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cscottandcarly's Recent CancerCompass Activity

  • cscottandcarly has replied to a post on the message board

    And that is great info if the doctor knew that. But he doesn't. He straight up said that it's about lawsuits and fear of doing anything off protocol. Anything. With the horrible chance offered by the chemo, I'm confused by the reticence to try other things. Scott's retired doctor, Dr. Fisher was so willing to. Support our putting our hope into other things when we saw such positive results especially when the k...

    October 08, 2018 view post
    • cscottandcarly has replied to a post on the message board

      You are all so amazing. I know each one here is in their own fight, so it means so much to get such encouragement.  I know we will win this fight. I cannot believe that our new oncologist is so against anything other than chemo. He literally said we shouldn't take turmeric if we go on chemo! What the heck! Turmeric? Really? That could hurt Scott? Really?   At least he admitted that Folfiri could cause can...

      October 06, 2018 view post
      • cscottandcarly has replied to a post on the message board

        Well, I am NOT amazing. I have had this easy, honestly. Way easy. Things are about to get tough...tough in the same way it has been for everyone else. Doctor tough. As you may remember,  in June, Scott's amazing oncologist retired. We had the second visit with his new oncologist yesterday, and it didn't feel very feel good. While the doc recommended trying mistletoe again, he did not have any faith that It will...

        October 03, 2018 view post
        • cscottandcarly has replied to a post on the message board

          Yeah, we're definitely not pleased with the reading of the scan, and I'm sure we will be even more displeased after seeing the oncologist this morning.  We only want the truth so whatever is said, we are okay about it, but it sucks to get bad news.  We are back on the mistletoe so we know things will improve, even if we have to change kinds of mistletoe.  I plan to detail all of the news from both a...

          October 01, 2018 view post
          • cscottandcarly has replied to a post on the message board

            Update time... Bad news... My hopes of the scan being somewhat positive were dashed. We visited one of Scott's doctors and he explained that the kind of necrosis Scott shows does not indicate that the treatment is working. We trust his opinion (although we hope he's wrong), and we trust his advice (even though the advice was not what we wanted to hear). That's all I can say now. We are hurting really bad right now, ...

            September 29, 2018 view post
            • cscottandcarly has replied to a post on the message board

              Love to the Buckley Family from the Scott and Carly and Family.

              September 28, 2018 view post
              • cscottandcarly has replied to a post on the message board

                Realm of caring is a great organization. They have been ahead of the game in research and support for patients opting for cannabis. They were among the first websites I found that provided good, solid info about cannabis, and info of how to get it and how much you should take. Reliable and helpful, real information. And within a year or so of Scott's cancer diagnosis, the Realm of Caring site began to...

                September 28, 2018 view post
                • cscottandcarly has replied to a post on the message board

                  I am so so so sorry that he passed. Scott and I are sending our love and understanding to you and your family.

                  September 27, 2018 view post
                  • cscottandcarly has replied to a post on the message board

                    I just read a study that shows mistletoe extract can be effective in the treatment of pancreatic cancer.  We experienced it saving my husband's life over two years ago but he has Stage IV Colon Cancer, not pancreatic cancer. We used cannabis oil as well.  We did try chemo, but it was horrible for my husband who is young, but has other health issues (like epilepsy), so he couldn't tolerate it. This made th...

                    September 27, 2018 view post
                    • cscottandcarly has replied to a post on the message board

                      My husband has successfully used both cannabis oil (THC and CBD) and Helixor (Mistletoe Extract) to fight Stage IV Colon Cancer for over 3 1/2 years. Believebig.org was very helpful in finding a doctor to prescribe mistletoe, and I do believe it can be effective in the treatment of breast cancer.

                      September 27, 2018 view post
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                      About cscottandcarly

                      Patient
                      Colon Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Biotherapy, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Genetics, Side Effects

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