butterfly501's Message Board Messages

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RE: Anaplastic Thyroid Cancer

by butterfly501 - March 27 at 12:14 AM

here is a direct link to the ATA professional guidelines.  Anaplastic thyroid cancer is very rare, so look over these guidelines before seeking a second opinion to make sure you're finding a well versed medical group/physician.


good thoughts to your father and you!

RE: Med Changes

by butterfly501 - January 11 at 4:12 AM

On Jan 09, 2020 1:03 AM Swifty wrote:

I received my second round of lab results after a TT November 5. Papillary, no lymph node involvement, clean margins, all in all a successful surgery they say.
TSH: 0.05 uIU/mL 0.34 - 3.00 uIU/mL
T4: 1.4 0.6 - 1.6 ng/dL
Thyroglobulin Antibody, S: 2.5 IU/mL <4.0 ng/dL
I think they messed up and didn't order the Thyroglobulin test. I heard from the Surgeon through the online portal and based on these tests they said not to worry about the antibodies because they are low. I have been feeling pretty good overall but they are lowering my Synthroid from 100 mcg to 88 mcg.
I wrote back and am waiting to hear why the change but wondered if anyone knows why they would do this? I thought these numbers looked good??

Because your TSH is too low.  ATA professional guidelines call for TSH lowest limit to be 0.1.

your TSH is probably too low, depending on your risk for recurrence.  And thyroglobulin should be undetectable (there is no "normal" category for Tg). 

If your doctor is lowering your oral thyroid dose, it is to raise your TSH level.  The oral thyroid dose change should not be drastic.  You may want to find out your target TSH.  if it's to .5 simply skipping a single dose or dropping it to 1/2 a dose should be good enough for that kind of change.


by butterfly501 - November 27 at 10:38 AM

Sounds like you should be on your chemo protocol, so just make sure you protect your children from your treatment.  This stuff is no joke. 

If you're in the US, ask your treating team about support services for your family.  They should have a person to assign to you to get you through this.

Also, speak with HR or the company managing your benefits.  You may have short term disability through your company which should have kicked in with your FMLA filing.  Soc. security also has fast tracked benefits for certain disease/illness.  Check to see if yours qualifies.

Good luck!


by butterfly501 - November 25 at 3:43 AM

You'll have to pump down (and dispose of the milk appropriately) you can't just stop breastfeeding.  And you can't BF while receiving treatment.  Your child is going to have to adjust, because it's more important to have a healthy mother than it is to continue BF. 

Your daughter will have to adjust to new sleep arangments.  And she will.  It may not be easy, but it has to be done.

You'll have to get a primary caregiver for your child during your treatment and recovery.

My husband took on the duty for the time I was doing I-131 ablation and our son was 18 months old.  It's not easy, but it is necessary.

Good luck!

Go home.

Someone will have to care for your kids for a week. 

You simply need to maintain distance of about 6 feet.  Do not share utensils.  Do not sleep with anyone else in the bed.

You're not going to contaminate anyone if you keep your body fluids (sweat, saliva, etc.) to yourself.

Good luck!

Look at your profile to find your posts. :)

RE: Thyroid nodule

by butterfly501 - September 12 at 4:37 AM

You should speak with your doctor about this.

I think everyone active on this board has already answered this question to you on multiple posts.  Not trying to be harsh.  You just keep asking the same questions over the years.

If you don't have thyroid cancer then this discussion board is not going to be useful for you.  We're not about thyroid nodules or thyroid diseases outside of thyroid cancer.

Be well and good luck getting some answers from your treating physicians.

RE: Can you still work?

by butterfly501 - September 09 at 1:11 AM

Of course you can still work.   Why would you think you could not.

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Thyroid Cancer

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