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danna's Recent CancerCompass Activity

  • danna has replied to a post on the message board

    My story is similar to yours.  Ductal no lymph nodes 198 years ago.  One surgery to remove but, labs said they did not get clear edges so another surgery to remove more tissues.    Same thing 30 some radiation treatments....no drug given. Of course I have followed up faithfully (wll mostly) with a yearly Mammo and all was always good.   Till Dec 2017 and family doctor has to tell me D...

    August 19, 2017 view post
    • danna has replied to a post on the message board

      I am 70 and put on these drugs 4 months ago.  I will say they do scare me but, it is very hard to tell if I have any new or different pain.  I had a ot before and because I was not as active while recovering from surgery, is that the problem.           My doctors have did new bone density so they would know how they were before I started these drugs.  I...

      August 19, 2017 view post
      • danna has replied to a post on the message board

        Have a friend that has just been suffering with this problem.  The creams given by the doctor did not work.  She has had a lot of relief using Vitamin E...I understand you can buy it in a bottle or what I used for an incision after foot surgery years ago was the cablets.  Just open then and use the liquid in them as a sauve on the burn.  Cheap/harmless and well worth a try. She said she had relie...

        March 09, 2017 view post
        • danna has replied to a post on the message board

          Sorry I forgot,  he found that the packaged Breakfast Drink e.g. Carnation tasted much better I understand because you are mixing them with cow's milk and the Boost is Soy.  You can add some Whey powder and extra milk powder to them as well.  I like the idea someone had here of adding peanut butter great flavour and nutrition.

          November 17, 2016 view post
          • danna has replied to a post on the message board

            I know they say not to give too much sugar but, i felt at this point for my husband it was the need to have something in his stomach.  Because he felt worse when he didn't.  The idea of putting ice cream in the boost to make it taste better is a good one but, he found it didn't help until I put it in and didn't blend it up...picture an old fashion ice cream float this way you only seem to get the taste of t...

            November 17, 2016 view post
            • danna has replied to a post on the message board

              Dear girl Do not blame yourself you and your family did all you could to be there for him. My dear husband of 48years past 11/2 years ago from kidney cancer it is a terrible illness and you were very young to have to go through this.  I know it is hard to not have guilt.  At some point in my husband illness my sister said I was doing so much for him that at least I would never have any regrets later.&nbs...

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              • danna has replied to a post on the message board

                My husband was diagnosed late June 2009 Stage 4 and had surgery to remove left kidney.  We were told at that time it was Grade 4.  He past away after trying serveral of the chemo drugs on Nov 8, 2011. I know there are others who have lasted longer when drugs work for them.  That is the hope that the available drugs work.

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                • danna has replied to a post on the message board

                  You are soooooooo right!!!

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                  • danna has replied to a post on the message board

                    Harald Thank you so much for your reply...the sites are telling exactly what I was looking for, if anyone was doing screening and what.  I have spoken with the Canadian Cancer Society here and not got this answer. Clearly it is about money, but this screening they are doing in Japan is finding so many others cancers.  The sad part is in the long term early detection cost less then caring for Stage 4 cance...

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                    • danna has created a new message board discussion

                      Is anyone here aware of any realiable screening that is being done (anywhere) or could be done to diagnois this terrible cancer before it reaches Stage 4? I know since it is not one of the common cancers it would be more difficult to know who to screen, but over the long term screening could be the answer to stopping this cancer in its tracks.

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                      About danna

                      Caregiver
                      Kidney Cancer
                      Support

                      Been reading here for awhile and thought I should introduce ourselves. I will try to be brief. Wayne had a CT scan and was diagnosed with a very large tumor in left kidney by an internist (who was looking into a totally different issue) London July 2010. Due to being referred to a surgeon instead of the Cancer Centre first. We were not seen by them until mid Aug.2010. The team there recommended surgery as soon as possible hopefully in 4-6 weeks. He was put on an the surgeon's urgent list but after 7 weeks when the surgeon could not get OR time he was referred to Hamilton and had surgery on Nov.4 to remove the kidney, the tail of pancreas and serveral lypmh nodes. He said it would not be safe to remove 3 nodules that were outside the kidney. He was in hospital for 3 days and has recovered amazingly well. Another CT scan on Dec. 23 and was seen by Dr. M. McKenzine at London Regional Cancer Clinic Dec. 31 and told there was spread to the lungs already and was put on Sutent on Jan. 14 (lower dose that has now been increased)so far he has tolerated it well enough. Wayne is booked for a CT scan on April 8 and gets the results on April 12. We are hoping for the best and trying to learn as much as possible and just keep living as well as we can. Wayne will be 66 years in June and was very healthy up till now....

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