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cherylf's Recent CancerCompass Activity

  • CherylF has replied to a post on the message board

    Yay for you.  I am so glad to hear that you got good news.  It is scary when you don't know and of course you think the worst.  I am so, so, glad that you are ok and don't have to go through radiation or chemo or any of the side effects that go along with it.  Don't feel guilty.  When I was younger and my children were growing up, I used to complain to my mother that having twins was not the ...

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    • CherylF has replied to a post on the message board

      I'm glad to here that you are doing so much better. I hope that your holidays are good ones, filled with family, love and laughter. ~ CherylF

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      • CherylF has replied to a post on the message board

        Goood luck with the peg tube, I had mine for a lease 6 months and it was a life saver, as I couldn't eat anything. I did drink alot of lemon/lime soda. This was recommended to me by one of the nurses at the cancer center and it worked very well for me, as I was so dry all the time from the radiation damage to my salvatory glands. Why did he have so much trouble with the first tube, allergies? I hope it all goes well ...

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        • CherylF has replied to a post on the message board

          What a horrible thing to tell you.  Don't these people have any sense or compassion? I have been fortunate that I haven't run into anyone that "is full of good advice." I hope that you are near the end of your treatments and can start to mend. I have found the mending process to be long and very emotional.  One day I am fine the next I'm balling my eyes out for no good reason. I hope that you have been...

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          • CherylF has replied to a post on the message board

            michdjp ~ I just had my peg tube removed. I started with pudding, jello, smoothies, things I didn't really have to chew. (have extreme sensitivity in teeth) now I eat hot cereal, instant oatmeal i like the fruit and cream variety and I add additional fruit to it. The blueberry I add 1/4 cup frozen blueberries, I use the frozen strawberries to.  I usually add more sugar to it too, and I use 1/2/ n 1/2 instead of ...

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            • CherylF has replied to a post on the message board

              yay for you! keep up the good work. :)

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              • CherylF has created a new message board discussion

                I just came home from the ENT, Dr. Mac. He is concerned about a hot spot in my neck way up behind my ear. He mentioned that "if" it is cells and not just a spot that is still healing that he wants me to look intoproton radiation. He says that I can have this done down in Boston.  He also mentioned a new drug callederbitux. This has me worried, I told him today that I should be happy, glad that I have no cancer....

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                • CherylF has replied to a post on the message board

                   hi jayrayb ~ i'm new to this too. I will say a prayer for you and your friend.  ~ CherylF

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                  • CherylF has replied to a post on the message board

                    PopPop ~ I hated the mask. I was always worried that something would happen and they would forget me and leave me stuck to the table. My doctor had me take 1 mg of Ativan before each treatment. It got easier for me as time went by, but the fitting for the mask and the first couple rounds of radiation were horrible. The ativan did help. By the end of my 30 treatments it was old hat to me.

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                    • CherylF has replied to a post on the message board

                      Does she have a peg tube, with and IV pole to hang  the drip bags off of? I was on Osmolite for several months. I could also use boost, ensure or other over the counter diet supplements. Where she is diabetic? I would call and ask the pharmacist.

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                      About cherylf

                      Patient, Survivor
                      Head and Neck Cancer
                      Emotional Support

                      Feb. 2011 I had neck dissection on right side of neck. My diagnoses was stage IV head and neck caner. Sept. 2010 I had a brachial cleft cycst removed from under my right ear. It has been a long year ~ 30 rounds of radiation and 7 rounds of cisPlatin. I now go every two months to the ENT in Portland and the oncologist in Augusta. I also have a pet scan every two months. I have good mobility of my head and neck. But get very "tight" and am in constant pain. I'm feeling like maybe this is to much information. I am new to this and have an awful lot to ask and say. I take anti depressants that sometimes work and sometimes don't. I cry for no reason and sometimes the reasons that i am crying i am ashamed to admit. I am fortunate that I have a husband that is very supportive who loves me very much.

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