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butterfly501's Message Board Messages

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On May 15, 2019 1:10 PM lcerrone wrote:

yes!! Ugh

The professional guidelines recommend pet with fdg when Tg rises but RAI imaging is negative. 

On May 14, 2019 9:44 PM lcerrone wrote:

On Apr 18, 2019 9:09 PM lcerrone wrote:

On Apr 16, 2019 2:47 PM ToddlerFather wrote:

On Apr 14, 2019 11:39 PM lcerrone wrote:

Had RAI in April of 2018 with uptake. Uptake showed uptake in the thyroid bed and left lower lung. In Aug my tg was still at 11.9.  Just had a PET which was clear, however my tg is now at 20!!  I am now on the LID diet and will have a RAI with 4 mcis..  I am at my wits end.  Been dealing with this for 6 1/2 yrs and have never had a 0 tg.  Any thoughts on this.  

A PET without Thyrogen estimulation has a high chance of not showing anything. But even so it has diagnostic value, since it measure how differentiated / undifferentiated your tumor cells are. 

4 mCi is a small dose for RAI, it's just a tracer for a WBS. BTW, if your nuclear medicine facility supports, this would be a good use case for I-124 instead of I-131, which can provide more accurate lesion dosimmetry in order to plan a possible new RAI. 

Have you done any UltraSound recently ? This is still the best imaging method for the thyroid bed.

i am making an appt for an US.  Also my tg is now at 20.6 and dr requested blood drawn from a different lab rather than labcorp.  If its still at 20 they want a Brian MRI

So I had my MRI amd whole body scan after 4 mci dose.  Both clear.  So all tests were clear with the exception of the US which a very small solid nodule.  So now we just wait and have another US and blood drawn in June

But your Tg is still on the rise?

I guess the header title should read:

How was your thyroid cancer found?

On May 04, 2019 12:02 AM Shayanne wrote:

I called Vancouver Radiologists and they only take Kaiser insurance if you have an Added Choice plan which I don't have. I haven't reached my deductible of $6,650 so the cost would be out of pocket even if they did take my insurance. The cost, not including lab fees, is $420 with insurance and $336 without. Thanks for the recommendation but I'm probably better off financially waiting until July. I may check on the doctor to see how many FNAs he actually does.

From first had experience, the difference between the FNA from my surgeon to the FNA at Van Rad with the radiologist was huge! 

My surgeon was an awesome surgeon but his FNA skills were a little sloppy.  The radiologist was smooth as silk though.  I could tell he does these FNAs all day long.

Good luck to you!

No side effects for me. 

NUHW calls on Justice Department to investigate Kaiser Permanente’s long wait times, paper wait lists, and falsified appointment records

https://nuhw.org/nuhw-calls-justice-department-investigate-k

I guess not much changes there.

On May 03, 2019 12:18 PM Swifty wrote:

Butterfly, I have no idea where you live or what insurance you have, but you don't seem to understand that not everyone has choices with insurance coverage.

This is part of the controversy in this country (USA) about healthcare; who has it, who does not, how good is it, and how it can cause bankruptcy. I am in NY and I wait long periods for everything, some worse than others, and I have had several different insurance carriers.

Yu may not understand, BUT that is the reality and in some cases why emergency rooms are over utilized.

Lucky you that you have such wonderful coverage.

She lives in my town!  And Vancouver Radiologists takes ALL insurance and if they don't will give you a discounted rate, with a payment plan with zero interest. 

Yep, we work hard and spend a lot of money on that "wonderful" coverage.

On May 02, 2019 5:24 PM Shayanne wrote:

I have read some reviews for the doctor and they are pretty good. Several people writing the reviews say that they had a thyroid biopsy so I think he does them all the time.

All you have to do is ask.  How many FNAs do you perform a day? a week? a month?  Ask.  Don't assume...or rely on online reviews.

On May 02, 2019 4:19 PM Shayanne wrote:

My only choice is the biopsy with the endocrinologist for now due to my insurance. I found this article that says 1 in 4 thyroid biopsies are now done by endocrinologists. I guess if I'm not happy with the outcome I can change insurance during open enrollment this year.

https://www.mdedge.com/endocrinology/article/136555/pituitar y-thyroid-adrenal-disorders/one-four-practitioners-doing-fnas"" target="_blank" rel="nofollow">https://www.mdedge.com/endocrinology/article/136555/pituitar target="_blank" rel="nofollow">https://www.mdedge.com/endocrinology/article/136555/pituitar

If you want to sit and wait until july for a simply FNA, that is your choice. 

And I cannot understand an insurance that gives a patient ZERO choices.

On May 02, 2019 4:19 PM Shayanne wrote:

My only choice is the biopsy with the endocrinologist for now due to my insurance. I found this article that says 1 in 4 thyroid biopsies are now done by endocrinologists. I guess if I'm not happy with the outcome I can change insurance during open enrollment this year.

https://www.mdedge.com/endocrinology/article/136555/pituitar y-thyroid-adrenal-disorders/one-four-practitioners-doing-fnas"" target="_blank" rel="nofollow">https://www.mdedge.com/endocrinology/article/136555/pituitar target="_blank" rel="nofollow">https://www.mdedge.com/endocrinology/article/136555/pituitar

There's probably also an article that says 1 in 4 FNAs are done by Genral Surgeons...like my first one was. 

Not understanding the point.

If 1 in 4 FNAs are done by endos, FNAs should be able to be performed within days....not months.

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