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caseyzson's Recent CancerCompass Activity

  • caseyzson has replied to a post on the message board

    Thank you PhillipJax for these write-ups.  I was speaking to a researcher who was excited about a cohort from this study: http://dailynews.ascopubs.org/do/10.1200/ADN.19.190042/full/ This was SBRT + PD1 + CTLA4, in both stage 3 and stage 4 patients.  In a subset of patients, 2 had >12 months response.  The researcher said they will likely push for a larger trial based on this dosage (SBRT befo...

    January 28 at 6:57 PM view post
    • caseyzson has replied to a post on the message board

      Hi Baloo- happy holidays, hope all is well.  Wondering how your treatment is going...wishing you a happy new year!

      December 28 at 12:37 AM view post
      • caseyzson has replied to a post on the message board

        Andrea, not to take PhillipJax away from answreing, but if your dad tested for CEA along with CA-19-9?  CEA is a tumor marker that is expressed in the blood, my mother gets this tested with her blood every time she goes in.  I've read that just as some PC patients don't express CA-19-9, some do not express CEA as well...but that most do.  I would wait for Phillip to confirm this though. Also, in other...

        December 13 at 9:31 PM view post
        • caseyzson has replied to a post on the message board

          Please disregard, this question was already answered earlier.  Seems Proton is one of the better options..apologies.

          December 06 at 5:15 PM view post
          • caseyzson has replied to a post on the message board

            Hi PhillipJax, I looked on your decision guide and also this site, but it is hard to search - I was wondering what your thoughts of local Y90 radiation for the treatment of liver metastsis.  This is meant to hopefully extend the time for other new trials to join:  http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e15745 Rest of the cancer is stable. Thank you!

            December 06 at 5:05 PM view post
            • caseyzson has replied to a post on the message board

              I read that paper, its encouraging to hear that Mannose is able to be aborbed so readily in the lining...hopefully that means it's able to be metabolized as many supplements aren't able to be absorbed at all in the doses that are recommended. Have you added this to your regimin?  It seems as if this + Vitamin C IV could be beneficial, or this + a chemo agent.

              December 04 at 11:28 PM view post
              • caseyzson has replied to a post on the message board

                Hi Baloo...it seems my other comment did not post, that happens a lot with this site..anyway: Thank you for responsding to my other thread with your comments, I thought I would answer here since I had a follow up in regards to Mannose.  I'm sorry that you decided against the trial, but it may have been for the better given your analysis of it.  My mother failed two clinical trials and her current oncologis...

                November 27 at 2:56 PM view post
                • caseyzson has replied to a post on the message board

                  I have not, but this is so great to hear 50 months!  (No surgery I presume?) What chemo has he been on in total?  There is a thought that you can rechallenge older chemos in later lines if possible (from an oncologist - but he also said the data is limited b/c so few PC patients make it that far). My mother is 20 months diagnosis of PC so far, stage 4 entire time.  We are moving onto her 5th treatmen...

                  November 26 at 9:55 PM view post
                  • caseyzson has replied to a post on the message board

                    hi Baloo, Thank you for responding to my other thread with your comments, I thought I would answer here since I had a follow up question regarding Mannose. I'm sorry that you decided against that trial, but it may have been for the better given your analysis.  My mother failed two clinical trials. Her current oncologist is more in favor of repurposing active chemo agents in other cancers before trials (as most...

                    November 26 at 9:19 PM view post
                    • caseyzson has replied to a post on the message board

                      Hi Baloo I have been following your posts. My mother has stage 4 pancreatic cancer diagnosed 20 months ago. She’s going on her 5th line of therapy this week. When will you be starting the trial and how have you been doing?

                      November 25 at 9:47 PM view post
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