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cindygi's Recent CancerCompass Activity

  • Cindygi has replied to a post on the message board

    Hi, how are you feeling?  Did your doctors find out the cause of your illness.  I'm still having a rough time of it.  Doctors are still leaning towards a carcinoid but still want to rule out other diseases.  I just want them to do the scan at Hopkins instead of all this other crap.  I have had enough and I'm sure a lot of other patients that go through the diagnoising are in the same boat. We...

    September 01, 2018 view post
    • Cindygi has replied to a post on the message board

      Hi, I did have a repeat of 5-HIAA and it came back High. I have an appt with my Rheum this month to review my latest testing.  I just had another 24 hr ph test to check my acid levels.  My GI doc believes also my issues are somehow conncect to carcinoid.  I think the next test they are going to order is a Scan. At least I feel like my doctors are on the same track.  Hope you are doing well.

      May 03, 2018 view post
      • Cindygi has replied to a post on the message board

        Hi, I've been having the same symptoms for many years. Since August it's on overdrive. Been to specialist cardiac, rheumotologist and endro.  Everything has come back negative/normal.  My last appt with my cardiologist really believes I have carcinoid reccommend that I have all tests repeated and go for scans.  So that's my next step. Let me know what you decided to do. Oh he also recommended I go to H...

        April 01, 2018 view post
        • Cindygi has created a new message board discussion

          If blood tests are negative, will any scans help with a diagnosis to prove I have a tumor. I have flushing, tachycardia, short of breath and diarrhea

          March 31, 2018 view discussion
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