Loading...

cortni's Message Board Messages

Loading...
Showing 1 - 10 of 10

Page 1 of 1

RE: Erbitux/Cetuximab

by Cortni - September 03, 2015

That's what I figured Susan. Radiation is going to be more of a issues. 

Erbitux/Cetuximab

by Cortni - September 03, 2015

Anyone have any experience with Erbitux? Sounds like my treatment will be Erbitux and radiation. I am scared of both but just wanted to hear some experience from others with Erbitux. 

On Sep 19, 2014 10:11 PM goldhorse9 wrote:

A agree with the above comments. When I first relaized someting was wrong I went to my family MD and he prescribed antibiotics. After a week of my tonsil not looking right I knew it was someting more. The next guy was a local ENT and thought it was something else and benign and was going ot schedule me for a biopsy and if the biopsy was bad he would just cut it out while I was asleep. Bad idea !! Next local ENT was refered to me by a cardiologist friend. He said it was nothing but took a biopsy while I was under local anastesia. A week later I got the call. Tonsil Cancer. He schedule me to cut it out at a local hospital. I decided to call another friend who knew a Suregeon at MD Anderson and he call me and siad I was crazy if I didn't drive down to Houston and have the MDA guys look at me. I did and I went through IMRT and Erbitux (baby chemo). I was Stage 2 and it's been just over 5 years and I'm all good. I turn 60 this year with 4 children from 3 marriages - my youngest is a 7 year old boy. Isn't life rich? I can't tell you how happy I am and how much I appreciate every day. I saw a lot of bad stuff at MDA. The IMRT is brutal - no doubt !!!!!!!!!!!! It's crazy bad. But what's even more crazy is 5 years later I can harly remember and all I can focus on is my family and lovved ones. It's so awesome to appreciate every day and every loved one with a new perspective. Good luck to you. You will make it just fine - just make the right choices. Error on the side of a cure - your body will heal.   

goldhorse how was the erbitux? I'm at MD Anderson too and getting ready to do Radiation and Erbitux. 

Gearing up for treatment

by Cortni - August 22, 2015

Hello everyone- I was diagnosed 8/11/15, since then as i'm sure you all know it has been a whirlwind of Drs appointments. I'm just really overwhelmed which i'm sure is to be expected. This is very scary. I am being treated at MD Anderson in Houston, and am thankful that I am close enough to go there. I just have a few questions, I'm sure i'll have more as I move through this. I met with my head and neck surgeon on monday of last week, she was very positive and made me feel much better. She said we caught this early. She is still staging waiting on the results of the PET I had Thursday but from what she found in her examination she said T1N1-2. She also mentioned that although it's rare I may be a candidate for surgery alone. I haven't heard of that. Have any of you? They have also talked about radiation options between IMRT and Proton Therapy, any ideas on these two options. I am so new to this I have been reading and trying to learn as much as I can before I start this journey. I'm 34 with two kids and a supportive husband. I only weigh 143 pounds and am trying to pack on as much weight as I can before treatment. I keep reading how much weight everyone has lost and I"m thinking, I can't afford to lose even 40 lbs.

Last question, did any of you feel extremely fatigued prior to treatment? I started not feeling well in January of this year but didn't have the lymph node come up until May and in that time had several episodes of feeling faint and weak. Just curious if anyone else had these things happen before they started treatment. This crap just makes you feel awful and I'm ready to get it beat!!!!

thank you in advance for your response. I am so happy to have found this place. 

RE: I'm scared to death...

by Cortni - August 22, 2015

Hollye- I met with my Rad/Onc last week and will be getting fitted for my mask and mouth stent soon. I to am trying to be strong for my husband, kids, family, and friends. I've somewhat accepted that it's okay to be afraid from time to time during this ordeal. This is not a journey any of use expected to be on. It sounds like you and I will be going through treatment at similar times and if you need a friend I am here. I could use one myself ;) 

Best of luck to all of us through this. 

RE: Newly Diagnosed

by Cortni - August 14, 2015

Thank you all so much. Although I hate that we are all on here for one common unfortunate bond, I'm grateful that you are all here with me through this. I appreciate all the responses. I go to my first appt at MD Anderson Monday with head and neck surgeon. I have rad/onc Thursday, dental Friday, and med/onc the following Tuesday. Can I ask how many lymph nodes you all had swollen? I have one on each side of my neck, makes me so nervous to now have 2 and not just one.

RE: Newly Diagnosed

by Cortni - August 12, 2015

You guys are so amazing. There's not much at this point that will completely erase the fear but I feel very fortunate to have come across this forum and all of you. I go for my first appt with my head and neck surgeon, rad/onc, dental onc, and med/onc next week. I'm hoping that I could be a candidate for Proton Therapy. From what research I've done it seems like it may be a less dreadful form of radiation. Has anyone had this?

RE: Newly Diagnosed

by Cortni - August 12, 2015

Thank you so much for your response. It sounds strange coming from me to tell you to not be scared but don't be. I would say if you have a good CT that's a very positive thing. My CT showed a suspicious node before I was diagnosed so I am happy to hear that your CT didn't show anything suspicious. 

Best of Luck to you. I hope you feel better soon.

Newly Diagnosed

by Cortni - August 12, 2015

So today the oncologist confirmed the fear I've had the last few weeks, SCC that she suspects started in my tonsil. I noticed a swollen lymph node in my left neck in May. I saw my Primary care doctor who referred me to an ENT. The ENT examed me and wasn't too concerned, started me on antibiotics and scheduled a 6 week follow up. No change after antibiotics. I returned for my 6 week f/u and was told I needed a tonsillectomy and lymph node removal but was also sent for a Cat Scan of my neck. After reading my Cat Scan results and seeing that the node was suspicious looking I decided I wanted to go to MD Anderson for a second opinion. I was seen by the oncologist there and had a FNA scheduled for yesterday. She called with my results today. SCC, still waiting to see if it is HPV positive. I knew in my gut that this was what it was as I had a second lymph node come up on my opposite side. My next step is to be scheduled with ENT and radiation oncology at MD Anderson. I am just terrified. I am only 34 and am the mother to 2 young kids. Any insight or information about what to expect or treatments options would be greatly appreciated. This is so scary. 

Thank you in advance for your responses and God Bless you all. 

Newly Diagnosed

by Cortni - August 12, 2015

So today the oncologist confirmed the fear I've had the last few weeks, SCC that she suspects started in my tonsil. I noticed a swollen lymph node in my left neck in May. I saw my Primary care doctor who referred me to an ENT. The ENT examed me and wasn't too concerned, started me on antibiotics and scheduled a 6 week follow up. No change after antibiotics. I returned for my 6 week f/u and was told I needed a tonsillectomy and lymph node removal but was also sent for a Cat Scan of my neck. After reading my Cat Scan results and seeing that the node was suspicious looking I decided I wanted to go to MD Anderson for a second opinion. I was seen by the oncologist there and had a FNA scheduled for yesterday. She called with my results today. SCC, still waiting to see if it is HPV positive. I knew in my gut that this was what it was as I had a second lymph node come up on my opposite side. My next step is to be scheduled with ENT and radiation oncology at MD Anderson. I am just terrified. I am only 34 and am the mother to 2 young kids. Any insight or information about what to expect or treatments options would be greatly appreciated. This is so scary. 

Thank you in advance for your responses and God Bless you all. 

Showing 1 - 10 of 10

Page 1 of 1

Loading...

About cortni

cortni has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

We care about your feedback. Let us know how we can improve your CancerCompass experience.