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brain mets **update

by christine75 - January 16, 2017

              My 69 year old mother was diagnosed with limited stage small cell back in Dec 2015. She received chemoetoposide plus cisplatin(every 3 weeks/ 3 days in a row) plus radiation in April. She was very ill during the whole process but it was successful. In June she start have issue with balance and the did a scan on her. Unfortunately, they found 17 spot and 3 tumors over 1.5 cm in her brain. They immediately did 5 rounds of whole head radiation and now we wait and see, the doctors gave her 6 months. 

They did a scan in early Oct and showed that the radiation did shrink the larger tumors..

I notice late Nov vision, balance and memory issues, so the doctors ran another scan

the tumors had double there orginal size plus one more, lots of lesion but there was to much swelling to see it all.

her classed her as extensive stage small cell lung cancer, gave her  10 more whole head treatments (low dose) and increased her steriod to 4 times daily.

again they said 6-12 months but they will not do anymore treatments that was it...

I am confused I have read of others having 30 treatments but our doctors have said anymore (she has had a total of 15) and her brain tissue will start to die.

 they said 6-12 last time, then her case worker said that reviewing her file and phyiscal testing her it is more like 4-6 if lucky

the whole process is very confusing..has anyone dealt with brain mets returning so fast and bigger?

i asked the doctor where do we go from here and it was wait...sounds silly but I feel like now that they cannot do anything they set us aside... 

Any advice is welcome

My mother was diagnosed in early Dec 2015, with limited stage. she went through 4 & half months of chemo and radiation. This made her so ill that she lost 60 pounds and never got out of bed. In march she got UTI that turned into a blood infection and was put in the hospital for 3 weeks. at that point they stopped treatment to let her again some strength back. short break, as in July we found out it went to her brain 17 lesion and 3 tumors. They doctors told her she most likely only had 6 months if the whole head radiation worked if not 4 or less. It is hard to believe because considering how she was during chemo, she would seem and look to anyone that she is on the road to recovery.  

This week she seems to be displaying the same symptoms again so I am not 100% confident that the radiation worked.

I also was noticing a change in her skin, I was wonder if it hadn’t spread to her liver.

What signs should I be watching for? And does anyone have any friends or family that is over 1 year with brain mets.

thank you....

she finished her 5 session of whole head rad..

at first her balance and dizzness went away but yesterday she was complaining that she was really dizzy again and had a bad headache.

we have another 4 weeks before they will do another scan.

could this mean the raditation was not successful

first time...

              My 69 year old mother was diagnosed with limited stage small cell back in Dec 2015. She received chemoetoposide plus cisplatin(every 3 weeks/ 3 days in a row) plus radiation in April. She was very ill during the whole process but it was successful. In June she start have issue with balance and the did a scan on her. Unfortunately, they found 17 spot and 3 tumors over 1.5 cm in her brain. They immediately did 5 rounds of whole head radiation and now we wait and see, the doctors gave her 6 months. 

My question is what am I to expect, currently she is the best she has since this whole thing started. How long do I really have? What are things I should be watching for?

Any advice is welcome

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