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celpb's Recent CancerCompass Activity

  • CelPB has replied to a post on the message board

    Judy, I'm very sorry to hear this news.  Your life and my life are very similar. My husband fought this monster GBM for almost 18 months.  He made it 2.5 months after we stopped treatment.  He was also in the Navy but only for 6 years.  He got out and went back to school where we met.  We were married 20 years when he passed.  My daughter was 15, and my son was 11 when they l...

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    • CelPB has replied to a post on the message board

      Dear Kerryfriend, I share your pain.  Since I lost my husband Feb 11, 2012 to brain cancer GBM, I haven't been posting much on this board.  He fought hard for almost 18 months.  His pictures are still on the wall, his voice is still on my answering machine, and his clothes are still in the closet.  I often find myself sitting in there looking up at his clothes.  He hung them higher to m...

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      • CelPB has replied to a post on the message board

        I'm very sorry for your loss and hope that you're able to forget that violent end stage.  I was and wasn't prepared at the same time when my husband of 20 years passed away over 8 months ago from this beast GBM.  The logical side of me knew what's going on, but I wasn't prepared because I kept praying for a miracle.  I still remember how loud his breathing was and the helpless feeling I ...

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        • CelPB has replied to a post on the message board

          I'm very sorry for your loss and so glad that he went peacefully.  Sending you prayers and a big warm hug. Celeste

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          • CelPB has replied to a post on the message board

            Sara, As a mother of a 15 year old daughter, I imagine how hard it must be for all of you.  I haven't posted much at all after GBM took my husband in Feb of this year, but your story touches my heart.  He lasted 17 months and 20 days from diagnosis to be exact. Avastin and CPT-11 (Irinotecan) didn't work for my husband after Temodar failed.  Temodar worked for about a year, a...

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            • CelPB has replied to a post on the message board

              Yes, this grief thing does suck really bad espcially last night when I was doing the back to school night thing for my son.  Seeing other parents as couple made me sad and lonely.  Today is Robert 52nd birthday.  "HAPPY BIRTHDAY, my love.  I hope you're having a big party up there." My kids and I are doing the best we can to deal with the loss.  It has been almost 7 months.  I can't bel...

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              • CelPB has replied to a post on the message board

                Congratulations on your 17 months!!  I pray for many many more clean scans for your wife. Celeste - wife of Robert 8/30/60-2/11/12

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                • CelPB has replied to a post on the message board

                  I'm very sorry for what you're going through.  It's awful to watch our loved ones suffered.  My husband was the same way as your mom with liquid meds at the end. He got the morphine (I think) when I pumped the liquid in the corner of this mouth but choked on everything else. His breathing changed 2 days before his death, and that was when he stopped taking in food and liquid. I couldn't watch him suffer, so...

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                  • CelPB has replied to a post on the message board

                    Ellen, I pray that you continue to feel better and will be thinking of you on the 24th. Keep up hope!  Celeste

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                    • CelPB has replied to a post on the message board

                      My prayers and thoughts are with you and your boys.  I know how much you've gone through.  You were a wonderful wife and caregiver, and you fought this battle with Randy just as bravely as he did.  He had found peace, and I hope you and your boys will begin to heal soon.  Love is enternal, and love gives you strength! With many warm hugs, Celeste

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                      About celpb

                      Caregiver
                      Brain Cancer
                      Alternative Treatments, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Clinical Trials and Research, Diet

                      My husband was diagnosed with GBM grade 4 on 08/25/2010 and had surgery on 08/27/2010 to remove part of the cancer. We've been married 19 years and have 2 young children ages 13 and 10. I hope to find support and anything that can help us get through this. My husband thinks it's his cell phone as he is on it a lot due to his work, and I have to agree with him. Even if this is not true, please consider using your phone less often or use headphones. You never know. End of 11/2010, he went through 30 radiations/Temodar treatment and currently on 5/23 Temodar cycle. Last 2 MRIs showed no new growth, but the tumors are not shrinking. MRI on 02/27/11 showed no change from the previous ones. MRI on 06/09/11 showed new tumor on the left side. Waiting to start new treatment with Irinotecan (CPT-11) plus Avastin. Update on 07/13/1 - The doc decided to continue Temodar another month, but Robert blood count is low, so it is delayed for one week. Update on 08/18/11 - MRI on 07/29/11 showed 25% growth on the tumor, so Robert started his first infusion of CPT-11 and Avastin on 08/17/11. After 4 bi-weekly infusions, Robert's MRI on 10/12/2011 is stable with some enhancement decrease. He is physically better, but mentally, he seems to be declining quite a bit. We're still hopeful!
                      Update 12/13/11 - We started Hospice. I still don't believe that it happened, but I have to accept the reality now.
                      Update 02/07/12 - My husband is still hanging in there after 12 weeks from the last CPT-11 and Avastin infusion. We made 20 years of marriage in January. We've been in Hospice for 8 weeks now.

                      Update 02/11/12 - My husband fight is over. He is finally free!

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