglobulin antibodies.  The test can only measure down to 0.9, which is fine.  When antibodies are present, a specific assay needs to be used to get an accurate Tg reading.  TgAb skews Tg results.  If you don't have them (<0.9) then the assay used is not such a concern BUT the same assay by the same lab is recommeded for Tg measures.

          November 08 at 10:35 PM view post
          • butterfly501 has replied to a post on the message board

            lc-ms/ms is the assay that was used on the blood sample.  Your Tg is undetectable at <0.1 as that is as low as the assay can detect thyroglobulin.  Rarely, if ever, are test results on blood specimens 0.0.  They all have a threshold as to how low they can detect thyroglobulin (or whatever).  TSH is the same.  When the result is < (less than) then that result is undetectable.  For ...

            November 08 at 10:30 PM view post
            • butterfly501 has replied to a post on the message board

              Nah, my doctors are more concerned about the new car they just bought their husband.  LOL

              November 06 at 3:57 AM view post
              • butterfly501 has replied to a post on the message board

                I was under the impressin that SCC skin cancer was highly treatable and curable. It certainly has nothing to do with thyroid cancer.

                November 06 at 3:55 AM view post
                • butterfly501 has replied to a post on the message board

                  Totally unacceptable, for sure!  Especially with persisent thyroid cancer!  I have a whack-a-do endo who doesn't follow up with me, too.  I get all my labs and reports sent directly to me, she never calls me with results.  But I've been thyroid cancer free for years now.  So, I let it slide until I have the energy to find yet another endo.  I'm going to guess that you'll always have me...

                  November 06 at 3:38 AM view post
                  • butterfly501 has replied to a post on the message board

                    Is your endo with MSK or UPenn?

                    November 05 at 10:18 PM view post
                    • butterfly501 has replied to a post on the message board

                      You had the I-131 ablation just 6/7 months ago?  Stimulated Tg is at 1 year post ablation.  That is what is recommeded in the professional guidelines. So, you still have some months to wait and see how the Tg is behaving.

                      November 05 at 10:12 PM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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