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dana748's Recent CancerCompass Activity

  • dana748 has replied to a post on the message board

    So sorry to hear about the results!  I did have the co-deletion which should've improved my outcome, but after 3 years it has still returned and I had 99% resection.  Another option my oncologist has proposed if the temodar doesn't help with the re-growth is adding Avastin, I really hope it doesn't come to that but at least it's available for Stage III now as it wasn't 3 years ago when I was first dx. Here'...

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    • dana748 has created a new message board discussion

      Here is an interesting article about new options they are trying and showing some success with, hopefully it will include people with lower grade tumors who have recurrence soon. http://www.nmh.org/nm/brain-tumor-vaccine-study

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      • dana748 has replied to a post on the message board

        Mine was dx in Jan 2011, almost same exact kind mine also has combination of astrocytoma mixed in it and has been cleared since but just this past month shown re-growth.  I am starting with Temodar 5 days/month until it stops or goes away.  I do know someone who has/had GBM Stage IV about 7 years ago and has not had a recurrence yet.  Not sure what he has done to make his outcome so different exce...

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        • dana748 has replied to a post on the message board

          I was diagnosed with Grade 3 mixed anaplastic astrocytoma Jan. 2011, had 99% resection 2 weeks later, started 6 weeks of radiation for 5 days then Temodar for a year and have been clean for 3 years.  When the tumor was first found, my neurosurgeon said it would probably be non-cancerous or at most low grade cancer, he is one of the top 10 in the US and I wasn't ready for the Grade 3 notice from the biopsy e...

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          • dana748 has replied to a post on the message board

            I am 32 years old and was diagnosed with this same rare cancerous tumor in Feb 2011.  I had it surgically removed immediatly after and completed the radiation for 6 weeks then the temodar for a year.  If you have any questions or want to talk about it, please feel free.

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            • dana748 has replied to a post on the message board

              I had awful headaches for a year or more, eventually taking maximum doses of Ibprofen and Excedrin Migrain all day, every day.  I had some tingling in my left hand and fingers and had been tripping over very small cracks on the ground.  After months of blowing these off, I started getting spots in my line of vision and the day of diagnoses felt as though I was looking through a Kale...

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              • dana748 has created a new message board discussion

                Has anyone done research on what kind of viatmins may be best during treatment?  Any other recommendations to help hair grow back quickly?  I Don't mean to be conceded but it really bothers me being bald and nothing is growing back on the radiation side of my head. (least of my problems, but while I'm here I'd like not to scare the kids)

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                About dana748

                Patient
                Brain Cancer
                Cancer Nutrition, Cancer Treatments, Clinical Trials and Research

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