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coxforever's Message Board Messages

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It has been 6 weeks since my Mom has passed and last week I sat down with my kids and watched all of the Long Island Medium shows on my DVR(there had to be 8 of them at least). It brings me such comfort knowing that my Mom is closer than I may think, it reaffirms so much in my heart about her last days/weeks/months of life. It is a great show.
SarahGrey I hope you know what a gift your message is to me, to us all. Thank you. This is the kind of stuff I want to know. I do feel like my Mom is exiting and a new version of her shows up everyday. I'm having a hard time not withdrawing from her a bit. It feels like a fine line I have to balance, her confused self, her strong self and her frustrated self and all of the stuff in between. I will be sure to read your other post with advice, you have a way with words and your knowledge is a light.
Thank you @jon4156 , really, REALLY needed to hear that.
I really wish I could figure out how to delete this message, it suddenly feels so inappropriate. Please understand, I mean well. If you can telle how to delete a message posted, I would appreciate it! :)

If you could do it all over again, what would you do for your loved one, what would you say before this brain cancer ends the fight?  

I'm caring for my mother who has GBM IV and I follow my gut instinct when I'm prompted to do something, I do it.  Lately, all of the to-dos that are pressing (My Mom's finances, appointments, meals, clean-up, grocery shopping, etc.) and my 3 kids are taking my focus away from t-i-m-e with my Mom.  Plus, I get the feeling she wouldn't mind some of her own space back every now and then, my sister and our families have moved in to her house to take care of her and her declining condition.  

Thank you in advance for your ideas on making the most of the time I have left with her.  If you could do it all over again.....

Wow, thank you so much for sharing your experiences with me and all of this helpful info. It is a relief to know that my mom's stress about the kids is normal, bless her heart. We met with the NO yesterday and he stated that the paralysis that she has on her left side is not due to the swelling and is more likely caused from brain damage from the tumor. We will continue with the avastin infusions for now. Thanks again for relating your experiences, in some strange way, I feel less alone as we find our way through this disease.

Hello, I am new to this site.  My Mom was diagnosed with glioblastoma multiforme on 10/31/11.  Temodar and Radiation helped to shrink her tumor on her right frontal lobe so she was able to enjoy a good quality of life until about March of 2013 when she started to really lose the use of her left arm and balance.  On May 17, 2013 she had what we beleive was a seizure, long story short, she is now paralyzed on her left side.  My sister and I have moved across the country to become her caregivers and spend precious time with her.  

I have 2 questions, first, does anyone have experience as a caregiver with young children at home?  My sister and I both have 3 small children so at times my Mom's house can be very full of life.  

Also, wondering if anyone has experience with paralysis and how long a GBM patient has to deal with this before it is the end?  Quality of life is not the best.  She began Avastin infusions on 5/24/13 for tumor recurrence and does them every 2 weekss.  

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About coxforever

Caregiver
Brain Cancer
Emotional Support, Physical Therapy

Wife and Mother of 3, daughter to an amazing Mother that is battling Glioblastoma Multiforme since diagnosed 10/31/11. On May 18, 2013, I flew across the country to become a caregiver for my Mom who is paralyzed on her left side.

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